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Hello, New Here, Awaiting Tests

LeighsaH

Recommended Posts

LeighsaH Newbie
LeighsaH
Posted
:) Hi! I am new here today. I have been sent for tests by my doctor today and I hope to have the results in the next 3 weeks. I am a bit nervous reading all the things that celiac disease can cause, since I seem to have most of the symptoms, and it's all abit scary right now, but I think this site might prove very supportive and helpful. Is there anyone else in here from the UK?
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Canadian Karen Community Regular
Canadian Karen
Posted

Hi! Welcome to the board!!! :)

Actually, we do have some people from the UK on the board here. I am sure they will be chiming in shortly!

Any questions you have, just fire away! There's a bunch of really great, helpful and knowledgeable people on this board!

Karen

nettiebeads Apprentice
nettiebeads
Posted
:) Hi! I am new here today. I have been sent for tests by my doctor today and I hope to have the results in the next 3 weeks. I am a bit nervous reading all the things that celiac disease can cause, since I seem to have most of the symptoms, and it's all abit scary right now, but I think this site might prove very supportive and helpful. Is there anyone else in here from the UK?

<{POST_SNAPBACK}>

Welcome to the board! When you read the other posts you will realize that no question is silly, stupid, or off limits. We will discuss anything - diarhhea, gas, bloating, cycles, excersize, makeup dating, foods, doctors, you name it. A lot of people are very knowledgable (if you every read any posts by celiac3270, you will want to ask him if he's sure he's only 14) and every one is helpful. The gluten-free diet isn't impossible, just takes effort and after awhile it will be second nature you won't even think about it.

lbsteenwyk Explorer
lbsteenwyk
Posted

Welcome to the board! YOu will find tons of great information here. Let us know how we can help :D

Mjohnson73 Apprentice
Mjohnson73
Posted

Welcome to the board!

I am still a "newbie" myself... I am still learning what is and isn't gluten-free..... I have been on the gluten-free diet for almost a month now and I have seen great improvements....still have some cross contamination stuff going on and still getting effects every so often but not nearly as bad as before!

but welcome to the board and I second the comment about celiac3270, he certainly does not seem to be only 14! he is incredibly knowledgeable.... as is everyone on this board! and very welcoming!!!

Again Welcome!

--Maya

jknnej Collaborator
jknnej
Posted

Welcome to the board! Take it one day at a time and try not to feel too overwhelmed. I've been gluten-free for 9 months (holy cow) and I'm still learning what I can and can't eat all of the time! You'll get used to it and this board is a HUGE resource; a real God send.

celiac3270 and Kaiti are huge experts and two of the nicest people here! (No offense to anyone else of course!!!)

  • 1 month later...
LeighsaH Newbie
LeighsaH
Posted
  • Author

Ok, it's been a while, but I was awaiting results. Now I have them and I DON'T have Celiacs, but they still don't know what's wrong. So, since I don't have it, I probably won't be around much, but thanks for being there. ;) Take care, all of you.

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floridanative Community Regular
floridanative
Posted

Please consider that some people don't have positive biopsy results, yet they still can't eat gluten. They are what is called 'gluten intolerant'. My GI told me this week that if someone is intolerant and continues to eat gluten, they will eventually get Celiac disease. So you may want to talk to your doctor about trying the diet to see if you get better. If you do, you'll have your answer as to what is wrong with you. Good luck getting better!

Tiffany M.

angelsea Newbie
angelsea
Posted
Ok, it's been a while, but I was awaiting results. Now I have them and I DON'T have Celiacs, but they still don't know what's wrong. So, since I don't have it, I probably won't be around much, but thanks for being there.  ;)  Take care, all of you.

<{POST_SNAPBACK}>

Yes, please consider what "floridanative" just said. I believe you said you are in the UK -- I wonder if you might have access to the book "Dangerous Grains" by James Braly. I got a copy from my library yesterday and am only about halfway through and am convinced that many, if not most of us, celiac or not, symptomatic or not, can benefit from a gluten-free diet (not that this is any indication that it would be an easy task!). I'm just realizing how naive I was to think that celiac disease was the only reason one might want to avoid gluten.

Good luck in your search for finding the solution to what ails you.

Guest BellyTimber
Guest BellyTimber
Posted

I'm from UK & only just seen your post, hope you haven't gone too far from forum yet!

There is also a message board based in the UK where everyone is welcome for any kind of wheat and gluten sensitivity/intolerance and interest in the gluten-free and/or WF life style for whatever sincere reason, and I think that is true of this forum too.

celiac disease is a construct and there has been emphasis on a certain pattern of phenomena whereas the reality is a variety of expressions throughout the body.

It's estimated 1 person in 80 in the UK has celiac disease but only between one in 4 and 1 in 10 is getting a diagnosis (depending on which book one reads), basically the vast majority are undiagnosed, from not testing, from misreading tests and from not carrying them out skilfully enough.

I didn't have all the right tests and was told to go gluten-free without having the endoscopy and apparently this is rather usual.

The professionals have vast experience of celiac disease and equivalent conditions - without knowing it.

Hence many of them are put off from adequately continuing examinations/management of the patient's condition.

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
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      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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