Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alcohol...why The Issue Now?


lucky97

Recommended Posts

Aly1 Contributor

Yes, what ravenwoodglass just said! I did not touch any alcohol for over 3 years because I found it made me so ill and I would have 3 day hangovers from just a few drinks, even if I had it on a full stomach. After going gluten-free I read about gluten and grains and alcohol, and wondered if that had been the problem - it was! I am totally fine wih potato vodka.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UKGail Rookie

Fascinating discussion here, and the article posted by AVR was very interesting too.

A friend of mine is a leading liver doctor, who specialises in alcoholic liver disease. He insists that individuals have varying degrees of susceptibility to alcoholic liver disease. He has patients in end-stage disease who have consumed the same amount of alcohol as their peer group over a period of time, but are dying whereas their peers are (currently) fine.

It seems like common sense to me that it is probably better to avoid alchohol while healing from celiac disease, taking it up again in moderation as and when your body can tolerate it.

I figured out in my twenties that I didn't tolerate alcholol well after first falling ill with "post-viral fatigue syndrome", and that beer in particular made me really sick. I stuck to wine in moderate doses instead. The intolerance worsened slowly over the years, to the point where I could not drink it at all, and still can't even after 5 months of gluten free. I still live in hope of the occasional glass of wine though! I do test it out now and again, and always regret it afterwards, unless it is just half a glass or so, and very rarely at that.

Gemini Experienced

Sorry, I get fed up by the American puritanism that often condemns one or two drinks a week. Doctors are infected by it as readily and irrationally as anyone else. Sometimes they lose perspective that restricting something like alcohol 100% can create stress that is even worse for healing than the occasional drink was. We already have stressful diets!

The devastating effects of alcoholism, or even of having two or three drinks rather than one on sensitive stomachs are pretty well known. I doubt we're talking about that much alcohol though.

I don't know what made Lucky97's doctor nervous, but Aly1's doctor just sounds inflexible.

I have to agree with your line of thought, Skylark. It's another area where doctors go overboard. I do think if you are still healing, then maybe alcohol should be avoided. I did not drink at all for most of my adult life because I was a mess from undiagnosed Celiac and it ripped up my gut. However, I have healed really well and have a new found love for red wine. I have a glass every day and my gut feels great. If you make sure you have food with alcohol, it shouldn't be a problem. I never drink on an empty stomach. My doctor, on one of the rare occasions when I went to her, did not like the fact that I have a drink everyday. Tough tooties! It does wonder for the stress of everyday life and there is enough of that going around. Europeans drink a lot more wine than Americans do and they always seem more relaxed than we are. ;)

ravenwoodglass Mentor

I have to agree with your line of thought, Skylark. It's another area where doctors go overboard. I do think if you are still healing, then maybe alcohol should be avoided. I did not drink at all for most of my adult life because I was a mess from undiagnosed Celiac and it ripped up my gut. However, I have healed really well and have a new found love for red wine. I have a glass every day and my gut feels great. If you make sure you have food with alcohol, it shouldn't be a problem. I never drink on an empty stomach. My doctor, on one of the rare occasions when I went to her, did not like the fact that I have a drink everyday. Tough tooties! It does wonder for the stress of everyday life and there is enough of that going around. Europeans drink a lot more wine than Americans do and they always seem more relaxed than we are. ;)

I think a lot of doctors attitudes to people having one drink a day is because so many of them think that we are 'underestimating' how much we drink. Many doctors think if someone says they have one drink a day that they actually mean a whole bottle. One glass of wine a day or one alcohol beverage a day is fine, IMHO as long as someone is well healed and doesn't have any liver issues. If more doctors listened to us and didn't assume that we under or over exagerte (sp) our symptoms and our habits a lot of us would have been diagnosed a heck of a lot sooner. My doctors always assumed my liver panels were off because I drank and was lieing about it. I wasn't, I rarely drank and those panels were off because of my undiagnosed celiac.

Gemini Experienced

I think a lot of doctors attitudes to people having one drink a day is because so many of them think that we are 'underestimating' how much we drink. Many doctors think if someone says they have one drink a day that they actually mean a whole bottle. One glass of wine a day or one alcohol beverage a day is fine, IMHO as long as someone is well healed and doesn't have any liver issues. If more doctors listened to us and didn't assume that we under or over exagerte (sp) our symptoms and our habits a lot of us would have been diagnosed a heck of a lot sooner. My doctors always assumed my liver panels were off because I drank and was lieing about it. I wasn't, I rarely drank and those panels were off because of my undiagnosed celiac.

You know, Raven....I had elevated liver enzymes when I wasn't drinking at all and it was the same as you...undiagnosed celiac disease. Now that I am healed and drinking wine everyday, my liver panels are great! :P

lucky97 Explorer

Are you drinking hard ciders that are specifically labeled gluten free? Maybe that could be the problem.

I love drinking hard cider, as I miss beer very much...along with crunchy food (which I am finding more of though).

Aly1 - If you were drinking vodka. I know I never never get D, even pre-gluten free. I had my first vodka since being gluten free within 2 hours I spent the rest of the day in the bathroom with D. I know everything affects everyone different, but I used to drink vodka a lot, I was kind of shocked by that reaction. I definitly think some brands no matter how they are distilled must still have gluten. I emailed the company too, they claim all their flavors are gluten free because of the distilling process.

No, I only drank gluten free hard ciders...Strongbow, Woodchuck (yuk), Magners if it was available and it rarely was. None of the "amber ciders."

GFinDC Veteran

Link to an article posted by Scott. I posted just a snippet of the article. Something to think about I figure.

celiac com thread:

Why Liver Problems Require a Look at Celiac Disease - LiverSupport.com

Liver Support com article:

Open Original Shared Link

February 9th, 2012

Due to an apparent link between the two ailments, those with liver disease are advised to be evaluated for Celiac disease, and vice versa.

By Nicole Cutler, L.Ac.

....

Celiac and the Liver

Celiac disease is commonly associated with liver damage:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,429
    • Most Online (within 30 mins)
      7,748

    twin68grcom
    Newest Member
    twin68grcom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      I've got some lab work results going back to 2010, various MRIs and CT scans and ultrasounds. I discovered two things that MIGHT be of interest to the GI doc tell me what you think? one is the results to an abdominal CT scan with contrast in 2013 that includes this:  "there is some thickening seen in the second and third portions of the duodenum"    Since this CT scan was for left lower quad pain, it was not followed up on   Then in May of 2024 I saw a foot specialist for problems with my feet. Some of that pain is due to a very obvious deformity of both of my legs- the right worse than the left. The dr suggested that my symptoms sounded like an auto immune condition (???) and I thought he was nuts but he ordered some lab work- it came back negative except for a weak positive on one test HLA-B27 and there was a follow up test recommended but that was never ordered and this dr gave me a useless Rx for custom insoles which he refused to address - and my calls to his office were never returned.   At that time I was having all over joint pains, plus some numbness in my feet (also stiffness) and some burning pain in my toes- esp the big toe on the right foot (the more deformed side of my body)   The last time I was eating any appreciable amount of gluten containing foods was in the period of Nov 2024 to around sometime in the summer of 2024. I regularly ate a barley soup that I loved and had subs and pizza and toast etc. I was no longer eating wheat pasta, had already switched to brown rice pasta but otherwise I had not yet made a clear connection between what I was calling 'refined grain products' and any symptoms that I had. And the symptoms were vague and could be attributed to other things.   I was referred to a neurologist in late 2023 for symptoms  of confusion/disorientation, that included loss of balance that I attributed, in part, to the inability to feel where my feet were. Some symptoms such as high spikes in blood pressure (some close to 200 over 100! scary stuff) were later determined to be due to covid or long covid (also had loss of sense of smell and taste)    I had periods of dizziness that did NOT include any spinning sensations, it was more of a feeling of lightheadedness as if my mind would go blank- very strange, never really got any answers about that but that eventually went away so not worried about that   WHAT OTHER THINGS from my past records might be good for the GI dr to know? I had my very first Vit D test done in 2023 and it was low at 23, supplements have gotten that up in the range of adequate but values varied up and down... most recent test was Nov 2025 and it was 45ish I think. That's on a min of 5000Ius per day (there are some fortified foods I eat sometimes that have added vit D)   I thought my serum calcium ran on the low side but it turns out that the reference ranges have changed for the labs that I use- one changed their RR back around er, 2014 I think? so I have no clue how to compare the results before and after those changes   calcium has never been below normal and most of my blood work looks "normal" except during illness or other issues like if I'm in afib- blood work looks insane LOL    I don't know what to make of all this but it sure will be nice to get some answers!         
    • catnapt
      just a few days off of that drug and my digestive system is finally getting back to normal stopping the gluten challenge was not enough to get back to normal, I was still horribly constipated with what seemed like a paralyzed digestive track- nothing was moving! but now, with a few mag citrate capsules that I had to order online and stopping the chlorthalidone, things are getting back to my usual "working well" digestion   so it's clear that the symptoms I had during the gluten challenge were compounded by the new med that was started the same day (I feel like the Dr really should have known better than to do those two things at the same time, add a new drug and start a new diet protocol... but I'm just the patient, what do I  know, right?)   I am going to do another 24 hr urine in a few weeks to see if lowering the dose of vit D gets my urine calcium down to a more tolerable level. that's the plan.  hope it works.  
    • Wheatwacked
    • catnapt
      oh geez!! i made a whole long detailed post and it didn't save it   I give up grrrrrrrrrrr  
    • catnapt
      I'm not delaying my recovery- I was well on my way to recovering, IF I do have celiac disease by listening to my body and not eating the foods that made me feel ill. the drug I just stopped taking was making me incredibly ill and it's unfortunate and more than  a little frustrating that the dr  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.