Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations/ Tachycardia


peeptoad

Recommended Posts

Roda Rising Star

Luckily, mushroom I did not go into a-fib. They did an ekg and other than the tachy, it was fine. I still don't feel quite right. I've decided that I too feel I need to supplement some magnesium. I'm going to put it to my PCP again and if I don't get anywhere with her I'll discusss it with my endo.

As of right now I'm still swallowing the horsepills, I mean the postassium pills. :P I was initally at the start of all of this put on varapamil to help slow the heart rate down. They wanted to give me a beta blocker but I refused because of past experience and side effects. I quit taking it after a week, because I felt it was contributing to my fluid retention since it was a vasodialator. It was keeping my heart rate somewhat lower, but I feel it is just masking the problem at this point.

Weird thing is when I swell up the legs are the worst(probably have some venous insufficiency), but I get fluid retention all over, after I lay down for the morning or night it is either better or gone. Then when I get up to start my normal day it starts all over again. I was told it wasn't my kidneys or my liver since all looked picture perfect on labs. The PCP somehow looking at me ruled out lymphatics and heart, but don't know how... After the swelling goes down a bit I get a lot of twitching in my legs and it kept me up last night. Hence why I was inquiring about the mag. I go to my endocrinologist in April, so I hope I can deal with the fluid till then. I am wearing thigh high compression stockings at work, and up until the weather turned warm was wearing them all the time at home with the exception of at night. I had about a 5 day reprieve when I did take the diuretic from the swelling. My legs felt good and my pants no longer cut into my waist.

I too never cheet. I have no desire to. That's not to say I havn't gotten glutened on accident. I take this disease very serious and I really have no desire to add to my collection of autoimmune diseases or otherwise.

I also had a melt down today while I was talking to my mom. I had went earlier to buy some shorts and I only tried the one pair on. I bought two other pair in a different color but same size and brand. I got them home and low and behold the two other colors(I didn't try those on) didn't fit! I was already upset I had to buy a size 16 and then have that happen on top. I told my mom I wasn't happy right now and that I was a fat flippen duck(not the exact word I used :o ) and I was disscusted with myself. I weigh as much now as I did when delivered my two boys! I never did loose weight gluten free and now I'm just gaining more. The fluid retention doesn't help, but underneath it, I'm still overweight. Oh well, I'll figure something out. Unfortunately, with this thing cropping up with the potassium and the swelling for the last six months, it makes it near impossible to exercise.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Blue-eyed bandit Apprentice

I think magnesium is perfectly safe as my ER doc and PC told me it was fine to take and helps hold potassium. I too get palpitations and it can be frightening. I never cheat either!! Anyways i would be careful supplementing potassium as too much can cause palpitations as well. Try getting ur potassium from foods like potatoes with skin, oranges, fortified juices etc. If you want magnesium, calcium and potassium you could try a smooothie I take but it is high in natural sugars. 1 cup each of ice and unsweetened vanilla milk, 2 ripe bananas, 1 large spoonful each of ground flaxseed and almond butter- blend and enjoy :).

mushroom Proficient

Try getting ur potassium from foods like potatoes with skin, oranges, fortified juices etc. If you want magnesium, calcium and potassium you could try a smooothie I take but it is high in natural sugars. 1 cup each of ice and unsweetened vanilla milk, 2 ripe bananas, 1 large spoonful each of ground flaxseed and almond butter- blend and enjoy :).

Ahh, you see, this is part of my problem. My food intolerances include potatoes (especially the lectins in the skin), oranges, tomatoes (bye-bye V8 juice). These were all previously high consumption foods for me and probably the cause of current intolerance. And you really shouldn't have more than one banana a day. :o I do do a lot of smoothies with almond / hemp milk often, 1 banana, some frozen mango in place of ice cubes (bought by the bag from TJ's), ground flaxseed, sometimes strawberries. And I snack on almonds. So I have to rely on supplements to make up for what the diuretic takes out.

Blue-eyed bandit Apprentice

Yes that's tricky... I can't imagine taking potassium because I had to after an ER visit for palps and the potassium gave me intense stomach pains as well as more palps even though my bloodwork was normal after 2-3 testings. I stopped it and had much fewer palps.

mushroom Proficient

Yes, the balance between not enough and too much potassium is not easy. Add to that the problem that what they measure in the blood is higher than the amount that is typically in the cells... they normally don't account for that. .I was admitted to hospital for afib, told them it was because my potassium was low (hadn't been able to get gluten free potassium over a weekend so ate WAAAYYY too many bananas) and they tested my blood level and told me it was fine (3.5 which is marginal). Next day's blood test they told me, guess what, my potassium was low (no kidding???!!) and gave me an IV and I popped right out of afib :rolleyes: I mean, what does the patient know? They're just the patient. Ignore what they say and rely on a stupid test. :blink:

Blue-eyed bandit Apprentice

Geez!! I think we have an even more sensitive time too digesting minerals and such so we can overdo it and still not get enough. I HATE palpitations!!

  • 2 months later...
Blue-eyed bandit Apprentice

Well it's been awhile since I posted but the doctor told me everything was fine on my holter event recorder and just PACs in couplets and bigeminy. Well I refused to take off my moniter because they hadn't caught the runs of palpitations I've been getting. And guess what I recorded two runs- bad news it's nonsustained ventricular tachyicardia ( NSVT ) and atrial tachycardia. Boo! :( needless to say very frightening. Luckily my heart is structurally normal so as of now I'm waiting to see an electrophysiologist for a treatment plan if any. Anyone else on hear going through this?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Blue-eyed bandit Apprentice

Here! Oops

mushroom Proficient

I have atrial fibrillation which started with my food intolelrances, and is now an entity on its own whether I eat the foods or not, AND is getting more frequent and bothersome. I am going in next week to have a PVI (pulmonary vein isolation) ablation procedure since, like you, my heart is structurally sound and it's just the electrical wiring that is messed up :P

Blue-eyed bandit Apprentice

Good luck with your ablation! My moms husband had a cathedar ablation done for afib and has had zero episodes since!! I'm going to go see an electrophysiologist soon to see what can be done if anything about mine. I only have a low sudden cardiac death risk but I imagine it will only get worse the older I get and the risk higher.

mushroom Proficient

Good luck with your ablation! My moms husband had a cathedar ablation done for afib and has had zero episodes since!! I'm going to go see an electrophysiologist soon to see what can be done if anything about mine. I only have a low sudden cardiac death risk but I imagine it will only get worse the older I get and the risk higher.

Thanks!

The one bad thing about afib is that it does only get worse, even if the cardiac risk is not high. It can be quite debilitating and you are so young. It has developed to the point now where ablation is being considered as a first line treatment rather than what to do when you have exhausted all other options (like all those meds .:( )

Do you take magnesium and potassium supplements? These can help keep your heart's electrical system operating at its potential - you need the right sodium / potassium ratio, and intercellular magnesium levels. Check out afibbers.org. and specifically the current forum.

Blue-eyed bandit Apprentice

I have NSVT ( non sustained ventricular tactcardia) and atrial tachycardia both different than afib. I have had very good results with magnesium taurate.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748

    Tc clark
    Newest Member
    Tc clark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.