Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fructose Malabsorbtion?


kevinmiller

Recommended Posts

kevinmiller Newbie

Hello everyone, My name is Kevin and I'm 21 and I was diagnosed with Celiac sprue last spring. I thought I was lactose intolerant (Now I think it's something else because Lactaid products make me gassy too... casein?) so I started to avoid dairy products, but I was still having weird stomach/bowel problems. I had a stomach biopsy and I was confirmed for Celiac sprue. I have only been making a serious effort to avoid gluten over the past 6 or so months, mainly because I didn't know how to go about avoiding dairy and gluten. I am not very good at cooking and I live with the messiest college-age guys, so our kitchen is disgusting and they won't clean it so I never ever want to cook in it. So I a very limited diet right now. I basically eat the following

Ener G White Rice Loaf bread

Whole Food's Gluten-Free Dairy-Free bread

JIF extra crunchy peanut butter

Smuckers grape/strawberry jelly

Whole Soy and Co. soy yogurts

Bio-naturae gluten-free pastas

Pasta sauce (I used to eat Organicville but Whole Foods is really far away and I heard that Ragu is gluten-free so now I use that)

Chex

Silk

Eggs (made on skillet using Pam)

Bananas

so for a while I was eating these foods and feeling good. I wasn't having stomach pain or gas, and my stool was solid. but over the past week I have been having really bad bloating and gas every day! It's really embarrassing and it smells disgusting, and it makes me not want to hang out with people. it's been causing me a lot of mental strain. and last night I was having a reaction where (sorry to be disgusting) my stool is kind of an orange color and it seems kind of oily and paste-like and I feel like I need to keep pooping even though I cant. I normally associate this with eating gluten, but I can't think of how my diet had changed or how this could happen!

so I was thinking that maybe I also have trouble absorbing fructose because I eat PB&J (jelly had high fructose corn syrup), bananas, and fruit flavored yogurts. and I read that fructose malabsorbtion makes those who suffer from it bloated and gassy. Also, my gastroentrailologist initially thought I had fructose malabsorbtion when I saw her (not sure if that is relevant because I definitely don't think I had it at the time). I'm going to visit her again as soon as possible, but I was wondering if anyone could shed some light on my problem? or give me advice in general? I would really appreciate it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Um...it's probably most definitely the soy and Silk products. Many celiacs cannot tolerate soy, and your symptoms match mine when I eat it. Otherwise, your diet sounds fine.

Adalaide Mentor

Out of curiosity, do you have your peanut butter and jelly locked up where only you can get them? If you're living with a bunch of college slobs who are averse to kitchen cleanliness I wouldn't put it past them to be using one or both. All it takes is putting knife to bread and back in the jar and next thing you know you're locking the bathroom door and praying you have enough reading material. The idea of CC from that never occurred to me until the first time I wanted butter. Popped open the container and it was littered with bread crumbs.

I've never had an issue with the symptoms you describe but then again just the smell of soy milk is enough to have me praying to the porcelain gods. So I can't really speak for any sort of reaction I'd be familiar with from soy, but if you say that it's a usual reaction from gluten you may want to make sure you don't have any roomies double dipping in your PB&J.

And just as a side note, Classico pasta sauce is about a million times tastier than Ragu (which I wouldn't eat with a gun to my head) and isn't much more expensive at most stores. Also, I don't know if you're referring to brand name Pam or some random off brand, but I found a few cans that say they "may" contain "some" wheat. Just one more entirely stupid thing that doesn't make sense to have to check on.

Skylark Collaborator

I don't understand how you could have fructose malabsorption, be doing OK, and then have a flare-up on the same foods? Also fructose malabsorption causes diarrhea, not oily stools. I bet you got into some gluten somehow.

By the way, have you considered eating those funny green things called vegetables? :P You can make dairy-free dip with plain soy yogurt and McCormick Ranch Dip Mix (check the label - it was gluten-free last time I got it) and have some raw veggies like carrots, celery, cauliflower and sugar snap peas if the kitchen is too nasty to cook. Vegetables are great for you and they are naturally gluten-free. There are also frozen vegetables in steamer bags you can put directly into the microwave.

Sharlie2455 Newbie

Diet is fine? :S Where is all the healthy food? Did you just not mention that you eat fruit and vegetables because they are gluten free? If all you eat is pasta and pb jelly sandwiches no wonder you are sick and your poop is weird, you need fiber and vitamins and some substance in your food! Too much carbs and sugar. Also, sugar is a poison and fructose is the worst thing for you. Check this->

(it's long but really GOOD)

Try making a salad or a stir fry, just as much work as pb and jelly or pasta. You can buy vegetables pre cut up an then all you have to do is throw them together. And YES I agree with the cross contamination thing!! Make sure your roommates can't get into your stuff.

IrishHeart Veteran

My bet is rampant cross- contamination (CC) with gluten eaters.

I noticed you wrote you only started "taking it seriously" 6 months ago--which means you still consumed gluten for many months after a Celiac DX. Not wise, kiddo.

You need some veggies in your diet and you really need to avoid CC.

Hopefully, you have your own containers of foods, spreads, cutting boards, colanders, etc.?

Time to read up on some healthier ways to eat gluten-free. Take some PROBIOTICS for your gut (go buy yourself some Culturelle (dairy free) at Walmart's or the nearest pharmacy and see if that helps with the bowel issues. Take 1 first thing in the AM with a huge glass of water.It usually does the trick. :)

Drink water and avoid soft drinks with HFCS (hgh fructose corn syrup).

Best wishes!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,445
    • Most Online (within 30 mins)
      7,748

    Bonnie Robinson
    Newest Member
    Bonnie Robinson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • akacase
      Hi Folks, Type 1 diabetic here; I got diagnosed almost 8 years ago and have been pretty strict gluten-free since, but since reviewing labs from that time. In the last few years, my doctor said the test wasn't conclusive (blood test) as my tTG-IgA was 4 (reference range 4-10 is a weak positive from our lab); all other values were normal. I had no symptoms and still don't. If I accidentally eat something with gluten, all celiac panels yearly show up as unfavorable (eating gluten-free). I have the gene for celiac, and my mother and grandmother both have the disease. I had an endoscopy that was for a gallbladder-related issue (which ended in a cholecystectomy), and that was over two years ago. The Dr. had me do a gluten challenge for only a week to state that he didn't believe I was celiac, which I didn't think, so I continued with gluten-free, but my GP would like a conclusive diagnosis, which I'm OK with, but I'd like some advice on how long to eat gluten for? How much? Is sourdough and naturally leavened bread OK? Below is the original comment from my biopsy, which was a 7-day challenge, where I ate at least two pieces of toast every morning for breakfast, sometimes a bit more throughout the day:   After that test, it did indeed turn out that I had a massive H. Pylori infection, as well as a shot gallbladder, which could corroborate the findings. I guess I'm asking how I should proceed with this challenge. I'd like to know for sure. My other siblings do not have celiac, but they also are Type 1 (yay). It's not like I want to go out and feast on gluten; I'm over it, but it would be nice not to worry about eating out. If I do the test, there's a wonderful local bakery that makes naturally-leavened bread, which I'd like to eat mostly, but I'm scared of a negative screen because of sourdough. Is around three weeks fine? My new endoscopy is on January 2nd. Thanks for reading!
    • Jane Donnelly
      My mother married a bread maker when I was 4 years old. Within a year, I started experiencing full-blown migraine headaches. I would lose my eyesight, vomit, and be nauseous for days, needing to be shut in my room in complete darkness. I was so sick. At 17, during my first year in college on a swimming scholarship, I developed Meniere's disease. Despite the challenges, including swimming on Valium, I became an All-American in swimming, even as I suffered hearing loss and dizzy spells throughout my college years. Diagnosing my condition was a struggle; I was allergic to everything—soy, yeast, wheat, and dairy. My life became a mess, with multiple surgeries on my ears, knees (from soccer), and nose due to Celiac disease. I eventually became allergic to NSAIDs and Aspirin, suspecting that my body was overreacting to other allergens because I didn't know I had Celiac. My mother rarely took me to the doctor, preferring to save money for her "family cabin." During all this time, I was being sexually abused by a family friend while my mother pursued her master's in social work. When we discovered I had Celiac, my mother and stepfather were inconvenienced by my need for a special diet, particularly on Thanksgiving. My mother openly complained, asking if I was going to ruin Thanksgiving Dinner. They didn't change anything for me until my little cousin was diagnosed with Celiac and they finally bought gluten-free flour. Now, with both my biological parents deceased, my brother inherited the family house instead of us sharing it, as my mother had promised. I loved that house and had helped build the heirloom garden, which my brother has since destroyed. He threw away our mother's and grandmother's heirloom jewelry, not knowing where they were hidden. I was devastated when my house burned down. My brother acts like everything is his and even changed the locks, barring me access to things he doesn't care about, like all the books. My stepfather ignored my health issues, and my mother prioritized saving money for her "family cabin." With her Alzheimer's diagnosis, my stepfather anticipated I'd also develop the disease and dismissed my health concerns. After my mother's death, all the money went to the upkeep of her dream cabin, leaving me without support. Despite my contributions and sacrifices, I received nothing while my brother inherited a $1.7 million home. I'm now living with my ex-husband because my stepfather changed the will. I need legal advice but have no money or support. I hope someone reading this can help. I've lost hearing in my right ear and suffer from multiple health issues, all stemming from my undiagnosed Celiac disease and the neglect I faced. I just want what is fair. Thank you, Jane Donnelly  PS I apologize for the rough draft
    • RMJ
      Vitamin K is also thought to help bone health, although not all scientific studies agree. 
    • trents
      @marion wheaton, are you on vitamin and mineral supplements that are appropriate for bone health in order to offset the malabsorption problem until your gut heals thoroughly? I'm talking about supplements more potent than an adult multivitamin. We routinely recommend to newly diagnosed celiacs to be taking a high potency B-complex, 5-10k of D3, Magnesium glycinate or Magnesium citrate, and zinc picolinate. All supplements need to be gluten free of course.
    • RMJ
      I’ve been taking oral alendronate for 4 years.  I haven’t had any doctors be concerned about it.  My dentist recommended against the related iv medications because of potential adverse effects on the bones in the jaw - osteonecrosis.  Supposedly rare side effect but he had seen it several times. I originally had the same concern as @trents - slowing resorption instead of building new bone.  I learned that that was a problem with the original bisphosphonates but not so much with alendronate and other newer ones.
×
×
  • Create New...