Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Real?


egallag

Recommended Posts

egallag Rookie

I was diagnosed about a week ago and have been gluten free since. Is it odd that I was happy to get the diagnosis? I mean it has been years of suffering, to finally have an answer and an answer that is something I can control, was such a relief I did not even think about what it would take to change my life (well not right away anyway).

So I am working on changing my life, went out immediately after my appointment and bought some Gluten free to get started. I started researching before getting my results, just in case. I ordered a couple of Gluten free cookbooks and a shopping guide (I should get them today!).

Here is the "Is it real?" part. I feel like a new person already, it is amazing! I addition to Gluten free, I have started taking Lactaid for my Lactose intolerance (I could not bear not having gluten or dairy, so I figure stop one and put up a defense for the other for now). I have also added a daily dose of DanActive.

I have not had an "episode" in 3 days. It is such an odd sensation to not feel dread when I eat that I keep waiting to feel awful and when I don't I am inclined to want to dance :). And since I am not totally exhausted all of the time, I just might dance.

Don't get me wrong, I am completely freaked out by the whole thing and found myself day dreaming about Perogies and Pizza. But when I eat something and that inevitable pain and discomfort does not follow, it is great.

That's all for now, I just had to get that out there. Thanks for listening, I am happy to have a place to come to talk about things and ask the questions that I am sure will come.

Beth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeNewB Rookie

Congratulations on feeling better already! It is an awesome feeling to finally figure out what helps. Be very careful eating "gluten free" processed foods at first. Sometimes it takes a while before your body is ready for anything processed. Try eating meat, vegetables and rice at first; foods that you prepare yourself. Try adding in new foods slowly - one at a time while checking for a reaction to each one. After a couple of months, it gets much easier and you start to feel like a "normal" person again. Keep on dancing!

Skylark Collaborator

Yes, you can stop pinching yourself. It's real. :)

Nicolevh Newbie

;Oh you are not alone! I was diagnosed about a month ago. My switching to totally gluten-free has been slow (I went on a trip just a couple of days after my dx and I did not adhere to a strictly gluten-free diet). But, I have been gluten-free for about a week now, and I do notice a huge difference. I'm not running for the bathroom or the couch immediately after eating. Tonight I tried Tinkayada's (sp?) penne with mozzarella, tomato, and basil and it was amazing. I was prepared for it to taste different but I thought it tasted exactly the same (and I'm Italian and grew up with the homemade stuff so that's a pretty high review). A slightly different texture but It was way better than I ever thought it could be. In it's defense I used olive oil so it just made the pasta a little slippery and hard to get it to stay on the fork- flavor wise I thought it was spot on. With the exception of just a few items I found everything I needed/wanted at my local Safeway so that makes it even better. I did have some frustrating moments on my first major shopping trip and had to bypass some items to wait until I could come home and research if they were gluten-free but that's just part of the learning curve. My tip: take a printout of what isn't gluten-free AND what is. I had the "what isn't" sheet but then when something wasn't on it I got confused. Was it not on there because it is gluten-free or because the list was from a few years ago? Ex: soy lecithin wasn't on my 'do not eat list' but was on the gluten-free one. I wish I had both with me. Overall, like you, I am so happy to have a dx that is something I can control and that I am already feeling the results from!

  • 4 weeks later...
Simona19 Collaborator

I

Don't get me wrong, I am completely freaked out by the whole thing and found myself day dreaming about Perogies and Pizza.

I can help with this part: https://www.celiac.com/forums/topic/89355-gluten-free-potato-pierogi-with-sour-cream-and-roasted-onion/page__pid__769296#entry769296

Aly1 Contributor

Oh man, why did someone say pierogies. I love pierogies. I am now having a major craving!

Skylark Collaborator

Oh man, why did someone say pierogies. I love pierogies. I am now having a major craving!

Yeah, and my chance of pulling off that recipe is slim. I had enough trouble making stuff like that with gluten dough! I can just picture dough sticking to my rolling pin and the uneven dough and the tears and all the filling coming out in the pot while I boil them. :lol: :lol: :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BrittLoves2Run Apprentice

I am on day 7 of Gluten free and I haven't had ONE joint ache, almost zero nausea, or a headache in almost a week. I can hardly believe it. If i feel this decent already, I can't wait to see how I feel in a few months.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,293
    • Most Online (within 30 mins)
      7,748

    Ems10
    Newest Member
    Ems10
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gunni
      Hey Talia4, I still try to stay on the lower end of carb intake but things are way easier for me these days. It really looks like a digestive issue at the core in my case   As supplements with meals I'm now taking 3-4x 650mg betaine hcl without pepsin (to handle larger doses) 1-2x Doctor's Best digestive enzymes   And daily Share Pommelozzini. This has helped my digestion immensely with carbs and fats. I'm way more tolerant of larger meals and things are a lot easier. Happy to hear any progress or findings on your end as well though!  
    • trents
      I think most of us, when we first got our diagnosis, imagined that going gluten free would be the magic the bullet that would restore us to perfect health. We soon find out that it usually isn't quite that simple and that celiac disease has long fingers.
    • Celiacsugh
      Thanks! I still have much to learn, I'd hoped going gluten-free would be a magic bullet and I'm learning my system is still very sensitive which is overwhelming and discouraging at times. Thanks for the yogurt tip! There is comfort in knowing that this is common during early healing and I'm not alone! 
    • Celiacsugh
      Thanks so much for the response. Are you usually able to pinpoint a trigger when you get the pain again? What I didn’t share in my earlier post is that I also usually eat out on weekends (though I share celiacs/needs to be gluten-free) and I’ve also been under a lot of stress lately in my personal life. While I’m speculating that it’s the wine it could certainly be a number of things. Do you ever notice the pain more when you are stressed? Learning so much about the brain/gut connection and celiacs. Thanks, there is comfort in hearing others have experienced similar symptoms. 
    • Raquel2021
      This was my main symptom. I still get it from time to time. Also feels like a burning pain on the upper abdomen. I think the wine could definitely cause the pain to be worse. There are do many things I still can't eat.
×
×
  • Create New...