Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Started gluten-free Diet

Tennis229

By Tennis229
in Meet Up Room

Recommended Posts

Tennis229 Newbie
Tennis229
Posted

Hello everyone! I have recently started a gluten-free diet because I've become so fed up with taking medication for problems which I'm pretty sure are directly related to my intolerance to gluten/dairy. I've been diagnosed with ADD (which I'm pretty sure I don't have), I've had gallbladder, bladder, and gastrointestinal problems my whole life, and the past few years I've had a consistent bout of fatigue, brain fog, and memory loss. To say the least, I've been fed up and am finally sticking to a Gluten-free Casein-free diet in an attempt to feel normal and healthy again. I've been on the diet for 2 weeks now and I just have a few questions for those who have taken this path before. 1. Did you notice dizziness in the first weeks of starting the diet? (I've been so dizzy at times that I can barely stand up). 2. Did anyone notice an increased sensitivity to caffeine (specifically to coffee)? (Before going gluten-free I could drink 3 cups of coffee without noticing a difference, now I just drink a few sips and I'm bouncing off the walls). 3. Did anyone have increased gastrointestinal problems (diarrhea, stomach pains, gas) in the first weeks of going gluten-free?

Sorry for the incredibly long post. Even though going Gluten-free Casein-free is extremely difficult (I'm also living in a foreign country which adds another layer of difficulty), and I'm just looking to communicate with others who have gone through this before. I'm still not certain if dairy and gluten are the only culprits, but I'm excited to see if this diet can make a difference :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


domesticactivist Collaborator
domesticactivist
Posted

Your post isn't too long at all :) welcome!

I felt horrid when I first went gluten free. Part was withdrawal and part was that I tried some gluten free products that didn't sit right with me.

I've gotten the vertigo (dizziness) from medications and I've also gotten it seemingly randomly. I just got it the other day, actually. I was near the end of my gluten challenge and was given a gluten free treat at a gluten-free meeting. I normally don't eat things with sugar, any grains or stuff like xanthan gum but I

Thought I'm already such a mess, might as well. I started feeling weird half way through so I threw it out. I went to bed, and woke up with vertigo that didn't go away for hours.

I guess my point is that if you've been eating substitute products there may be a new to you ingredient causing the vertigo.

Check the labels for anything out of the ordinary!

domesticactivist Collaborator
domesticactivist
Posted

Ps my add got much better gluten-free and came back worse than ever during my two month challenge. Same with my nonceliac daughter. My son's ADHD cleared up as did his extreme dyslexia. This really does affect our minds!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,726
    • Most Online (within 30 mins)
      7,748
    Holly B
    Newest Member
    Holly B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Marie70
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Marie70 · Posted

      Wow!! Scott, Trent and Christiana thank you so much for your fast replies!! The information you have shared with me has helped me tremendously.   Thank you for all the articles.  I appreciate you all so much!! I’ll keep you posted in this post.  I will encourage her to get tested.  I feel a little better!
    • DayaInTheSun
      Shortness Of Breath (the "sighs")?

      By DayaInTheSun · Posted

      It was gradual, just not being able to catch my breathe like I always had to take a deep breathe even taking a few steps I would be winded.
    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Scott Adams · Posted

      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
×
×
  • Create New...