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Hi I Am New To This Forum

natgirl

By natgirl
in Meet Up Room

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natgirl Newbie
natgirl
Posted

HI my Name is Natalie i was diagnosed with coeliac disease 6 yrs ago and so was my eldest son i was 32 at the time, i was diagnosed after a life threatening bout of pneumonia, and asked to be tested as my eldest sister had been diagnosed because of her diabetes, all i knew is i had been sick my whole life and if I had it wanted to start diet and finally get better and that I did. I was then later diagnosed with lactose intolerance and fructose malabsorption. and I am sure i am not the only one out there with all three.

cheers Nat

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mushroom Proficient
mushroom
Posted

Hi Nat, and welcome.

You are quite correct that a lot of diseases/problems seem to be co-riders with celiac(coeliac). One most of us can count on is lactose intolerance until we can heal our guts and start making the lactase enzyme again. And Yes, there are many on here with fructose malabsorption, although I don't believe I am one of them. I have problems dealing with lectins in my diet. It is often a difficult task figuring out what our other problems are, and that is why many of us have gravitated here, to bounce questions off others with similar problems. And then hang around to be bounced off of too :)

Hang around and make yourself at home.

natgirl Newbie
natgirl
Posted
  • Author

Hi Nat, and welcome.

You are quite correct that a lot of diseases/problems seem to be co-riders with celiac(coeliac). One most of us can count on is lactose intolerance until we can heal our guts and start making the lactase enzyme again. And Yes, there are many on here with fructose malabsorption, although I don't believe I am one of them. I have problems dealing with lectins in my diet. It is often a difficult task figuring out what our other problems are, and that is why many of us have gravitated here, to bounce questions off others with similar problems. And then hang around to be bounced off of too :)

Hang around and make yourself at home.

thanks i will do that I like learning from others as well as people hopefully learning off me, will be great being able to bounce things off others people that have similar problems

ciamarie Rookie
ciamarie
Posted

Hi Nat,

I'll second what mushroom said and wanted to add my welcome. I've learned a ton already in the short time I've been here, so I'm sure you will too.

xjrosie Apprentice
xjrosie
Posted

Welcome.

I'm a newbie too, for my daughter who is diabetic/celiac.

This place is great for resources, in my few days here I've learned so much more.

jeanzdyn Apprentice
jeanzdyn
Posted

I was diagnosed with "possible" Celiac disease back in November (2011).

That is what they said to me "possible Celiac disease", however I was not surprised to hear that, and I know that I do indeed have Celiac disease. I know because so many of the symptoms fit and because if I observe a gluten-free diet I feel so much better. I struggled for too many years with symptoms that doctors seemed to find puzzling, and then I finally talked to a gastroenterologist because I wanted to have colonoscopy. After spending 4/5's of my life trying to figure out how my myriad of symptoms fit together it is a relief to know that I actually have a medical condition and it is not "all in my head". On my own I had tracked my symptom-ology down to Sjogren's Syndrome and now to learn that it can be related to Celiac Disease --at least I was not far off in tracking down this thing that has made me so sick for so long!

I had experimented with taking wheat, in the form of breads and pastas, out of my diet and that helped with some of my symptoms. Anyway, it has been a very long journey, and while no one is happy to have Celiac Disease, I am happy to know what on earth is wrong with my body!

Scotslass Newbie
Scotslass
Posted

Hello Nat girl..I'm a newbie too.. Welcome..

I've had coeliacs for 9 years but I suspect I have had it since childhood after spending 4 months in hospital grossly underweight and vomiting after eating as a 5 year old ..However it was not picked up and I was discharged as ' failure to thrive'

However I did thrive despite that and was diagnosed after a DVT in my arm landed me in hospital and blood tests showed anaemia..So an endoscopy confirmed coeliacs..

And teh rest is history

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navigator Apprentice
navigator
Posted

Welcome to the forum, natgirl. This forum is not only great for information but also a haven when things are not going so well. You know that you can come on here and that there are friends waiting to give you advice, assistance, understanding and a good giggle! I discovered it the day after my diagnosis and in those first few months when I was struggling to get my head round being coeliac it was a wonderful support.

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    • trents
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      By trents · Posted

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    • Lynnard
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      By Lynnard · Posted

      Thank you!  This is super helpful and confirms everything I have read. I was definitely eating lots of gluten before both testing and endoscopy. If the biopsies do come back negative, I'm wondering how conclusion/distinction is made between celiac and gluten intolerance is made.  Or does it matter because presumably recommendation of gluten-free diet will be the protocol??  
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