Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Hardest Part About Celiac For Me Is...

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

lynnelise Apprentice
lynnelise
Posted

I USED to say I am so glad I got to visit New Orleans before Katrina. Now I'm glad I went before being gluten/corn free. The food was absolutely the best I ever had!

This exactly! I love New Orleans more than any place I've visited!!! I know I could make the dishes at home but it's not the same as being there and having the experience of trying all the good restaurants. Celiac makes you lose a lot the carefree attitude that makes vacation fun.

So to answer the overall question I guess what I find hardest is the constant planning and the way an unexpected hurdle can throw everything off. Like today for instance. I got called into a meeting before I had a chance to eat my breakfast...well they served donuts so it was a really bad time to be hungry. Then things get intense and they decide to work through lunch and order food in....from a pizza place I'm unfamilar with. I was way too scared to chance a salad so I just said no thanks. So that made two meals I had to suffer through. Finally I snuck out for a restroom break and scarfed down a Larabar. Normal people don't worry about that...they just enjoy donuts and pizza on the company's dime!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


xjrosie Apprentice
xjrosie
Posted

If you are staying somewhere with a kitchen you could cook - but that's hard to find there unless its a cottage or a liberal B&B.

That's why I have hope of going back soon. My uncle still lives there....so he has a kitchen!

Look for an extended-stay hotel, I know the Holiday Inn company has one but I can't remember the name. Anyway, those hotels typically have a little larger room with a fridge, mini-stove, and microwave. The one I stayed in even had a bit larger table where my kids and I could sit down.

srall Contributor
srall
Posted

Look for an extended-stay hotel, I know the Holiday Inn company has one but I can't remember the name. Anyway, those hotels typically have a little larger room with a fridge, mini-stove, and microwave. The one I stayed in even had a bit larger table where my kids and I could sit down.

I think this is really good advice. When we went to England last summer I made sure we had a kitchen. This trip to New Orleans we won't have the luxury, but hopefully a fridge. (The hotel is part of a convention). But in our travels we have learned to research ahead of time and book our hotel based around proximity to a Whole Foods, Outback, or nicer restaurants, a fridge or kitchen in the hotel, or even rent a house if we need to...traveling is just not at all carefree anymore.

HalfBaked Newbie
HalfBaked
Posted

There is at least one that you can get gluten-free King Cakes, I know I get mine from a guy that is at Who Dat Cafe in Marigny neighborhood, which is just outside the Quarter. He always has different savory items and sweets as well. Talk to him, if you have special restrictions, he will go for it if he can (eg Nut Free, Soy Free, Dairy Free.) I go there regularly, and honestly I don't feel as though I'm missing out at all on the gluten-free items. The reason I found this thread was that I was looking for a gluten-free muffaletta bread recipe for Mardi Gras. At last I got to help someone find King Cakes, now back to the trawling of the internet oceans for that one special recipe...

PS, there is a restaurant in this Cafe, the same guy supplies the biscuits (Green Onion Cheddar!! Yum!) with your breakfast, and believe this... gluten-free Grillades and Grits!

Also, El Gato Negro has been extremely accomodating for me in the past, and I've not once been "Glutened." They are right off the French Market, so definitely another place to check out if visiting.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,011
    • Most Online (within 30 mins)
      7,748
    chloekimber
    Newest Member
    chloekimber
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Nicola McGuire
      Testing

      By Nicola McGuire · Posted

      I was told by my doctor that due to high levels in bloods my son has celiacs but can do a test with biopsy etc but she said she can see the levels without this in his bloods . Is that correct 
    • trents
      My son newly diagnosed

      By trents · Posted

      Welcome to the forum, @Nicola McGuire! An appointment with a dietician might be helpful. In the meantime, this article might get you off to a good start: It is easy to eliminate major sources of gluten in the diet but to arrive at a consistently "gluten-free" state is much more challenging. There is a real learning curve involved and part of that is just experience. In time, you and your son will develop a sixth sense of where gluten might be hiding as you shop for food and eat out. Eating out is the biggest challenge. You will make mistakes so give yourselves some grace. It is important that your son take ownership of this new health reality as you cannot be with him 24/7.
    • Bebygirl01
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Bebygirl01 · Posted

      Ortiz-Sánchez JP, Cabrera-Chávez F, de la Barca AM. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients. Nutrients. 2013 Oct 21;5(10):4174-83. doi: 10.3390/nu5104174. PMID: 24152750; PMCID: PMC3820067. AND SEE: Oats Intolerance in Celiac Disease. PLoS Med. 2004 Oct;1(1):e23. doi: 10.1371/journal.pmed.0010023. Epub 2004 Oct 19. PMCID: PMC523841. AND ALSO SEE: Bascuñán KA, Orosteguí C, Rodríguez JM, Roncoroni L, Doneda L, Elli L, Araya M. Heavy Metal and Rice in Gluten-Free Diets: Are They a Risk? Nutrients. 2023 Jun 30;15(13):2975. doi: 10.3390/nu15132975. PMID: 37447301; PMCID: PMC10346754. Celiac disease is one of the most common autoimmune gastrointestinal diseases; over the last decades, its prevalence indicates a mean annual increase in frequency currently calculated at 7.5% per year [23]. celiac disease is triggered by gluten present in the diet and the disease involves autoimmune and inflammatory damage to the small intestine in genetically susceptible individuals. To develop celiac disease a person must inherit the genetic predisposition; however, about one third of the population carries the risk genes and only ~1% of the population develops the disease, indicating that genetics is not sufficient to explain the condition. The environment participates by providing the triggering factor, i.e., gluten, and the disease is activated by environmental factors which, until now, have not been fully understood, among which changes in eating habits and the intestinal microbiota are considered to be significant factors [24,25]; yet, current knowledge is insufficient to explain the mechanisms involved. Currently, the only treatment for celiac disease is a GFD for life. AND ALSO SEE: Dr. Osborne: Although rice is considered gluten-free based on the definition set forth by the FDA, rice does contain a different form of gluten prolamin called orzenin. In my experience, those with known celiac disease or non celiac gluten sensitivity issues do better when avoiding rice.
    • Nicola McGuire
      My son newly diagnosed

      By Nicola McGuire · Posted

      It’s quite overwhelming receiving diagnosis my son is 14 should I have had an apt for him to discuss food etc ? I have read up a bit but have lots of questions re cross contamination 
    • trents
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By trents · Posted

      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
×
×
  • Create New...