Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations/ Tachycardia


peeptoad

Recommended Posts

Roda Rising Star

Luckily, mushroom I did not go into a-fib. They did an ekg and other than the tachy, it was fine. I still don't feel quite right. I've decided that I too feel I need to supplement some magnesium. I'm going to put it to my PCP again and if I don't get anywhere with her I'll discusss it with my endo.

As of right now I'm still swallowing the horsepills, I mean the postassium pills. :P I was initally at the start of all of this put on varapamil to help slow the heart rate down. They wanted to give me a beta blocker but I refused because of past experience and side effects. I quit taking it after a week, because I felt it was contributing to my fluid retention since it was a vasodialator. It was keeping my heart rate somewhat lower, but I feel it is just masking the problem at this point.

Weird thing is when I swell up the legs are the worst(probably have some venous insufficiency), but I get fluid retention all over, after I lay down for the morning or night it is either better or gone. Then when I get up to start my normal day it starts all over again. I was told it wasn't my kidneys or my liver since all looked picture perfect on labs. The PCP somehow looking at me ruled out lymphatics and heart, but don't know how... After the swelling goes down a bit I get a lot of twitching in my legs and it kept me up last night. Hence why I was inquiring about the mag. I go to my endocrinologist in April, so I hope I can deal with the fluid till then. I am wearing thigh high compression stockings at work, and up until the weather turned warm was wearing them all the time at home with the exception of at night. I had about a 5 day reprieve when I did take the diuretic from the swelling. My legs felt good and my pants no longer cut into my waist.

I too never cheet. I have no desire to. That's not to say I havn't gotten glutened on accident. I take this disease very serious and I really have no desire to add to my collection of autoimmune diseases or otherwise.

I also had a melt down today while I was talking to my mom. I had went earlier to buy some shorts and I only tried the one pair on. I bought two other pair in a different color but same size and brand. I got them home and low and behold the two other colors(I didn't try those on) didn't fit! I was already upset I had to buy a size 16 and then have that happen on top. I told my mom I wasn't happy right now and that I was a fat flippen duck(not the exact word I used :o ) and I was disscusted with myself. I weigh as much now as I did when delivered my two boys! I never did loose weight gluten free and now I'm just gaining more. The fluid retention doesn't help, but underneath it, I'm still overweight. Oh well, I'll figure something out. Unfortunately, with this thing cropping up with the potassium and the swelling for the last six months, it makes it near impossible to exercise.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Blue-eyed bandit Apprentice

I think magnesium is perfectly safe as my ER doc and PC told me it was fine to take and helps hold potassium. I too get palpitations and it can be frightening. I never cheat either!! Anyways i would be careful supplementing potassium as too much can cause palpitations as well. Try getting ur potassium from foods like potatoes with skin, oranges, fortified juices etc. If you want magnesium, calcium and potassium you could try a smooothie I take but it is high in natural sugars. 1 cup each of ice and unsweetened vanilla milk, 2 ripe bananas, 1 large spoonful each of ground flaxseed and almond butter- blend and enjoy :).

mushroom Proficient

Try getting ur potassium from foods like potatoes with skin, oranges, fortified juices etc. If you want magnesium, calcium and potassium you could try a smooothie I take but it is high in natural sugars. 1 cup each of ice and unsweetened vanilla milk, 2 ripe bananas, 1 large spoonful each of ground flaxseed and almond butter- blend and enjoy :).

Ahh, you see, this is part of my problem. My food intolerances include potatoes (especially the lectins in the skin), oranges, tomatoes (bye-bye V8 juice). These were all previously high consumption foods for me and probably the cause of current intolerance. And you really shouldn't have more than one banana a day. :o I do do a lot of smoothies with almond / hemp milk often, 1 banana, some frozen mango in place of ice cubes (bought by the bag from TJ's), ground flaxseed, sometimes strawberries. And I snack on almonds. So I have to rely on supplements to make up for what the diuretic takes out.

Blue-eyed bandit Apprentice

Yes that's tricky... I can't imagine taking potassium because I had to after an ER visit for palps and the potassium gave me intense stomach pains as well as more palps even though my bloodwork was normal after 2-3 testings. I stopped it and had much fewer palps.

mushroom Proficient

Yes, the balance between not enough and too much potassium is not easy. Add to that the problem that what they measure in the blood is higher than the amount that is typically in the cells... they normally don't account for that. .I was admitted to hospital for afib, told them it was because my potassium was low (hadn't been able to get gluten free potassium over a weekend so ate WAAAYYY too many bananas) and they tested my blood level and told me it was fine (3.5 which is marginal). Next day's blood test they told me, guess what, my potassium was low (no kidding???!!) and gave me an IV and I popped right out of afib :rolleyes: I mean, what does the patient know? They're just the patient. Ignore what they say and rely on a stupid test. :blink:

Blue-eyed bandit Apprentice

Geez!! I think we have an even more sensitive time too digesting minerals and such so we can overdo it and still not get enough. I HATE palpitations!!

  • 2 months later...
Blue-eyed bandit Apprentice

Well it's been awhile since I posted but the doctor told me everything was fine on my holter event recorder and just PACs in couplets and bigeminy. Well I refused to take off my moniter because they hadn't caught the runs of palpitations I've been getting. And guess what I recorded two runs- bad news it's nonsustained ventricular tachyicardia ( NSVT ) and atrial tachycardia. Boo! :( needless to say very frightening. Luckily my heart is structurally normal so as of now I'm waiting to see an electrophysiologist for a treatment plan if any. Anyone else on hear going through this?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Blue-eyed bandit Apprentice

Here! Oops

mushroom Proficient

I have atrial fibrillation which started with my food intolelrances, and is now an entity on its own whether I eat the foods or not, AND is getting more frequent and bothersome. I am going in next week to have a PVI (pulmonary vein isolation) ablation procedure since, like you, my heart is structurally sound and it's just the electrical wiring that is messed up :P

Blue-eyed bandit Apprentice

Good luck with your ablation! My moms husband had a cathedar ablation done for afib and has had zero episodes since!! I'm going to go see an electrophysiologist soon to see what can be done if anything about mine. I only have a low sudden cardiac death risk but I imagine it will only get worse the older I get and the risk higher.

mushroom Proficient

Good luck with your ablation! My moms husband had a cathedar ablation done for afib and has had zero episodes since!! I'm going to go see an electrophysiologist soon to see what can be done if anything about mine. I only have a low sudden cardiac death risk but I imagine it will only get worse the older I get and the risk higher.

Thanks!

The one bad thing about afib is that it does only get worse, even if the cardiac risk is not high. It can be quite debilitating and you are so young. It has developed to the point now where ablation is being considered as a first line treatment rather than what to do when you have exhausted all other options (like all those meds .:( )

Do you take magnesium and potassium supplements? These can help keep your heart's electrical system operating at its potential - you need the right sodium / potassium ratio, and intercellular magnesium levels. Check out afibbers.org. and specifically the current forum.

Blue-eyed bandit Apprentice

I have NSVT ( non sustained ventricular tactcardia) and atrial tachycardia both different than afib. I have had very good results with magnesium taurate.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

    2. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

    3. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    4. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,994
    • Most Online (within 30 mins)
      7,748

    KimberlyS
    Newest Member
    KimberlyS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.