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Is It Celiac?

BrittLoves2Run

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BrittLoves2Run Apprentice
BrittLoves2Run
Posted

Hello!

I

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Takala Enthusiast
Takala
Posted

Could be, or also could be gluten intolerance. In that case, the celiac panel blood tests will come back negative. :ph34r:

If your blood tests come back negative, and you are not getting a biopsy, the next time you get one of those "mystery" rashes have them biopsy the skin next to it for DH, which could get you a positive diagnosis of celiac. After testing has been exhausted, try going on a gluten free diet anyway to see what happens, as your symptoms match having a gluten problem.

Don't forget that all your medications will have to be gluten free, also.

BrittLoves2Run Apprentice
BrittLoves2Run
Posted
  • Author

Could be, or also could be gluten intolerance. In that case, the celiac panel blood tests will come back negative. :ph34r:

If your blood tests come back negative, and you are not getting a biopsy, the next time you get one of those "mystery" rashes have them biopsy the skin next to it for DH, which could get you a positive diagnosis of celiac. After testing has been exhausted, try going on a gluten free diet anyway to see what happens, as your symptoms match having a gluten problem.

Don't forget that all your medications will have to be gluten free, also.

So this might seem like a stupid question, but what is the difference between Celiac and Gluten intolerance? What do you do to deal with Gluten intolerance?

I'm really anxious to get to the doctors tomorrow. I don't want to put myself on a gluten-free diet if it's not necessary as it seems like a HUGE change.. and it's also expensive, but i'd like to do anything I can to start feeling better.

Aly1 Contributor
Aly1
Posted

Celiac disease is a manifestation of gluten intolerance where the villi of the small intestine are attacked and a variety of symptoms follow. It is auto-immune in nature. Non-celiac gluten intolerance basically means the bad reaction to gluten effects areas other than the small intestine - and it can really effect any area and cause numerous symptoms from headaches to neurological symptoms to...brain fog and inability to think clearly, lol, which is happening to me right now. Anyway I'm sure others can fill in the blanks. The point is - if your celiac panel comes back negative it means one of two things:1) it was a false negative which is possible or 2) you do not have celiac. There is no way to test for non-celiac gluten intolerance - but it is just as severe and can have a major impact on one's health. So, once you have exhausted all testing - do note, you need to be eating a regular gluten diet in order for celiac tests to show anything - you should try going gluten free for a good stretch of time, at least a month or two. If gluten is a problem for you, you will likely start to feel better quickly.

The symptoms you listed could definitely be gluten-related. I hope they are, so you will be able to start healing ASAP. Good luck.

Aly1 Contributor
Aly1
Posted

Ps. Yes it's hard, but believe me, we wouldn't all be eating that way if it didn't make us feel So Much Better. And that's pretty much priceless!

Aly1 Contributor
Aly1
Posted

And another note - if gluten does Not turn out to be a problem for you - I get deep aching pain in my bones from eating sugar and variety of other things too lengthy to list here. I also got it from gluten. Point is there are many things that we eat that can cause pain and do harm so gluten may not be the end of your need to explore diet as a possible cause. You've found a great resource here on this forum, the people here are so helpful and can offer guidance every step of the way.

BrittLoves2Run Apprentice
BrittLoves2Run
Posted
  • Author

And another note - if gluten does Not turn out to be a problem for you - I get deep aching pain in my bones from eating sugar and variety of other things too lengthy to list here. I also got it from gluten. Point is there are many things that we eat that can cause pain and do harm so gluten may not be the end of your need to explore diet as a possible cause. You've found a great resource here on this forum, the people here are so helpful and can offer guidance every step of the way.

Thanks for your response! I had my doctor appointment this morning. My doctor seemed very apprehensive about testing me for Celiac. He basically said it's a pain in the butt to diagnose. I get that, but I'm sick! and i'm tired of being sick. So I insisted that we do it anyway. He asked me if my family had any problem with Thyroid problems. I never thought about the correlation. Every woman in my family has an underactive thyroid and my mom has a lot of the same gastro problems as I do. So he did the Celiac panel and a thyroid test. I'll see what comes of it.

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    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Thanks for the reply ! I am asking because tomorow i have egd and nobody told me not to eat gluten-free oats… and i was scared that it could ruin my biopsy results… 
    • trents
      Certified gluten free oats

      By trents · Posted

      Yes, I would think that for the 10% of celiacs who can't tolerate oats it would cause villous atrophy just like gluten. No, it would not produce marsh 3b villous atrophy in a couple of days. Nothing will produce measurable villous atrophy that fast. It takes at least two weeks of at least 10g of gluten consumption daily (10g is the amount found in about 4-6 slices of wheat bread) to develop measurable villous atrophy and even then probably not 3b villous atrophy. Are you asking these questions in because you are considering taking on a gluten challenge?
    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Thanks for the awnsers i understand there is maybe system reaction but do they create or cause villious atrophy? And igmf you it them for example a couple of days di they instantly induce marsh 3b?
    • robingfellow
      Can gallbladder issues cause symptoms of celiac disease?

      By robingfellow · Posted

      My gallbladder was at 94% ejection fraction according to my HIDA scan before surgery, when the "normal" range is considered to be between 30-80%, so the surgeon recommended removal because I had been experiencing severe chronic upper quadrant pain and even vomiting despite having a strong stomach. A biopsy after surgery showed intense inflammation suggesting my gallbladder was on the verge of bursting if I hadn't gotten it removed.   The last time my iron and vitamin d levels were checked post-gluten free diet they were in a normal range (I take 60mg iron tablets every other day, and vitamin D capsules daily) I do also take magnesium daily, specifically 400mg magnesium bisglycinate at night to aid my sleep since I try to avoid taking melatonin due to personal preference.   I'll definitely have to keep in mind the point about celiac possibly causing gallbladder problems, I'll probably wait until I can see a proper GI and get their input before I attempt to reintroduce gluten back into my diet that way any reaction I may or may not have can be properly assessed.
    • Mr-Collateral531
      Can gallbladder issues cause symptoms of celiac disease?

      By Mr-Collateral531 · Posted

      I have dealt with gallbladder issues on-and-off for about ten years now. I was diagnosed with biliary dyskinesia in 2016 but chose to keep my gallbladder. Then in July 2022, I was diagnosed with celiac disease. Your surgeon is partially right in that your gallbladder can definitely cause some of those issues. However, the flip side to the coin is celiac can cause issues with your gallbladder. It’s a lesser studied area of disease manifestation, but limited research has shown a correlation between celiac, gallbladder dismotility, and how a gluten-free diet can help increase the gallbladder ejection fraction. Which literally happened in my case. In 2016 my HIDA scan measured my gallbladder ejection fraction as 29%. Then in 2023 after going strict gluten free, my HIDA scan measured it as 100%. It’s not perfect. I get right upper quadrant pain from time to time still. But at least I got that piece of evidence for myself.  I haven’t found any empirical studies on it but I have a theory. The gallbladder stores your bile for digestion. When the food enters your small intestine, the cells of your duodenum secrete cholecystokinin (CCK). CCK is what tells your gallbladder to empty. It’s literally Greek for “bile sac move.” Since the duodenum is a prime location for epithelial cell damage in celiac, it seems very possible that this can alter production of digestive hormones like CCK. As the small intestine begins to heal it produces more CCK and therefore the gallbladder can once again function. If you care to share, why did you need to have yours removed? In regards to the low iron and low vitamin D despite supplementation, that is also common in celiac. I fought vitamin D deficiency for almost a year despite taking 5000 IUs a day. I don’t have anemia, but I know I can use more iron based on my last round of blood work. Best I can say is you need to right cofactors as well. My vitamin D level virtually stayed the same for three different blood tests all 12 weeks apart. One was even after taking the prescription vitamin D of 50,000 IUs once a week. Once again, something not all doctors seem to know, but a nutrient deficiency isn’t necessarily treated by just taking more of that nutrient. Vitamin D metabolism requires many cofactors and processes in the small intestine, liver, and kidneys. And iron metabolism requires many cofactors as well including vitamin D. The biggest thing is to find a supplement regiment that works for you. Do you take specific vitamins or do you take a multivitamin? How much iron is in the supplement you take? What type of iron is it? Do you take magnesium? Another big game changer for me was adding 450mg/day of magnesium supplements for about two months and then dropping to 200mg/day. I would take 250mg of magnesium aspartate at lunch time and then 200mg of magnesium glycinate around 7:00pm. Magnesium is a huge cofactor for both vit D and iron metabolism. And that’s just one. Zinc, copper, vitamin K, boron, vitamin B6, folate, vitamin B12, and vitamin C are all contributing cofactors to vitamin D and iron metabolism. But too much supplementing is also dangerous. I’ve also been through iron overload and zinc toxicity in my post-celiac journey. Once again, doctors just saying to do one thing without considering anything else. I hope this helps and if you have any more questions don’t hesitate to ask.          
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