Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does It Matter How Sensitive


finlayson

Recommended Posts

love2travel Mentor

I'm one of those celiacs who does not show any symptoms to being glutened. Personally I would rather have a reaction just so I know and can trace it back to a particular food or event. I feel I have to be extra careful (hence my choice not to eat in restaurants). I'm sure all of you people out there who have violent reactions may be envious of me not showing any reaction, but it can be extremely difficult at times to simply not know.

[/quote

No outward symptoms for me, either, so at times I wish I had some sort of quick and unpainful reaction so I would know! However, I do go to restaurants but they are always high-end places where I fully trust the trained chefs and servers. I always call in advance just to alert the staff. One of my favourite places is owned by a chef whose wife has celiac so he "gets it"! But we must drive three hours to a safe restaurant as there is no place in our town that is.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebs Enthusiast

My bloods were completely negative, sometimes I wonder how that could even be possible with the severity of my symptoms - granted the intussusception started about 6 months after the neg bloods but still :blink: Not to mention all the other autoimmune crap I have going on. How on earth could I test negative? When a glutenous meal will put me in ER with a life threatening condition? I hate Celiac- its so bleeding confusing!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,170
    • Most Online (within 30 mins)
      7,748

    Markie
    Newest Member
    Markie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      As Scott suggests, look into dermatitis herpetiformis. Also the rash there could be from SIBO small intestinal bacterial overgrowth or candida. If your regular doc won't investigate those possibilities, consider going to a naturopathic doc or integrative medicine doc.
    • Beverage
      The forms of vitamins really mattered for me, maybe not for everyone but very much for me. Learned so much here. This b12, recommended by @Ennis-TX has really helped me since diagnose.  I can tell when i run out that i don't feel as good. LIQUIDHEALTH Vitamin B12 Methylcobalamin Liquid Drops with Sublingual Hydroxocobalamin - Boost Energy, Support Immune System, Improve Memory & Concentration - Vegan, Sugar Free, Non-GMO (2 Pack) https://a.co/d/c3cxXt7   i also had RLS, one of my few noticeable symptoms before diagnosis. It rears up when I slack off the supplements or drink wine. I found 2 of these a day keeps it at bay, get it very rarely now: Limited-time deal: ANDREW LESSMAN Circulation & Vein Support for Healthy Legs 60 Capsules - High Bioactivity Diosmin, Butcher's Broom, Visibly Reduces Swelling & Discomfort in Feet, Ankles, Calves, Legs https://a.co/d/7int9i9   I also take the procapslabs.com b complex, it has the methyl forms, which makes a difference for me: ANDREW LESSMAN High Potency B-Complex 180 Capsules - with High Levels of Folate Complex & Biotin, Promotes Cellular Growth, Energy, Immune Function, Detoxification, Fat Metabolism & More https://a.co/d/4fkAmFx   I also take extra thiamine, in form benfotiamine, as recommended by @knitty kitty which tremendously helped asthma. 
    • Scott Adams
      Perhaps you'll need to mix your own cocktails?
    • Scott Adams
      Your son has two positive blood tests for celiac disease, plus a positive biopsy for it...why hasn't your doctor diagnosed him with celiac disease, which is the most likely diagnosis based on the test results you shared? The next step should be a gluten-free diet, which your doctor already recommended.     
    • trents
      I am glad to hear you are not taking acid blocking meds as they increase gut PH which inhibits mineral absorption which, in turn, often causes the body to rob it's own bones of the calcium it needs for various metabolic processes. I was asking about that because acid reflux is very common in the celiac community.
×
×
  • Create New...