Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting To Introduce Gluten


momtok&m

Recommended Posts

momtok&m Explorer

Hi all! I haven't been on in ages, now I need some advice. A little background first...DD2 has been off of gluten for 2+ years, she'll be 3 in a week and a half. She's doing fine without, we never had her tested and her ped. is just fine with a GI diagnosis instead of trying to test for Celiac. Anyway, DS will be 1 tomorrow and I'm afraid to introduce gluten! I'm not afraid of him being gluten intolerant, I'm afraid I might not see symptoms if he is. So, how long should I wait to give him some gluten? What are the chances he'll have issues too? DD1 does not have any gluten issues and neither do I or DH. Any help/advice/experience is greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Since he's already gluten-free, why don't you wait until you are sure he can communicate to you how he feels?

M0Mto3 Rookie

I can understand your fears. If DD was not my last child I would be scared to give my kids gluten, too. With all that she went through I don't know if it would be worth it. I like the idea of waiting until he can communicate to you how he is feeling. If you start now you may end up playing a guessing game to try to figure out if there are symptoms.

One thing I would ask is did you breastfeed? Were you eating gluten? My DD's issues started with just the little bit of gluten she got through breastmilk and then the cross contamination in the Gerber Rice Cereal. So, unless he has been strictly formula fed or you were eating a gluten free diet, then your son has already been consuming gluten through breastmilk. The gluten in breastmilk was enough to cause problems with my DD. Although, we didn't figure that out until much later when she was older and eating gluten products herself.

beebs Enthusiast

I'm going through the same thing with my youngest - he is 8 months old and I'm too scared to give him any gluten...what a minefield!

momtok&m Explorer

I do breastfeed my kids and I do/did eat gluten and it hasn't been an issue. DD2's problems were only with foods she consumed. We're fortunate and my consumption of gluten hasn't been an issue. (disclaimer-I don't eat much gluten, I crave sugar when pregnant/nursing). I think I will wait, but how long?! I always said once DD2 was 2 1/2 I'd try to reintroduce gluten just to make sure it was definately gluten she couldn't tolerate. Now I'm thinking she can do that on her own when she's old enough B)

  • 2 months later...
momtok&m Explorer

So, since my original post my kids have had to go back to their babysitter. She watched our kids for a year so she understands the whole gluten intolerance mess.I forgot to tell her that we were keeping DS (now 14.5 months)off of gluten, I just didn't even think about it since we pack their lunches! Anyway, she shared some cheez-its with him. I wasn't angry, I figured we'll just consider this a good time to start gluten and see what happens. All evening all he will do is nurse. If I have to put him down, or even take him off, he sits up and throws his body over at the waist and just cries and cries. It looks like he has gas pains. Looks like no more gluten for him :( I'm considering trying again though, just to make sure. Is that considered cruel or diagnostic? *sigh* What's your experience been with toddlers and immediate reactions?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      316

      Terrible Neurological Symptoms

    2. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      316

      Terrible Neurological Symptoms

    3. - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      316

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,588
    • Most Online (within 30 mins)
      7,748

    FSteele
    Newest Member
    FSteele
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @HectorConvector, My blood glucose level would spike after I ate.  It wouldn't return to "normal" fasting blood glucose level for longer and longer.  Blood glucose level should return to normal an hour after eating.  Mine would take two hours, then three hours, then longer.  So over night fasting blood tests wouldn't necessarily be very high until they got really bad.  But the peripheral neuropathy would feel the worst while my glucose was too high.  My blood glucose meter confirmed this.   On top of all that, my Celiac disease was still undiagnosed at the time, and I was suffering from malabsorption and nutritional deficiencies.  The deficiencies in B vitamins affected not just insulin production in the pancreas, but also the nerves in my extremities.  Nerves need B vitamins to maintain the myelin sheath protecting the nerves (like the plastic coating on electrical wires) when they fire.  When the myelin sheath is not maintained, that "pins and needles" feeling starts and increases as more of the sheath is damaged.  My parathesia progressed until the "pins and needles" went from my toes all the way up to my thighs.   Without sufficient vitamins, I started slowly losing weight.  Our bodies will start using not only stored fat, but also tear down our own muscles to provide fuel for the body to stay functional.   I hope you don't have pre-diabetes or diabetes.  Most diabetics have a thiamine deficiency.   How much thiamine are you taking?  What form of Thiamine are you taking?  
    • HectorConvector
      These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have any other symptoms relevant to diabetes except for the nerve pain, which had been in existence for many years with "normoglycaemia", but we'll see. In terms of my current diet: I get roughly 60% of my calories from fat and protein, and 40% from carbs (an estimation). I'm on currently about 2200 calories per day, which is too low for someone of my size, so I've been slowly losing weight that I want to put back on again. But I don't want to do that without using weights, which flare my pain up unfortunately. 
    • Russ H
      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.