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- Rogol72 replied to sillyyak52's topic in Coping with Celiac Disease7Family education
Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make... -
- Helen Vajk commented on Scott Adams's article in Product Labeling Regulations1FDA's Inaction on Gluten Labeling Fails to Protect Celiac Patients (+Video)
Amen. Even worse than the food labeling is the near-complete absence of medication labeling.- fda
- fda regulations
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- peg replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease25Supplements for those Diagnosed with Celiac Disease
Thank you, Scott! This is just what I needed. Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg -
- Hopeful1950 replied to Itchyperson's topic in Dermatitis Herpetiformis29Cycle of dermatitis herpetiformis
Oh yes. I would never recommend taking it for an extended period of time. When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after... -
- Scott Adams replied to Soleihey's topic in Related Issues & Disorders5Gluten Ataxia and Malabsorption
The link is in my signature block, but is:
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Thank you, Scott! This is just what I needed. Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg -
By Hopeful1950 · Posted
Oh yes. I would never recommend taking it for an extended period of time. When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him. I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago). So the fact that it cleared the rash was diagnostic for me. -
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Hi Scott, You mentioned in your response that you have been taking supplements long term. What brand(s) do you take? I ask because I've had a very difficult time finding truly gluten free supplements that have not made me sick over time from allowable trace amounts of gluten within the FDA's acceptable limits. Thank you, Peg
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By Scott Adams · Posted
Keep in mind that Dapsone can have some serious side effects, so be sure to look into those before you start using it. More about that is here: https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/description/drg-20063327
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