Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Tests Done

sariesue

By sariesue
in Doctors

Recommended Posts

sariesue Explorer
sariesue
Posted

Here's my story. Last year I was dx'd with a b 12 deficiency and with the GI symptoms that I was having ended up having celiac blood tests done and an endoscopy. Unforunately my GI only took 2 biopsies in my small intestine, the rest were in my stomach and esophagus. All of those tests were negative. My GI told me celiac was impossible because my tests were negative with no family history. However, by then I had noticed that my GI problems were connected with gluten. My allergist at the time tested me for IgE allergies for wheat, barley, and rye. I came back with a weak positive for barley. He told me that if avoiding gluten bothered me to do so. Well I moved and my new allergist thinks that my asthma isn't asthma but a complication from the acid reflux I've never experienced. In two weeks I go back to see him where he wants to put me of a trial of prilosec to see if it helps. However, if I am going to have to add another permenant medication to my list, I want a firm reason to do so. My endoscopy did not show reflux a small patch of minor gastritis in my stomach but that was it. What I want is to be tested again. For both celiac and allergies spesifically IgG allergies. So, I guess my question is do doctors actually exist. I have heard both positive and negative things about that type of test. That some people do react to things but, it tends to have lots of false positives.

I guess I just want to know what tests to ask for.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,508
    • Most Online (within 30 mins)
      7,748
    Ceharrington76
    Newest Member
    Ceharrington76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certified gluten free oats

      By trents · Posted

      Your doctor may or may not be well-informed about the issue you raise so I would not agree that he/she would necessarily be the best person to rely on for a good answer. The question actually raises two issues.  The first issue has to do with cross contamination and individual sensitivity as dublin55 alluded to. Oats and wheat are both cereal grains that are typically grown in the same areas, transported in the same trucks, stored in the same silos and processed on the same equipment. So, there is usually significant CC (Cross Contamination). With gluten free oats, there is some effort to separate these processes that would otherwise cause significant CC and "gluten free" oats should meet the FDA requirement of not exceeding 20 ppm of gluten. But this 22 ppm standard is not strict enough for more sensitive celiacs. "Certified gluten free" oats (and other food products are held to a stricter standard, that being not exceeding 10 ppm. But even that is too much gluten for some super sensitive celiacs and will cause a reaction. The second issue with oats has nothing to do with gluten per se but with the protein found in oats called "avenin". Avenin has a structure similar enough to gluten to cause a reaction in some celiacs. This is called "cross reaction" not to be confused with "cross contamination" discussed in the previous paragraph. So, for whatever reason, whether cross contamination or cross reaction, it is estimated that about 10% of celiacs react to oats.
    • dublin555
      Getting rid of the belly bloat

      By dublin555 · Posted

      Karen, that sounds really tough. You must find both RA management and your new gut problems extremely irritating to handle at once. Together with your pain relief you still experience ongoing bloating complications that drag on without a resolution. Of course visiting a doctor to obtain a proper celiac diagnostic evaluation becomes necessary when no formal diagnosis has been received. Your journey toward recovery has been lengthy yet it brings comfort to notice your progress during this time. This support group offers you valuable help because there are people experiencing the same concerns with you. Working through your issues will be easier.
    • dublin555
      Certified gluten free oats

      By dublin555 · Posted

      Yeah, it’s tricky. I’ve seen a lot of mixed opinions too. Some folks can tolerate certified gluten-free oats without a problem, but others with celiac still react. Honestly, it really depends on your sensitivity. Your doctor would be the best person to ask about your specific situation.
    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Hi guys! Can we eat them an can they cause villious atrophy? I saw multiple articles about it an they have very different opinions… so what did your doctor told you? Thanks!
    • robingfellow
      Can gallbladder issues cause symptoms of celiac disease?

      By robingfellow · Posted

      I can't edit my posts, but I forgot to note as well: I also had low iron and vitamin d according to my blood tests, despite already taking supplements for each
×
×
  • Create New...