Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Aches (Thighs And Calves)


birdie22

Recommended Posts

birdie22 Enthusiast

Seeking advice on causes and remedies for aches in my legs. I've bee gluten-free for 3 mos. I'm not diagnosed celiac. I take 500 mg of magnesium with calcium and 1000mg D3 daily. I've always suffered from deep aches in my thighs that I used to be able to correlate to a time in my monthly cycle. Now it seems to happen several times a week. Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up. I don't drink enough fluids but that hasn't changed from before. I had basic electrolyte and metobolic panel done in oct and everything was in normal range.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I usually find that for me it's from a lack of potassium. If you are ok with orange juice, potatoes and bananas those should help. They always make my muscles feel better especially after being glutened.

saintmaybe Collaborator

Seeking advice on causes and remedies for aches in my legs. I've bee gluten-free for 3 mos. I'm not diagnosed celiac. I take 500 mg of magnesium with calcium and 1000mg D3 daily. I've always suffered from deep aches in my thighs that I used to be able to correlate to a time in my monthly cycle. Now it seems to happen several times a week. Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up. I don't drink enough fluids but that hasn't changed from before. I had basic electrolyte and metobolic panel done in oct and everything was in normal range.

Some ideas:

1. Very early rheumatoid arthritis.

2. A groin pull.

3. Trochanteric bursitis- bursitis of the hip.

4. Early osteoarthritis of the hip.

5. Very remote possibility of lyme.

A rheumy would be able to pin it down a little better. It depends on exactly where you feel the pain.

birdie22 Enthusiast

I do eat a lot of potatoes. At least once a week but not bananas. Could easily add those.

As for arthritis would I feel that other than in the joints? The ache is not at the joint specifically. Like when it aches in my calves.

Wanted to add that sometimes it is just one leg that aches (more often just the right). I never ache anywhere else.

AVR1962 Collaborator

If the muscle feels crapped add a potassium supplement, eating abanabs might not be enough. If the muscle feels hard kind of like you have been running, then try adding an Omega 3,6,9 supplement.

love2travel Mentor

I used to get leg cramps, mainly at night, and was told by my chronic pain doc to increase my magnesium to 900-1800 mg. He also recommended using magnesium glycinate as it is said a far higher percentage is absorbed than plain old magnesium. It took about a month at 900 mg before I felt a difference. But if you try this, be sure to increase magnesium gradually to avoid diarrhea.

zimmer Rookie

Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up.

I have similar pain that starts at the hip joint and runs down my leg. Achy. Sometimes tingling. Sometimes extending all the way to my toes. Acetaminophen / ibuprofen helps. It makes sleeping on my side difficult, and one side is worse than the other. It comes and goes, and has improved since going gluten-free. I find taking D3 has helped. Recently I added other vitamins/supplements - fish oil, cod liver oil, potassium, calcium, multivitamin. When I take all of those the pain goes away. Maybe like other posters said it's the potassium that helps? When I skip a day or two of taking the vits/supps then the pain creeps back in.

I'm thinking of seeing a rheumotologist (sp?) but am afraid of not finding one that is educated re celiac. I'm reluctant because I can help the symptoms and it doesn't really interfere with my life. It's mainly a nuisance and a frustration at this point, and I usually grin and bear it. I'm not sure what to do unless/until it gets worse.

I'm sorry you have this problem, but it's nice to know I'm not alone...! :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



smsm Contributor

I have a twin sister - both of us have suffered from back pain for years and just figured it was they way we were. She started getting the hip pain/thigh pain that you are describing and went to an arthritis specialist out of desperation about a year ago. He tested her for arthritis and came up neg. and he just started testing her for everything under the sun to figure out the source of her pain (no one had ever done anything but dismiss our pain before this). Sure enough, celiac was the answer - this is how we found out. After going gluten-free, the pain gradually has disappeared but when I do get glutened, now I also get the thigh pain (it is one of my first symptoms!). While it may be something else, I wanted you to know that thigh/leg/knee/back/neck/muscular pain is my glutened reaction and I have been for many other things. Ibprofen (I don't think I spelled that right) helps a little, but I just have to wait - sometimes up to 4 weeks - for the inflammation to subside.

birdie22 Enthusiast

Thank you all for your continued suggestions. It is helpful. It is so hard to describe the ache. It isn't a cramp or knot or tightness or burning or even pain. Just a dull, persistent ache deep in the thigh. If you asked me to, I couldn't even pinpoint for you exactly where it aches, just that it does, and that more often than not it seems to start at the crease where my leg meets my pelvis. It doesn't hurt up at the hip bone, nor the groin.

I've wondered about restless leg, though it doesn't wake me up at night or keep me from falling asleep.

I've upped my potassium intake this week and will consider if I need to add any other supplements to the mix.

Metoo Enthusiast

Do you think it could be ITB band?

I have ITB band tightness, more so on my right side. If I were to describe the pain it would be a dull achiness that gets worse as the day goes on, or if I am walking or standing a lot all day, but not always. It can ache anywhere from the middle of my thigh, to dull achy knee pain. I have had it extend slightly down below my knee. I can't pin point the pain though, thats why I struggled for a year to figure out what it was until an expert runner suggested it.

If it is ITB if you do the foam roller stretch it will hurt intensly (you lie on your side, parrallel to the ground with the foam roller below your hip joint) while you are on the foam roller.

love2travel Mentor

Do you think it could be ITB band?

I have ITB band tightness, more so on my right side. If I were to describe the pain it would be a dull achiness that gets worse as the day goes on, or if I am walking or standing a lot all day, but not always. It can ache anywhere from the middle of my thigh, to dull achy knee pain. I have had it extend slightly down below my knee. I can't pin point the pain though, thats why I struggled for a year to figure out what it was until an expert runner suggested it.

If it is ITB if you do the foam roller stretch it will hurt intensly (you lie on your side, parrallel to the ground with the foam roller below your hip joint) while you are on the foam roller.

I have IT band syndrome as well and it causes all sorts of problems with my hips and legs regularly. OUCH!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

    3. - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,564
    • Most Online (within 30 mins)
      7,748

    Greg C
    Newest Member
    Greg C
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
    • Wheatwacked
      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.