Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations/ Tachycardia


peeptoad

Recommended Posts

Roda Rising Star

Luckily, mushroom I did not go into a-fib. They did an ekg and other than the tachy, it was fine. I still don't feel quite right. I've decided that I too feel I need to supplement some magnesium. I'm going to put it to my PCP again and if I don't get anywhere with her I'll discusss it with my endo.

As of right now I'm still swallowing the horsepills, I mean the postassium pills. :P I was initally at the start of all of this put on varapamil to help slow the heart rate down. They wanted to give me a beta blocker but I refused because of past experience and side effects. I quit taking it after a week, because I felt it was contributing to my fluid retention since it was a vasodialator. It was keeping my heart rate somewhat lower, but I feel it is just masking the problem at this point.

Weird thing is when I swell up the legs are the worst(probably have some venous insufficiency), but I get fluid retention all over, after I lay down for the morning or night it is either better or gone. Then when I get up to start my normal day it starts all over again. I was told it wasn't my kidneys or my liver since all looked picture perfect on labs. The PCP somehow looking at me ruled out lymphatics and heart, but don't know how... After the swelling goes down a bit I get a lot of twitching in my legs and it kept me up last night. Hence why I was inquiring about the mag. I go to my endocrinologist in April, so I hope I can deal with the fluid till then. I am wearing thigh high compression stockings at work, and up until the weather turned warm was wearing them all the time at home with the exception of at night. I had about a 5 day reprieve when I did take the diuretic from the swelling. My legs felt good and my pants no longer cut into my waist.

I too never cheet. I have no desire to. That's not to say I havn't gotten glutened on accident. I take this disease very serious and I really have no desire to add to my collection of autoimmune diseases or otherwise.

I also had a melt down today while I was talking to my mom. I had went earlier to buy some shorts and I only tried the one pair on. I bought two other pair in a different color but same size and brand. I got them home and low and behold the two other colors(I didn't try those on) didn't fit! I was already upset I had to buy a size 16 and then have that happen on top. I told my mom I wasn't happy right now and that I was a fat flippen duck(not the exact word I used :o ) and I was disscusted with myself. I weigh as much now as I did when delivered my two boys! I never did loose weight gluten free and now I'm just gaining more. The fluid retention doesn't help, but underneath it, I'm still overweight. Oh well, I'll figure something out. Unfortunately, with this thing cropping up with the potassium and the swelling for the last six months, it makes it near impossible to exercise.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Blue-eyed bandit Apprentice

I think magnesium is perfectly safe as my ER doc and PC told me it was fine to take and helps hold potassium. I too get palpitations and it can be frightening. I never cheat either!! Anyways i would be careful supplementing potassium as too much can cause palpitations as well. Try getting ur potassium from foods like potatoes with skin, oranges, fortified juices etc. If you want magnesium, calcium and potassium you could try a smooothie I take but it is high in natural sugars. 1 cup each of ice and unsweetened vanilla milk, 2 ripe bananas, 1 large spoonful each of ground flaxseed and almond butter- blend and enjoy :).

mushroom Proficient

Try getting ur potassium from foods like potatoes with skin, oranges, fortified juices etc. If you want magnesium, calcium and potassium you could try a smooothie I take but it is high in natural sugars. 1 cup each of ice and unsweetened vanilla milk, 2 ripe bananas, 1 large spoonful each of ground flaxseed and almond butter- blend and enjoy :).

Ahh, you see, this is part of my problem. My food intolerances include potatoes (especially the lectins in the skin), oranges, tomatoes (bye-bye V8 juice). These were all previously high consumption foods for me and probably the cause of current intolerance. And you really shouldn't have more than one banana a day. :o I do do a lot of smoothies with almond / hemp milk often, 1 banana, some frozen mango in place of ice cubes (bought by the bag from TJ's), ground flaxseed, sometimes strawberries. And I snack on almonds. So I have to rely on supplements to make up for what the diuretic takes out.

Blue-eyed bandit Apprentice

Yes that's tricky... I can't imagine taking potassium because I had to after an ER visit for palps and the potassium gave me intense stomach pains as well as more palps even though my bloodwork was normal after 2-3 testings. I stopped it and had much fewer palps.

mushroom Proficient

Yes, the balance between not enough and too much potassium is not easy. Add to that the problem that what they measure in the blood is higher than the amount that is typically in the cells... they normally don't account for that. .I was admitted to hospital for afib, told them it was because my potassium was low (hadn't been able to get gluten free potassium over a weekend so ate WAAAYYY too many bananas) and they tested my blood level and told me it was fine (3.5 which is marginal). Next day's blood test they told me, guess what, my potassium was low (no kidding???!!) and gave me an IV and I popped right out of afib :rolleyes: I mean, what does the patient know? They're just the patient. Ignore what they say and rely on a stupid test. :blink:

Blue-eyed bandit Apprentice

Geez!! I think we have an even more sensitive time too digesting minerals and such so we can overdo it and still not get enough. I HATE palpitations!!

  • 2 months later...
Blue-eyed bandit Apprentice

Well it's been awhile since I posted but the doctor told me everything was fine on my holter event recorder and just PACs in couplets and bigeminy. Well I refused to take off my moniter because they hadn't caught the runs of palpitations I've been getting. And guess what I recorded two runs- bad news it's nonsustained ventricular tachyicardia ( NSVT ) and atrial tachycardia. Boo! :( needless to say very frightening. Luckily my heart is structurally normal so as of now I'm waiting to see an electrophysiologist for a treatment plan if any. Anyone else on hear going through this?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Blue-eyed bandit Apprentice

Here! Oops

mushroom Proficient

I have atrial fibrillation which started with my food intolelrances, and is now an entity on its own whether I eat the foods or not, AND is getting more frequent and bothersome. I am going in next week to have a PVI (pulmonary vein isolation) ablation procedure since, like you, my heart is structurally sound and it's just the electrical wiring that is messed up :P

Blue-eyed bandit Apprentice

Good luck with your ablation! My moms husband had a cathedar ablation done for afib and has had zero episodes since!! I'm going to go see an electrophysiologist soon to see what can be done if anything about mine. I only have a low sudden cardiac death risk but I imagine it will only get worse the older I get and the risk higher.

mushroom Proficient

Good luck with your ablation! My moms husband had a cathedar ablation done for afib and has had zero episodes since!! I'm going to go see an electrophysiologist soon to see what can be done if anything about mine. I only have a low sudden cardiac death risk but I imagine it will only get worse the older I get and the risk higher.

Thanks!

The one bad thing about afib is that it does only get worse, even if the cardiac risk is not high. It can be quite debilitating and you are so young. It has developed to the point now where ablation is being considered as a first line treatment rather than what to do when you have exhausted all other options (like all those meds .:( )

Do you take magnesium and potassium supplements? These can help keep your heart's electrical system operating at its potential - you need the right sodium / potassium ratio, and intercellular magnesium levels. Check out afibbers.org. and specifically the current forum.

Blue-eyed bandit Apprentice

I have NSVT ( non sustained ventricular tactcardia) and atrial tachycardia both different than afib. I have had very good results with magnesium taurate.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,923
    • Most Online (within 30 mins)
      7,748

    cmckurtz
    Newest Member
    cmckurtz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.