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Celiac Panel Bloodwork, Upper Endoscopy Necessary?


hspichke

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hspichke Apprentice

So, as some of you know I have been searching or a diagnosis for a couple years and it seems this really is it! I had a positive ttg test (I think that is right) a couple weeks ago and some of you suggested I ask for a celiac panel. Dr called back today and said all those blood tests were positive and the next step is do an upper endoscopy to biopsy and confirm as well as see the extent of damage to my intestines. I just wonder if this is necessary? If all my bloodwork is positive and I have numerous symtoms isn't that enough to start a gluten free diet?


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It's up to you. There are a lot of peer-reviewed medical articles saying that people with multiple positive results on the celiac panel don't need an invasive procedure, and that if you go on the diet and your antibodies go away there is no question of celiac disease. You could talk to your doctor about retesting antibodies in six months.

The endoscopy gives useful information, as it can take a couple years to recover from bad celiac damage. You would know how patient you need to be. It can also be confusing as celiac damage can be really patchy and sometimes it gets missed entirely with the biopsies.

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    • trents
      I guess I would encourage you to abstain from the wine for a while. If you know something causes you pain then it is a good idea not to do it if you don't have to.
    • Celiacsugh
      Encouraging to hear others have had this pain and thanks for the responses   yes I was checked, no H pylori. 
    • trents
      We have had numbers of others on this forum report pain in that same area. Have you been checked for an H. Pylori infection? This is something very common in the celiac population.
    • Celiacsugh
      Hi! Yes I have, endoscopy didn’t show anything other than celiacs. I’ve been wondering if it’s possibly that my intestines are so damaged that the wine is irritating because they have not fully healed. Very odd, I felt better for a few weeks and then all the sudden started noticing the pain again after the weekends when I drink wine (don’t drink during the week). I’ve also heard that dull left side pain isn’t a common symptom with celiacs so my diagnosis was surprising to doctor as well though the pain did initially subside with gluten-free diet. 
    • trents
      Welcome to the forum, @Celiacsugh! Have you been checked for a gastric or peptic ulcer?
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