Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting To Introduce Gluten

momtok&m

Recommended Posts

momtok&m Explorer
momtok&m
Posted

Hi all! I haven't been on in ages, now I need some advice. A little background first...DD2 has been off of gluten for 2+ years, she'll be 3 in a week and a half. She's doing fine without, we never had her tested and her ped. is just fine with a GI diagnosis instead of trying to test for Celiac. Anyway, DS will be 1 tomorrow and I'm afraid to introduce gluten! I'm not afraid of him being gluten intolerant, I'm afraid I might not see symptoms if he is. So, how long should I wait to give him some gluten? What are the chances he'll have issues too? DD1 does not have any gluten issues and neither do I or DH. Any help/advice/experience is greatly appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Since he's already gluten-free, why don't you wait until you are sure he can communicate to you how he feels?

M0Mto3 Rookie
M0Mto3
Posted

I can understand your fears. If DD was not my last child I would be scared to give my kids gluten, too. With all that she went through I don't know if it would be worth it. I like the idea of waiting until he can communicate to you how he is feeling. If you start now you may end up playing a guessing game to try to figure out if there are symptoms.

One thing I would ask is did you breastfeed? Were you eating gluten? My DD's issues started with just the little bit of gluten she got through breastmilk and then the cross contamination in the Gerber Rice Cereal. So, unless he has been strictly formula fed or you were eating a gluten free diet, then your son has already been consuming gluten through breastmilk. The gluten in breastmilk was enough to cause problems with my DD. Although, we didn't figure that out until much later when she was older and eating gluten products herself.

beebs Enthusiast
beebs
Posted

I'm going through the same thing with my youngest - he is 8 months old and I'm too scared to give him any gluten...what a minefield!

momtok&m Explorer
momtok&m
Posted
  • Author

I do breastfeed my kids and I do/did eat gluten and it hasn't been an issue. DD2's problems were only with foods she consumed. We're fortunate and my consumption of gluten hasn't been an issue. (disclaimer-I don't eat much gluten, I crave sugar when pregnant/nursing). I think I will wait, but how long?! I always said once DD2 was 2 1/2 I'd try to reintroduce gluten just to make sure it was definately gluten she couldn't tolerate. Now I'm thinking she can do that on her own when she's old enough B)

  • 2 months later...
momtok&m Explorer
momtok&m
Posted
  • Author

So, since my original post my kids have had to go back to their babysitter. She watched our kids for a year so she understands the whole gluten intolerance mess.I forgot to tell her that we were keeping DS (now 14.5 months)off of gluten, I just didn't even think about it since we pack their lunches! Anyway, she shared some cheez-its with him. I wasn't angry, I figured we'll just consider this a good time to start gluten and see what happens. All evening all he will do is nurse. If I have to put him down, or even take him off, he sits up and throws his body over at the waist and just cries and cries. It looks like he has gas pains. Looks like no more gluten for him :( I'm considering trying again though, just to make sure. Is that considered cruel or diagnostic? *sigh* What's your experience been with toddlers and immediate reactions?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer. Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks...
    2. Scott Adams
      - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Celiac disease is the most likely cause, but here are articles about the other possible causes:
    3. Scott Adams
      0

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    4. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    5. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748
    Mike Maurillo
    Newest Member
    Mike Maurillo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.