Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Common Are False Negatives


Twitch

Recommended Posts

Twitch Newbie

I went Gluten free about 3-4 days before I had blood tests done. I was curious as to how likely (yes I know anything is possible) a false negative is.

I was tested for Gliadin AB IgG, DEAMIDATED with a level of 2.4

Here are some other related test results:

RETICULIN IGA (Negative)

ENDOMYSIAL IGA (Negative)

Immunoglobulin A at 200. (Not sure if this is relevant)

Thanks for any help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Those are definitely negative test results. It doesn't mean that gluten is not a problem for you -- it just means that you do not have celiac disease (at this point!). It is very common to be convinced you have celiac disease and yet test negative for it. Sometimes it will be because the disease is latent and has not yet manifested; sometimes it will be because your celiac is primarily neurological and is affecting your brain rather than your gut. Sometimes it will be that the results are just plain wrong. And sometimes it will be because you are gluten intolerant but not celiac. And it is also possible that something else is causing your symptoms.

The easiest way to find out if gluten is a problem for you is to quit eating it. Do not listen to a doctor who tells you categorically that gluten is not a problem and to go your merry gluten-eating way, that it's just IBS!!. At least give the gluten free diet a strict trial for three months before making up your mind that it is not gluten. You may be surprised :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,710
    • Most Online (within 30 mins)
      7,748

    Jose Luis Bondi
    Newest Member
    Jose Luis Bondi
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
    • TexasCeliacNewbie
      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
    • trents
      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Thanks,Scott. Yes, I had already seen those 
×
×
  • Create New...