Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here With So Many Questions! Skin, Other Allergies...?


Cortney

Recommended Posts

Cortney Newbie

Hey everyone!

I am new to the board and I was just recently diagnosed with a gluten intolerance. My celiac panel came back negative, but I highly suspect I may have it. We did additional blood work to see if I had a delayed allergy to gluten or intolerance. And it came back high. I don't know if I possibly came back negative on the celiac panel because in the week before I had not consumed very much gluten. But I am already on my gluten free diet now. Its been about a week. Along with many stomach issues, my gallbladder acts up and I have had a few attacks which hurt so bad. I also have keratosis pilaris on my arms and legs and stomach. Its pretty severe. I also have OCD. I have had OCD severely my entire life. I also have joint pain in my knees which I assumed was from years of gymnastics, now I am not so sure. I was tested for a milk allergy as well, but it was a blood test for immediate allergy. Which came back negative. We did not do a delayed milk allergy test because there was not one in the labs.

How do you test for a delayed milk allergy or a casein allergy? What is the test that I should ask my doctor for. I also would like to be tested for delayed allergies to soy, eggs, and nuts.

I am so afraid I will have another allergy besides gluten. I hear if you are allergic to gluten you often are allergic to casein. Why is this?

Also, I have read wonderful stories about peoples Keratosis Pilaris (NOT dermatitis herpetiformus) going away after a gluten free diet. Have any of you experienced this?

Could my anxiety and OCD possibly get better on this diet? Anyone feel better afterwards? That would be life changing!

Is it okay to consume products produced in a facility that also produces wheat if the ingredients are clean?

Is it even possible that my celiac panel was a false negative and that I could in fact have celiac. My stomach problems are terrible, my vitamins are low, and my skin, and anxiety to top it all off just add up to me. What do you all think?

I am a vegetarian already, so cutting out gluten has been a challenge. I am afraid that I will also have a casein allergy and have to be a gluten free vegan. At my age, 20, And as a college student living at home, I really can not just take over the house with my groceries. And I really dont want to have to limit my diet any more.

Soo many questions. Can anyone help me out?

I am new to this everyone. Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome to the board.It is best to eliminate both dairy and soy at first until you are well healed. Once you have been feeling better add them back in one at a time and see how you tolerate them.

We do have some here that are vegetarians so you may want to do another topic asking for specific advice from them.

If you can go with a whole food unprocessed diet for a while that is the best way to go. Get fresh veggies and fruits, beans, nuts, rice etc for now. There have been some veggie folks that have found they did need to add meat back in as it is tough to get enough protein especially if it turns out that soy is a no for you.

I think you will find that you will be feeling much better before too long but it does take some getting used to and some of us do go through a bit of withdrawl. Hang in there and ask any questions you need to. Hopefully you will feel much better physically and mentally soon.

Cortney Newbie

Welcome to the board.It is best to eliminate both dairy and soy at first until you are well healed. Once you have been feeling better add them back in one at a time and see how you tolerate them.

We do have some here that are vegetarians so you may want to do another topic asking for specific advice from them.

If you can go with a whole food unprocessed diet for a while that is the best way to go. Get fresh veggies and fruits, beans, nuts, rice etc for now. There have been some veggie folks that have found they did need to add meat back in as it is tough to get enough protein especially if it turns out that soy is a no for you.

I think you will find that you will be feeling much better before too long but it does take some getting used to and some of us do go through a bit of withdrawl. Hang in there and ask any questions you need to. Hopefully you will feel much better physically and mentally soon.

Thank you for your reply! So I should eliminate those foods as well and then when do I know when to reintroduce them. What on earth will I eat? Could I limit my intake of dairy but not fully eliminate it, and then gradually eat more once my digestion improves?

AVR1962 Collaborator

Are you having any burning pain in your stomach? What happens is the gluten wrecks the villa in the intestines and they no longer absorb nutrients to the body like they should. But in the process of the wreck other digestive mechanisms also stop working properly so it is very common for new patients with celiac/gluten intolerance not be able to eat dairy. It could be the caisens (Protein) or it could be the sugar in the dairy products causing the problem, depends on the person. Many gastro docs will have a prson go off both initially until the body can repair itself.

Being vegetarian you probably already know the importance of protein in your diet. Now though is a time that the healing agents in protein are important. If your stomach is in bad shape proteins (meats) become hard to digest but very important to get it in the diet in same form to continue to promote the healing factors.

Raw diet and a food journal. You may find that other foods are giving you issues. They may not always but while the system is in the healing process we become sensative to foods that we were able to eat before. Common intolerances are soy, high fructose, gums such as xanthan and carrageenan, corn for some, eggs for others. We are all uniquely different. But a jouranl will help you pinpoint these problem foods.

Request your lab work and get your vits figured out. For me that was a big big help.

Cortney Newbie

Are you having any burning pain in your stomach? What happens is the gluten wrecks the villa in the intestines and they no longer absorb nutrients to the body like they should. But in the process of the wreck other digestive mechanisms also stop working properly so it is very common for new patients with celiac/gluten intolerance not be able to eat dairy. It could be the caisens (Protein) or it could be the sugar in the dairy products causing the problem, depends on the person. Many gastro docs will have a prson go off both initially until the body can repair itself.

Being vegetarian you probably already know the importance of protein in your diet. Now though is a time that the healing agents in protein are important. If your stomach is in bad shape proteins (meats) become hard to digest but very important to get it in the diet in same form to continue to promote the healing factors.

Raw diet and a food journal. You may find that other foods are giving you issues. They may not always but while the system is in the healing process we become sensative to foods that we were able to eat before. Common intolerances are soy, high fructose, gums such as xanthan and carrageenan, corn for some, eggs for others. We are all uniquely different. But a jouranl will help you pinpoint these problem foods.

Request your lab work and get your vits figured out. For me that was a big big help.

Hey! So I do notice that when I eat eggs I get very sick to my stomach. And I have been gluten free for a week now but my digestive issues persist. I dont want to give Too much information, but I am still having diarrhea and I notices that it was worse this morning after I had my protein shake. It is made from whey, so obviously dairy. I have been a vegetarian for years, and when one is vegetarian for a long time, they can not just introduce meat back into their diet or they get very ill. Thats not something I need right now lol. Besides, I won't eat meat. There are proteins in vegetables, are those proteins not able to heal me? I read something about amino acids helping, I could always take that in tablet form. What do you think? And how long should I be on this raw diet before I try to introduce dairy back into the picture? And gluten is always a no no for life correct? Since I have an allergy to it according to my blood work? Once my body heals, I still shouldnt ingest gluten right?

ravenwoodglass Mentor

Hey! So I do notice that when I eat eggs I get very sick to my stomach. And I have been gluten free for a week now but my digestive issues persist. I dont want to give Too much information, but I am still having diarrhea and I notices that it was worse this morning after I had my protein shake. It is made from whey, so obviously dairy. I have been a vegetarian for years, and when one is vegetarian for a long time, they can not just introduce meat back into their diet or they get very ill. Thats not something I need right now lol. Besides, I won't eat meat. There are proteins in vegetables, are those proteins not able to heal me? I read something about amino acids helping, I could always take that in tablet form. What do you think? And how long should I be on this raw diet before I try to introduce dairy back into the picture? And gluten is always a no no for life correct? Since I have an allergy to it according to my blood work? Once my body heals, I still shouldnt ingest gluten right?

If your not tolerating the whey protein perhaps you could try hemp protein instead? Instead of mixing it with milk Almond milk would be another alternative or mix it with rice milk, just not Rice Dream as that isn't safe for us as it is processed with barley.

Try to make sure you are getting a complete protein, like rice and beans for example.

You can give the raw foods a try but some of us need to have our veggies well cooked at first to digest them the best.

Cortney Newbie

If your not tolerating the whey protein perhaps you could try hemp protein instead? Instead of mixing it with milk Almond milk would be another alternative or mix it with rice milk, just not Rice Dream as that isn't safe for us as it is processed with barley.

Try to make sure you are getting a complete protein, like rice and beans for example.

You can give the raw foods a try but some of us need to have our veggies well cooked at first to digest them the best.

Do you think it is safe to try the gluten free diet alone and still eat dairy? I just ordered some vegan hemp protein powder. And I use almond milk as it it. But I just read it can take months to see any improvement in the way you feel with a gluten intolerance after you eliminate it. So do you think it would be safe for me to continue dairy just in limited amounts. I have no idea how to get tested for delayed dairy/casein allergy, and apparently neither do my doctors. They keep ordering an immediate milk allergy test. That isnt the same right?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Hey! So I do notice that when I eat eggs I get very sick to my stomach. And I have been gluten free for a week now but my digestive issues persist. I dont want to give Too much information, but I am still having diarrhea and I notices that it was worse this morning after I had my protein shake. It is made from whey, so obviously dairy. I have been a vegetarian for years, and when one is vegetarian for a long time, they can not just introduce meat back into their diet or they get very ill. Thats not something I need right now lol. Besides, I won't eat meat. There are proteins in vegetables, are those proteins not able to heal me? I read something about amino acids helping, I could always take that in tablet form. What do you think? And how long should I be on this raw diet before I try to introduce dairy back into the picture? And gluten is always a no no for life correct? Since I have an allergy to it according to my blood work? Once my body heals, I still shouldnt ingest gluten right?

Whey is a cheese protein and it is possible your system cannot tolerate it right now. Give it at least 2 months without dairy to allow healing. Depends on the person but it could take longer. When you introdue again, go small. If you try alternative milk sources also be very careful.....sometimes when our system is healing it is hard to tolerate the carageenan and/or xanthan gum that are in some of the almond and coconut milk. That's where a food journal helps. I could not eat either for about 8 months. Only milk I could drink was rice.

Here is a link, skip the ads, I am not promoting. The info might be a bit promotional but the basics tell the importance that protein plays. Since you have been a vegetarian for awhile I am assuming you have a good knowledge of some of this already, and yes, amino acids can help. Open Original Shared Link

Stay away from all gluten.....that means barley and rye as well as oats that are not gluten-free. One thing you might notice is that you may not be able to eat oats without them going right thru you. Again, the body cannot digest the oats properly when your system is wrecked. I have heard it taking 2 years to get to the point of being able to eat oats again but I think that is different from one person to the next.

I was on a raw diet well over 5 months. My stomach was so acidic but this might not be your situation. I think you will know as you will start feeling better. One more tip, stay away from the gluten-free baked goods for now. They have additives the body sometimes has a ahard time with in the beginning. I know that sounds like alot but your goal here is to get better and that system needs repair. I kind of had to think of my stomach being that of a baby's stomach. We are real careful what we feed babies and that is how we have to be with ourselves, at least to start.

Cortney Newbie

Whey is a cheese protein and it is possible your system cannot tolerate it right now. Give it at least 2 months without dairy to allow healing. Depends on the person but it could take longer. When you introdue again, go small. If you try alternative milk sources also be very careful.....sometimes when our system is healing it is hard to tolerate the carageenan and/or xanthan gum that are in some of the almond and coconut milk. That's where a food journal helps. I could not eat either for about 8 months. Only milk I could drink was rice.

Here is a link, skip the ads, I am not promoting. The info might be a bit promotional but the basics tell the importance that protein plays. Since you have been a vegetarian for awhile I am assuming you have a good knowledge of some of this already, and yes, amino acids can help. Open Original Shared Link

Stay away from all gluten.....that means barley and rye as well as oats that are not gluten-free. One thing you might notice is that you may not be able to eat oats without them going right thru you. Again, the body cannot digest the oats properly when your system is wrecked. I have heard it taking 2 years to get to the point of being able to eat oats again but I think that is different from one person to the next.

I was on a raw diet well over 5 months. My stomach was so acidic but this might not be your situation. I think you will know as you will start feeling better. One more tip, stay away from the gluten-free baked goods for now. They have additives the body sometimes has a ahard time with in the beginning. I know that sounds like alot but your goal here is to get better and that system needs repair. I kind of had to think of my stomach being that of a baby's stomach. We are real careful what we feed babies and that is how we have to be with ourselves, at least to start.

What do you suggest as far as items that are not certified gluten free but the ingredients are gluten free? And what do you suggest about items that are processed in the same facility as gluten containing products, but the area is cleaned before. Do you think that is okay?

AVR1962 Collaborator

What do you suggest as far as items that are not certified gluten free but the ingredients are gluten free? And what do you suggest about items that are processed in the same facility as gluten containing products, but the area is cleaned before. Do you think that is okay?

You will see this indicated on packaging, that they have been manufactured in a facility contianing gluten. I have tried 2 differnt products and both made me sick so I do not suggest it. Oats some rice based cereals are a perfect example of items that are considered gluten free but unless they are certified gluten-free I do not eat them, too much chance of CC in the factory.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,430
    • Most Online (within 30 mins)
      7,748

    Court23
    Newest Member
    Court23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Patty harrigan
      Absolutely disheartening. I always go for a certified product. Wondering if it’s worth the extra money and extremely disappointed in the organization for letting this happen.
    • Mnofsinger
      There was an old thread from 2011 that I came across but has been archived and I could not reply to it. I would like to reopen this discussion but really dive into a potential connection for a early "warning sign" for undiagnosed celiac people. Let me give some back story. I was diagnosed with Celiac disease in June of 2023. How long I had it before? I can't say for certain, because my wife and I had been on and off keto diets, which naturally I would cut out gluten containing food. However, there was an instance I went into the ER about 4 years ago for potential appendicitis, but that was ruled out as "nothing". Looking back it would be the pains in the abdomen from being "glutened".  Prior to being diagnosed I would always say our food needed less salt because it tasted to salty. My wife would always point out, "No, it could use more". Most people around me would say it's not too salty, and I would chalk it up to having a sensitivity to salty foods. I did not make this correlation until after my bloodwork had came back to normal range after eating a gluten free diet. In the span of four months I brought my tissue transglutaminase IgA results from a 45 down to a 4. After that, I did not go out of my way to focus on was my food "too salty" or not, I just never really mentioned that the food I was eating was too salty. In fact, I would find myself adding salt to foods. It wasn't until I had been glutened about 13 months into my gluten free diet, that the few days afterward I made a comment "This is too salty". As soon as those words left my mouth, I was like "Wait a second!", and said to my wife "what if all this time I thought the food was too salty was because of eating gluten?". Now, I know everyone's body reacts differently to to celiac disease whether someone is asymptomatic or if they have symptoms what symptoms do they have. I'm not saying I'm right, but I would be curious to know other's experiences and ways we could help other undiagnosed people get the proper medical treatment they need, by common early warning signs. So, on this old thread:   Some people explained the change was after, but I would be curious to know your experience! 1. My question(s) to the ones that experienced this after a gluten free diet, was it because you other more serious symptoms were occupying your mind while eating gluten that you never really noticed the "too salty" experience? 2. Is it possible that you had been accidentally glutened during your gluten free transition that spiked this reaction?       (Some context to this one: The reason I was able to get my numbers down so low in the 4 months after being diagnosed, was I went "over the top", We stopped going out to eat, we through out all our food, we threw out ALL of our cookwear/utensils/glasses/plates/cutting boards and I do mean EVERYTHING, and started with new, because I didn't want to be hindered by "hidden gluten". My wife tells me I have the tendency to go to the extremes 😄 ) Hope everyone finds this topic interesting and fun at the same time. So please, tell me your experience on this subject!
    • Scott Adams
      Since your symptoms are so severe and obvious, I can't really think of a compelling reason to get the confirmation, especially when weighed against some of the downsides of having an official diagnosis that are mentioned in the thread I shared. For people in the UK and other countries where their health care system offers food subsidies for those with celiac disease it does make sense--and most of those counties also have universal healthcare where the diagnosis would not be a factor.
    • Jula
      Hi Scott, Thanks for the great information. The "negotiation" is my euphemism for the discussion with the nurse at my doc's clinic and eventually, the doctor. It took place because they said I would have to be on gluten again for 6 weeks prior to the upper endoscopy/biopsy. As I stated previously, I am highly reactive to tiny amounts of gluten and the impact lasts for weeks and can be debilitating. The first time I had COVID I thought I had been contaminated at a friend's house because I had all those symptoms (extreme joint pain, muscle pain, exhaustion/fatigue, coughing, worsening asthma attacks, more) but no fever. It turned out to be COVID and the fever came a day after the initial group of symptoms. Granted, not all contaminations are the same in the intensity of their impact, but to have gluten every day for 6 weeks --- I know I could not handle it and as I'm self-employed I could not afford to work minimally for much of that time. Hence, the discussion/negotiation/whatever you want to call it. They asked me how long I thought I could tolerate it, I said maybe a week. Then I was contaminated at a restaurant and was reminded of the impact for the following 2.5 weeks and I started getting anxious about doing this to myself for such a long time, wondering how long it would last and worrying that the dermatitis herpetiformas would come back which took more than a year of excruciating itching to clear up completely. So, that's the back story. Neither the doc or the nurse mentioned 2 weeks, but it doesn't matter at this point. I don't think its worth it even for the one week, especially if as you say they may not be able to gather any information from that, although I don't know how that would be true being that my immune system knows with less than a crumb and gets busy attacking my small bowel. I can't imagine that wouldn't show up in there, but I guess that could be the case, so again, not worth starting the new year feeling like crap and unable to get the money I need to pay my bills/survive in the bigger picture. The blood work that was used for my initial diagnosis was done after I had been eating gluten my entire life, so well beyond the gluten challenge. Thank you, though, for taking the time to share the resources and your perspective!
    • Scott Adams
      New research: Glyphosate exposure exacerbates neuroinflammation and Alzheimer’s disease-like pathology despite a 6-month recovery period in mice https://jneuroinflammation.biomedcentral.com/articles/10.1186/s12974-024-03290-6 
×
×
  • Create New...