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How Do You Know If You Are Super Sensitive?


mtdewpeg

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mtdewpeg Rookie

How do you know if you are a super sensitive celiac or super sensitive to gluten? I can eat almost anything and not feel sick. I went to the GI because of the diarehha,weight lost, iron anemia. HE DID a endoscopy and the biopsy said most likely celiac. i had a celiac panel and other celiac related blood test done after being gluten free for a couple weeks. it came back saying i have celiac sprue. after the biopsy i was thinking it was something else, but since the celiac panel and other test were positive for celiac i am actually a little releived. I KNOW THIS IS LIFE CHANGING. I will try my best to stay gluten free and pray for the best.

I do have like eczema or some type of rash all over my legs and some on my arms. i was wondering if this could be related?


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GFreeMO Proficient

You react to things that don't usually make the average celiac sick. Some of us, myself included get really sick from anything processed and labeled gluten free.

Your rash is probably related. I get something similar when glutened. It could be DH as well.

mushroom Proficient

Most people would not consider themselves super sensitive until they had ben on the diet for a few months, had taken all possible precautions to avoid gluten or cross-contamination from gluten, had eliminated other possible causes for symptoms (such as additional intolerances like dairy), and were still experiencing almost constant symptoms of glutening.

kareng Grand Master

I don't think you can tell if you are Super sensitive until you have done the gluten-free diet really well for at least 6 months. It takes time to heal & get in the "groove". And to make sure its not milk or something else prolonging the GI issues.

You need to get the basics down before you can tell if you need to delve further and to lower levels of gluten than the majority of Celiacs.

IrishHeart Veteran

I do have like eczema or some type of rash all over my legs and some on my arms. i was wondering if this could be related?

In answer to your other question, it is possible that yes, your rashes are related to celiac.

Many of us have had rashes and sores clear up since going gluten free. It takes time for you to see symptoms improve, so try to be patient. :)

If you have DH, eczema or psoriasis, those are diagnosed and often treated with medications, along with the gluten-free diet.

Best wishes!

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    • ZandZsmom
      Are you using the same mixer that you used for your gluten containing baking? That could be your culprit.
    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
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