Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Round Of Chemo Done!

bonnie blue

By bonnie blue
in Coping with Celiac Disease

Recommended Posts

bonnie blue Explorer
bonnie blue
Posted

Good morning friends,

Well I am all done with my three rounds of cocktails, can I get a Woo Hoo!!! I am scheduled for the removal of my stomach on January 27th, so basically I have 23 days to eat all I want to eat, of course no gluten, lol. The doctors are so pleased with my progress and actually think I will have an easier time with the surgery and the new diet because I already know what my body can and cannot handle, what will cause the big D, make me sick, etc..... So thank you Celiac Disease!!!!!

Now dont get me wrong I know that this will not be easy, but I do feel pretty good going into this, I can look at this two ways, I am getting my stomach removed, ummmm ya that is not going to be fun, or I can look at it as I am getting rid of the organ that has the cancer so that I can move on and live my life, there will be major dietary changes but heck we have all been through that!!

It's kinda funny people say to me well at least you wont have Celiac Disease anymore, ummmm ya I will, I just laugh it off. People dont understand I dont mind having Celiac, its the Cancer that pisses me off, lol.

There are certain things I miss, you bet, but on the other hand I never feel like I am missing out on good food, I eat great food everyday!!!

So I just want to say to everyone we have Celiac Disease, Celiac Disease does not have us!!!

Oh and to let you know I got the cutest little blond wig and I am rockin that new hair, you know they do say blondes have more fun :D

Have a wonderful day everyone, thanks again for all the support and hugs, take care B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Woo Hoo!

Jestgar Rising Star
Jestgar
Posted

woot.gif

You are amazing Miss Bonnie!

Darn210 Enthusiast
Darn210
Posted

WooHoo!!!

You go, girl!!! Your positive attitude is inspiring!!!

My brother heard blondes have more fun and gave it a try . . . turned his hair orange . . . not quite the same.

AVR1962 Collaborator
AVR1962
Posted

YYYYYAAAAAYYYYY!!!!!!!!!! What a good spirit too! Good for you!!

lynnelise Apprentice
lynnelise
Posted

So glad to hear you are doing well! :)

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Yay for being done with chemo!!!

Your attitude is inspiring.'

Rock that blond wig! LOL :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


catsmeow Contributor
catsmeow
Posted

You have such a great attitude. I hope everything works out really well for you.

I hope you don't mind me asking for details. But I am curious about your surgery. Will they be removing most of your stomach and leaving a small amount for food intake, kind of like a Vertical sleeve Gatrectomy or will you have to have it all removed and be basically left with a bypass surgery? If they are leaving some of your stomach, do you know the percentage of stomach they are removing?

I cannot believe someone thought you wouldn't have Celiac's anymore...LOL....DUH!!!!

Here's one for you:

I've read so many times on here about people saying that other people would say to them, that they would kill themeselves if they couldn't eat bread/pasta. It has really offended many of the gluten challenged on this site. Well, glory be, it finally happened to me the other day. The cashier said it. I was delighted, because it took nearly 2 years for someone to say it to me, she said "I'm Italian and I would kill myself if I couldn't eat pasta" I had a good laugh and then told her about Tinkyada pasta, ending with "see you wouldn't have to kill yourself afterall" I said it sarcastically, but in a joking way that caused all around, even the cashier to burst out laughing. Sometimes we just have to find humor in things that really are not funny. I love your attitude and just thought that you would enjoy that liitle tale.

I'll be praying for you, and will add your name to the prayer basket at church on Sunday. I'll be praying that your surgery goes smoothly and safely and that the surgeon gets every bit of the cancer out of there and that you have no more cancer ever ever ever ever again...(((((hugs)))).

ravenwoodglass Mentor
ravenwoodglass
Posted

Glad to hear the chemo is done. With your strength and good attitude, well I think you can beat anything.

((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))))

Skylark Collaborator
Skylark
Posted

WooHoo!!!! So glad to hear you're staying upbeat through all this. I hope the surgery goes well. :)

IrishHeart Veteran
IrishHeart
Posted

Here's your Whoohoo!!! and I'll throw in a "YOU GO, Girl"! :)

You are not only inspiring, but your courage just humbles me.

(I thought I was a warrior princess) ---well, honey, you are the QUEEN! ;)

Best wishes and a hug,

IH

beebs Enthusiast
beebs
Posted

You are really positive! That is great. I'm so glad for you Chemo is over and so glad that the next chapter of your *healthy* life is starting. Yayy!!

mushroom Proficient
mushroom
Posted

Here's another WOO HOO!!! for you - the more the merrier. :D Keep that sunny outlook and the world will smile upon you.and keep you safe :)

mamaw Community Regular
mamaw
Posted

Great to hear chemo is complete... Your spirit is amazing.. After you recover you need to take your spirit &journey on the road to helping others cope..you could be a lifesaver for so many with your positive attitude.. WAY TO GO>>>>>>>>

blessings mamaw

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,151
    • Most Online (within 30 mins)
      7,748
    dancingmom
    Newest Member
    dancingmom
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Matt13
      Biopsy results after 1,5 gfd

      By Matt13 · Posted

      Hi Guys, i did repeat biopsy after marsh3b (without erosion) and results are now: normal villi without atrtophy, 25/100 iel and moderate mononuclear inflamation in lamia propria, with occesional granulocytes. Doc says the he saw little erosion on duodenum. Is this good ? I mean is this progress? Please help!
    • Scott Adams
      Testing for celiac

      By Scott Adams · Posted

      In case you decide to go the route of a gluten challenge for a celiac disease blood test or biopsy: Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Wheatwacked
      Do I really need to get a biopsy?

      By Wheatwacked · Posted

      Kosher salt is not usually iodized. Shortly after starting GFD in 2014, I realized I wasn't getting enough iodine.  Growing up in the 50's and 60's we ate bread that used iodine as a dough modifier so each slice had about 100 mcg of iodine.  A sandwich and glass of milk supplied 300 mcg a day.  In the 70's they stopped using iodine as a conditioner in the US.  Then everyone got scared of milk.  The US intake of iodine dropped 50% since 1974.  Prescriptions of Thyroxine for hypothyroid disease doubled in the same period.  I tried using iodized salt and seaweed and took an expensive thyroid supplement but it wasn't enough.  In 2014 I had a sebaceous cyst (third eye blind).  The previous 6 cysts on my face had all drained and healed with no problem back in the 1990,s.  One on my check had sugically removed. They are genetic from my mom and my brother and son also get them in the same places.  This one I did not have surgery for because I wanted a bellweather to moniter healing.  It did not start healing until I started until 10 years when I started taking 600 mcg of Liquid Iodine a year ago Nov 2023. Lot's of comment about how it was offputting and maybe cancer, it was deep, down to the bone, but I can be obstenant.  Now it is scabbing over and healing normally.  Vision is returning to my right eye (glucoma), musle tone in my chest was the first sign of improvement.  For healing, iodine breaks down defective and aging cells to make room for new growth. I take Liquid Iodine drops from Pipingrock.com but there is also Strong Iodine and Lugols Solution. 50 mcg/drop a dropper full is 12 drops, 600 mcg.,  usually I put it in a can of Red Bull, My brother, son and his family also started taking it. https://www.pipingrock.com/iodine/liquid-iodine-2-fl-oz-59-ml-dropper-bottle-14690 390 drops for $8.  They ship internationally if you can't find it locally. It the US the Safe Tolerable Upper Limit is 1000 mcg a day.  In Japan it is 3000 mcg a day.  The Japanese traditional diet has 50% less breast cancer, nicer hair, skin and nails, and in the 80's the US educational system dropped down comared to the rest of the world while Japanese kids moved up to the top.  Low iodine affects brain fog. According to most education rankings, Japan generally has a higher education rating than the United States, with Japan often ranking within the top 10 globally while the US usually places slightly lower.  In the 1960s, the United States was near the top of the world for education, especially for young people.  About why iodine was removed from medicint: The Wolff-Chaikoff Effect: Crying Wolf? About why over 40% of us are vitamin D deficient: Mayo Proceedings,  Vitamin D Is Not as Toxic as Was Once Thought:  
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy.
    • Bebee
      Testing for celiac

      By Bebee · Posted

      Thank you for your input!  I would really like to know if I have celiac disease because you need make sure you are not getting any cross contamination due to cancer concerns.  I guess I need to start with a knowledgeable Gastroenterologist. Thank you again!
×
×
  • Create New...