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Waiting To Introduce Gluten

momtok&m

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momtok&m Explorer
momtok&m
Posted

Hi all! I haven't been on in ages, now I need some advice. A little background first...DD2 has been off of gluten for 2+ years, she'll be 3 in a week and a half. She's doing fine without, we never had her tested and her ped. is just fine with a GI diagnosis instead of trying to test for Celiac. Anyway, DS will be 1 tomorrow and I'm afraid to introduce gluten! I'm not afraid of him being gluten intolerant, I'm afraid I might not see symptoms if he is. So, how long should I wait to give him some gluten? What are the chances he'll have issues too? DD1 does not have any gluten issues and neither do I or DH. Any help/advice/experience is greatly appreciated.

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Jestgar Rising Star
Jestgar
Posted

Since he's already gluten-free, why don't you wait until you are sure he can communicate to you how he feels?

M0Mto3 Rookie
M0Mto3
Posted

I can understand your fears. If DD was not my last child I would be scared to give my kids gluten, too. With all that she went through I don't know if it would be worth it. I like the idea of waiting until he can communicate to you how he is feeling. If you start now you may end up playing a guessing game to try to figure out if there are symptoms.

One thing I would ask is did you breastfeed? Were you eating gluten? My DD's issues started with just the little bit of gluten she got through breastmilk and then the cross contamination in the Gerber Rice Cereal. So, unless he has been strictly formula fed or you were eating a gluten free diet, then your son has already been consuming gluten through breastmilk. The gluten in breastmilk was enough to cause problems with my DD. Although, we didn't figure that out until much later when she was older and eating gluten products herself.

beebs Enthusiast
beebs
Posted

I'm going through the same thing with my youngest - he is 8 months old and I'm too scared to give him any gluten...what a minefield!

momtok&m Explorer
momtok&m
Posted
  • Author

I do breastfeed my kids and I do/did eat gluten and it hasn't been an issue. DD2's problems were only with foods she consumed. We're fortunate and my consumption of gluten hasn't been an issue. (disclaimer-I don't eat much gluten, I crave sugar when pregnant/nursing). I think I will wait, but how long?! I always said once DD2 was 2 1/2 I'd try to reintroduce gluten just to make sure it was definately gluten she couldn't tolerate. Now I'm thinking she can do that on her own when she's old enough B)

  • 2 months later...
momtok&m Explorer
momtok&m
Posted
  • Author

So, since my original post my kids have had to go back to their babysitter. She watched our kids for a year so she understands the whole gluten intolerance mess.I forgot to tell her that we were keeping DS (now 14.5 months)off of gluten, I just didn't even think about it since we pack their lunches! Anyway, she shared some cheez-its with him. I wasn't angry, I figured we'll just consider this a good time to start gluten and see what happens. All evening all he will do is nurse. If I have to put him down, or even take him off, he sits up and throws his body over at the waist and just cries and cries. It looks like he has gas pains. Looks like no more gluten for him :( I'm considering trying again though, just to make sure. Is that considered cruel or diagnostic? *sigh* What's your experience been with toddlers and immediate reactions?

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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