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90 Percent Sure, Going To Gi Monday


addis001

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addis001 Apprentice

My history-

Hyperthyroidism 2000-2004

(went through a period of not caring to take my PTU, not having insurance during 2003-2004)

Suddenly in 2005, some of my symptoms were gone and blood tests were normall..

Pain and gall stones found in 2006.

Gallbladder removed in 2008. (insurance finally kicked in)

Hyperthyroidism again in 2nd trimester of pregnancy up until birth March 2010

Symptoms since gallbladder removal-- Some nausea still, even before gallbladder Lactose (milk) intolerance

Since giving birth-- nausea, Tired, fatigue, bouts of diarrhea, weird pain under right rib area near abdomen, bloating

Symptoms since 4 months ago-- All above apply still, but bone pain, muscle weakness, depression type of not wanting to do anything, not hungry some days, some days I'm starving, weightloss , irregular periods

Been feeling better ever since I started taking my prenatals to try and get pregnant again. Fatigue disappeared, and depression lifted. I feel like getting out of bed and meeting the world again..

Family history-- Celiac Disease- Grandmother, Aunt, Cousin

As i look at all the facts staring at me, it seems like I'm armed and ready to go to the GI with all my symptoms.. But in my heart I know I have it no matter what this doctor wants to test me for.. All i want to do is cry.. If it isn't celiac, and my husband thinks I'm a hypochondriac, because he doesn't believe anything until its on paper.. Even though I pushed for the doctor to test my thyroid, and i pushed for the doctor to look at my gall bladder.. i found my diagnosis each time... And now I'm scared that this time I'm right.. I know there are probably a million things worse than being allergic to gluten, but right now I can't think of one thing. Maybe because its late, and I'm an emotional wreck anyway, but its just hard to take in.


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Meggielynn13 Rookie

Reading this makes me feel like I'm reading a list of my own symptoms plus I might have hypothyroidism( minus the pregnancy ones as I have never been pregnant, I'm only 23 :) ) I too had my gallbladder out and had more problems after than I did before. Others have told me that having undiagnosed celiac or gluten sensitivity could have taken my gallbladder. Sounds like what happened to you too. I'm the opposite of you that I want the answers on paper so I know that I'm not being a hypochondriac. My boyfriend knows that I'm not and really does think I'm sick.

Hopefully you get the answers you need. And you do not sound like you are not sick. And reading this makes me feel better about my own situation cause I feel like I'm not the only one going through this. Let everyone know your answers when you get them back. Its great to read that people got the answers that they wanted. I hope to be in that place someday :)

addis001 Apprentice

Everyone I talk to that had no gallbladder, has had the worse problems battling stomach virus's too.

I had mine removed due to stones. Why was yours removed if you don't mind me asking?

***Update*** Had to go to the ER today.. I've had two days of constant diarrhea, which made me dehydrated.. They gave me an IV and (Zofloft?spelling?) For nausea and the cramping... I really really can't wait until i see the GI now.. It seems all I am is getting worse as time passes...

Meggielynn13 Rookie

I had the stomach virus two days before I had my gallbladder removed and a week after. I normally don't get it so I was wondering why I got it twice in about two weeks. I had my gallbladder removed due to pain in my side constantly and having tons of GI problems that the GI told me was due to IBS. I kept pressuring them to do a hida test cause there were no stones on the ultrasound and I'm glad they did it. It had a 12 to 14 ejection rate. At my age it should have been 90. But having it out I can barely eat anything without having issues 30 to an hour later. Hopefully they test you for celiac. If they don't I'd pressure them to. I did and they're testing me in two weeks. Going gluten free anyways cause of the 20-30% false negative. Let us know how everything works out. Being on here and reading/talking to people has helped me a lot so I don't have to talk about it constantly with family and friends who are sick of hearing it.

researchmomma Contributor

Everyone I talk to that had no gallbladder, has had the worse problems battling stomach virus's too.

I had mine removed due to stones. Why was yours removed if you don't mind me asking?

***Update*** Had to go to the ER today.. I've had two days of constant diarrhea, which made me dehydrated.. They gave me an IV and (Zofloft?spelling?) For nausea and the cramping... I really really can't wait until i see the GI now.. It seems all I am is getting worse as time passes...

Zofran is what they gave you for nausea and vomiting. I had IVs full of it during my pregnancies. It is fab.

addis001 Apprentice

YES Zofran!! It saved my life... Its like a miracle drug...

After seeing the GI, he wants to do colonosopy (spelling). he thinks its Crohns, IBS, or ulcer.. At least we're doing something..

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    • Nicbent35
      Well I had a moment yesterday morning where I accidentally gave her gluten. She wanted what I was eating and I forgot and let her have a few bites of toast. It was a really bad night last night with her behavior. Will a few bites of bread influence their behavior that much or could it just be a coincidence?
    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
      I called zero water and they state their filters do not contain gluten or gluten containing ingredients. 
    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
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