The hardest part for me is this terrible rash it’s now flaring up since I’m done with steroids. 5 weeks of the rash I’m ready to pull my hair out. Has anyone had this problem this long? I also was so use to just getting up going in kitchen to grab a snack now I’m like what am I gonna eat and I’m frustrated  just haven’t found a way to deal with this yet I’m still in shock 

I take 2000 that’s what my doctor told me to take. Of the B-12 thanks for information though. I’m new to this celeiac so I appreciate any help 

I only had the one endoscopy.  My GI wasn’t worried that I still had blunted villi. My antibody levels are now normal. I never had specific symptoms, although I generally feel better now, less fatigue.  I think not having  excess lymphocytes any more would be an improvement. Since you still have symptoms I hope your doctors will still look for a cause.  

Thanks so much for replying.  I truly appreciate it. I was diagnosed in December of 2020 after having an endoscopy with biopcies. The biopcies showed the same thing.  Mild blunting of the villi and it was also showing lymphocytes.  This time is still showing mild blunting and no lymphocytes.  No sure If that would be an improvement. The thing I improved on gluten-free diet but I am still experiencing symptoms.  I have read that some adults might never fully recover their villi. I was truly hoping that would not be me. My antibodies are now within normal range. Just wondering if you have had any other endoscopy after the 4 year mark and how are you feeling now. Just looking for hope. Thanks

Just checking that you are taking 1000 mcg b 12. The reason I ask is because I take 100 which I thought was a lot at over 4000% of rda even though the body allegedly throws off what is not needed.