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We Need To Start A Thread On Stupid Stuff Doctors Say!


mushroom

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Marilyn R Community Regular

Wow, I guess they don't export all the dumb doctors to the US. At least the one in Japan was decent enough to apologize to you

The dermatologist I've seen for the last three years had his receptionist call me tonight to apologize. She said that they had revamped the method and inserviced everyone in the office on how to route medical records, and proceeded to explain what happened, and how dear Dr. had never seen the biopsy report which diagnosed me with Discoid Lupus.

I was so p.o. I said "Donna, him not seeing the pathology report is not all that relevant to me. What I'm upset about is that I have an AI disease involving the skin with other AI diseases, and it is not an uncommon disease. He was my SKIN specialist!"

The main purpose of posting this, besides venting, is to give the heads up to anybody reading that if you get a spot on your face or earlobes (most common sites) that turns red and sort of white crusty on the edges, you must go to a good dermatologist. (I've got three spots now. Two of them don't itch, one is mind numbingly itchy.)

I was walking into a nephrology practice today and saw someone older than me with a scar on her face. I said hello, and asked how she was doing. She said, "I'm sick, that's why I'm here." She had the red mark smack in the middle of her nose where one of mine is, and it was crusty white on the edges. I asked her if she had Lupus and she said she did. Once you see it, you'll know. That's why I'm so upset with the old derm.

I would have preferred the deep bow. :D But I know I have to let it go to get better. Resentment and anger are never good feelings, it's time for me to move on. :)


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  • Replies 283
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Top Posters In This Topic

  • IrishHeart

    44

  • Bubba's Mom

    21

  • mushroom

    17

  • Marilyn R

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Top Posters In This Topic

  • IrishHeart

    IrishHeart 44 posts

  • Bubba's Mom

    Bubba's Mom 21 posts

  • mushroom

    mushroom 17 posts

  • Marilyn R

    Marilyn R 10 posts

mushroom Proficient

Arrrgh! :ph34r:

In all fairness to Charlie, she is employed by the two docs who own the practice (and more popular than either of them ;) ) and has no control over what procedures they set up. I actually like her and make the system work by knowing its limitations (hence my duplicate file and constant follow-up / taking the initiative :) ) Besides, I would have to drive for an hour to see another doc so it works for me in a crazy kind of way because she will normally order whatever I request (within the limits of the NZ health system :( )

mommida Enthusiast

A deep bow would just take the sport out of sticking my foot up his or her arse! ;)

JaneWhoLovesRain Enthusiast

I both love and hate reading all these. Love, because I see I'm not the only one who visits stupid doctors. And really and truly hate because it angers me so much that there are so many stupid doctors "practicing" out there and there are poor, unfortunate patients who place doctors next to God and believe everything they say.

I haven't been officially diagnosed with celiac and have not yet talked with a doctor about it, but have suffered from severe vertigo attacks for several years and from trying to get a diagnosis for this have come across my share of doctors who have said stupid things.

Last winter I had a bad case of influenza, fever of 102ish for several days, terrible headache, terrible body aches, terrible fatigue, chest cough, sore throat, cold symptoms, could barely get off the couch, etc. This was not a "typical cold," it was definitely worse. On day 5 I had one of my severe vertigo attacks (vertigo so bad I can't move if my life dependeds on it, lasts 4+ hours, etc.). If I can I try to ride these out at home but coupled with my flu symptoms I wanted to get to the ER asap so I could get some valium IV in me. I called 911 and they took me to the ER.

My main reason for being there was my vertigo but went over all my symptoms with the doctor and asked him if he thoguht I had the flu. No, he said, you don't have any symptoms of the flu. Huh?? I asked, I've had a fever of 102 for 5 days, a terrible cough, terrible headache, fatigue like I've never had before, etc. What symptoms of the flu don't I have? He responded, "you aren't vomiting." This same doctor was ready to discharge me half an hour later when I still wasn't able to move an inch without the vertigo increasing 10 fold. He said I was all better and there was no need to keep me there any longer.

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).

IrishHeart Veteran

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).

O M G!!! --I thought my stories were absurd, but this one calls for the ever-popular WTF???? :blink: "allowed to look at??"....what a bunch of BS.....O M G.....Sorry, Jane. (hug)

frieze Community Regular

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).

This is so they can charge for 2 visits...

Bubba's Mom Enthusiast

I both love and hate reading all these. Love, because I see I'm not the only one who visits stupid doctors. And really and truly hate because it angers me so much that there are so many stupid doctors "practicing" out there and there are poor, unfortunate patients who place doctors next to God and believe everything they say.

I haven't been officially diagnosed with celiac and have not yet talked with a doctor about it, but have suffered from severe vertigo attacks for several years and from trying to get a diagnosis for this have come across my share of doctors who have said stupid things.

Last winter I had a bad case of influenza, fever of 102ish for several days, terrible headache, terrible body aches, terrible fatigue, chest cough, sore throat, cold symptoms, could barely get off the couch, etc. This was not a "typical cold," it was definitely worse. On day 5 I had one of my severe vertigo attacks (vertigo so bad I can't move if my life dependeds on it, lasts 4+ hours, etc.). If I can I try to ride these out at home but coupled with my flu symptoms I wanted to get to the ER asap so I could get some valium IV in me. I called 911 and they took me to the ER.

My main reason for being there was my vertigo but went over all my symptoms with the doctor and asked him if he thoguht I had the flu. No, he said, you don't have any symptoms of the flu. Huh?? I asked, I've had a fever of 102 for 5 days, a terrible cough, terrible headache, fatigue like I've never had before, etc. What symptoms of the flu don't I have? He responded, "you aren't vomiting." This same doctor was ready to discharge me half an hour later when I still wasn't able to move an inch without the vertigo increasing 10 fold. He said I was all better and there was no need to keep me there any longer.

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).

Shocking! :o


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alex11602 Collaborator

Some of these are horrible, it's ridiculous.

I think most of my bad doctor stories relate to my youngest daughter, starting when I was pregnant with her. With both my girls I had amniotic leakage and preterm labor (with the first one it was at 27 weeks so they monitored and put me on bed rest) with my youngest it was at 21 weeks the doctor sent me back to work and told me that every woman leaks alot of amniotic fluid every night. The same doctor sent me home when I was having contractions every 3 minutes when I was 28 weeks. The doctors also said that it didn't matter to the baby that I couldn't get my blood sugar under control with diet. News for them...it made a big difference, my daughter had a blood sugar reading of 31 when she was born.

When she was finally brought back to me after the doctors got her sugar stabilized she wouldn't eat, threw up everything. Her first day of life she took in only 6 oz of formula since the nurses told me that I couldn't try and breastfeed her anymore since she wouldn't latch. My favorite part is with all this they still discharged her 30 hours after she was born to free up the beds.

We kept bringing her to the doctor for weight checks because she was still having trouble eating (never could tolerate milk based formula, but they had me keep giving it to her), was anemic (hemoglobin was 7.4) despite being formula fed and not gaining weight. They never looked for a cause or anything. This was her measurements up until we went gluten free.

At birth she was 8 lbs 8 oz, 20 1/2 in long

2 weeks...8 lbs 1 oz, 20 1/2 in long

1 month...8 lbs 7 oz, 20 1/2 in long

2 months...9 lbs 3 oz, 20 1/2 in long

4 months...9 lbs 3 oz, 20 1/2 in long

6 months...9 lbs 5 oz, 20 1/2 in long

9 months...12 lbs 10 oz, 22 in long

12 months...12 lbs 10 oz, 22 in long

15 months...17 lbs 5 oz, 23 in long

At ten months old we called the doctor because she ate a chunk of her wooden crib while I was getting ready for work (a six inch wide, one inch deep chunk) and the doctor didn't even want to see her, said they thought she would be fine. All this time she also had anywhere from 5-9 watery diapers a day (it got worse after eating the crib) and first it was infant D, then it was toddler D but never was it anything to worry about. At a year old we tried to give her fat free milk mixed with formula and she had an explosion in her diaper 15 minutes later so the doctor told us to give her soy milk.

By the time she was 15 months old she was sleeping 21 hours a day and when she was up only ate a tiny bit and wouldn't play. I went looking for answers myself and came across this website so I called the doctor and asked them if Celiac was a possibility and they told me that was most likely the problem and to go gluten free right away, no testing because we had no insurance. She was so incredibly sick that we went gluten free right away and things were going fairly well with no watery diapers until one day her poop looked like coffee grounds, I took her to the hospital and they confirmed that it was intestinal blood, but they sent her home without doing anything because we had no insurance. We figured out by eliminating foods that soy causes intestinal bleeding for her and also other foods that bothered her belly.

Now she is doing well healthwise, she is just an anxious child and is afraid of alot of things.

alex11602 Collaborator

Oh forgot about my favorite one for my oldest daughter...whole milk caused her alot of phlegm and she would gag, but it took us awhile to figure that out. We took her to a doctor who asked if we had pets and we told him that we had a dog. He told us she was allergic to the dog and to get rid of it so I said that it was my moms dog and we lived with her so he then proceeded to tell us to move out of her house. Like it would have been that easy!

love2travel Mentor

Another stupid doctor - I was diagnosed with breast cancer 8 years ago and went to see a new oncologist. I told him I now had a swelling under my right arm (I was diagnosed with bc on the left side). He told me he would not be able to check the right side because I was referred to him for bc on the left side and that is all he was allowed to look at. stupid, stupid!! (fortunately right side turned out to be nothing).

This is so they can charge for 2 visits...

U N B E L I E V A B L E ! ! ! This makes me speechless and furious and so very sad for you. :angry::(

When I see my doctor I take a whole list with me and we go through it carefully. He always asks, "Is there anything else you'd like to know or have questions about?" He really takes his time. In a way it can be annoying because that means very long waits in the waiting room but I would far rather have that.

These stories absolutely sicken me.

JoyfulGF Apprentice

I was seeing an endocrinologist last summer who was determined to DX me with PCOS(this was before I was DX with Celiac). I just knew that's not what it was. She kept asking me if I had hair growth on my chest and I kept telling her "No" and she also said my PCP didn't know what he was doing(and I trust him over her) when he did bloodwork . So, when she examines me, she checks my belly and then listens to my heart, then (how I know she didn't believe me when I told her I didn't have chest hair) she did a quick check of my chest by pulling at my shirt and looking down at my chest! Like I didn't notice that! Guuur I was really upset with her and then when we got the bill, $200 just for us to go talk to her! I called and canceled the following appt and requested my blood work. When I went to the office to get the blood results, the receptionist asked if I wanted the reschedule the canceled appt. I said "No, I'm going to see my PCP about these results."

She gave me the look of death, like I just shot her most beloved pet. That was the last time I went there and I will not be going back.

My PCP worked with me and listened when I suggested Celiac. He didn't find anything else wrong. No PCOS, and no thyroid problems.

Bubba's Mom Enthusiast

Some of these are horrible, it's ridiculous.

I think most of my bad doctor stories relate to my youngest daughter, starting when I was pregnant with her. With both my girls I had amniotic leakage and preterm labor (with the first one it was at 27 weeks so they monitored and put me on bed rest) with my youngest it was at 21 weeks the doctor sent me back to work and told me that every woman leaks alot of amniotic fluid every night. The same doctor sent me home when I was having contractions every 3 minutes when I was 28 weeks. The doctors also said that it didn't matter to the baby that I couldn't get my blood sugar under control with diet. News for them...it made a big difference, my daughter had a blood sugar reading of 31 when she was born.

When she was finally brought back to me after the doctors got her sugar stabilized she wouldn't eat, threw up everything. Her first day of life she took in only 6 oz of formula since the nurses told me that I couldn't try and breastfeed her anymore since she wouldn't latch. My favorite part is with all this they still discharged her 30 hours after she was born to free up the beds.

We kept bringing her to the doctor for weight checks because she was still having trouble eating (never could tolerate milk based formula, but they had me keep giving it to her), was anemic (hemoglobin was 7.4) despite being formula fed and not gaining weight. They never looked for a cause or anything. This was her measurements up until we went gluten free.

At birth she was 8 lbs 8 oz, 20 1/2 in long

2 weeks...8 lbs 1 oz, 20 1/2 in long

1 month...8 lbs 7 oz, 20 1/2 in long

2 months...9 lbs 3 oz, 20 1/2 in long

4 months...9 lbs 3 oz, 20 1/2 in long

6 months...9 lbs 5 oz, 20 1/2 in long

9 months...12 lbs 10 oz, 22 in long

12 months...12 lbs 10 oz, 22 in long

15 months...17 lbs 5 oz, 23 in long

At ten months old we called the doctor because she ate a chunk of her wooden crib while I was getting ready for work (a six inch wide, one inch deep chunk) and the doctor didn't even want to see her, said they thought she would be fine. All this time she also had anywhere from 5-9 watery diapers a day (it got worse after eating the crib) and first it was infant D, then it was toddler D but never was it anything to worry about. At a year old we tried to give her fat free milk mixed with formula and she had an explosion in her diaper 15 minutes later so the doctor told us to give her soy milk.

By the time she was 15 months old she was sleeping 21 hours a day and when she was up only ate a tiny bit and wouldn't play. I went looking for answers myself and came across this website so I called the doctor and asked them if Celiac was a possibility and they told me that was most likely the problem and to go gluten free right away, no testing because we had no insurance. She was so incredibly sick that we went gluten free right away and things were going fairly well with no watery diapers until one day her poop looked like coffee grounds, I took her to the hospital and they confirmed that it was intestinal blood, but they sent her home without doing anything because we had no insurance. We figured out by eliminating foods that soy causes intestinal bleeding for her and also other foods that bothered her belly.

Now she is doing well healthwise, she is just an anxious child and is afraid of alot of things.

Your daughter's story breaks my heart. :( I don't understand why they didn't look for a reason why she wasn't growing. Isn't that their job...the reason why we take our babies to the Dr.s? Not doing tests because of insurance when a child is bleeding internally is insane!

Bubba's Mom Enthusiast

I was seeing an endocrinologist last summer who was determined to DX me with PCOS(this was before I was DX with Celiac). I just knew that's not what it was. She kept asking me if I had hair growth on my chest and I kept telling her "No" and she also said my PCP didn't know what he was doing(and I trust him over her) when he did bloodwork . So, when she examines me, she checks my belly and then listens to my heart, then (how I know she didn't believe me when I told her I didn't have chest hair) she did a quick check of my chest by pulling at my shirt and looking down at my chest! Like I didn't notice that! Guuur I was really upset with her and then when we got the bill, $200 just for us to go talk to her! I called and canceled the following appt and requested my blood work. When I went to the office to get the blood results, the receptionist asked if I wanted the reschedule the canceled appt. I said "No, I'm going to see my PCP about these results."

She gave me the look of death, like I just shot her most beloved pet. That was the last time I went there and I will not be going back.

My PCP worked with me and listened when I suggested Celiac. He didn't find anything else wrong. No PCOS, and no thyroid problems.

Errr..what if you had chest hair..but shaved it..or plucked the hairs? LOL It's kind of ridiculous when a Dr. makes up their mind about a DX then tries to manipulate the facts to fit their theory!

Celtic Queen Explorer
Turns out I also had a couple gallstones and constant gallbladder attacks for years, but at least four doctors kept saying I was "too young for those, so we will run tests for something else". Strange that I had every symptom of gallstones but doctors just waved that idea out the door.

The "you're too young for this" comments drive me crazy. A friend of mine's 15 year old son is sick with Stage 4 Pancreatic Cancer. Usually only 60 year old men get this disease. But he still has it. So, what are the doctors going to say to him? "You can't have chemo because you're too young to get this disease." Luckily he has excellent, non-stupid doctors and is getting treatment at St. Jude Children's Hospital.

My stupid doctor story is from before I was diagnosed Celiac. I went through a period in my 20s where I passed out a lot. They couldn't figure out why exactly, so I kept getting shuffled from one specialist to another. One time I was sent to a Neurologist. He walked in the room, took one look at me and said, "You have migraines. That's why you're passing out." I told him, "I have never had a migraine in my life." He kept insisting that I had migraines. Now one of my best friends does suffer from them, so I've seen how bad they can be. I've had headaches, but never one as serious as a migraine. He still wouldn't listen to me. This went on for about 10 minutes. He gave me a prescription for migraine medicine and I went ahead and took it to prove to him that it wouldn't work. Sure enough, I passed out again about a week later. I was never so happy to pass out in my life :D

Another one, again not Celiac related but still stupid, concerns my son. When he was two, he fractured his leg. After he had his cast taken off, he kept complaining about his leg hurting. So I called his orthopedic doctor and made an appointment. They took an x-ray. After the x-ray, he was sitting in my lap while we were waiting for the doctor. Mr. Big Shot Doctor walked in the room, said, "The X-ray looks fine." and walked out. My child never left my lap. The doctor didn't ask to see him walk, ask us any questions about the pain, or lay a hand on him. :angry: We immediately went to another doc, who said his leg was still healing and she promptly send him to physical therapy. Like Irish I wrote a polite, yet very pointed letter to the doctor and never heard a word back. I was so angry. You don't mess with a mama lion's cub B)

maximoo Enthusiast

jane, your long suffering unexplained bouts of dizziness reminds me of a Mystery DX episode I recently saw. Look up "disembarkment syndrome" If its not ur condition I hope that you get pointed in the right direction at least. Good Luck!

  • 3 weeks later...
smjb Newbie

Yesterday my doctor said that even though my serologies were positive, we needed to do a biopsy to confirm. Then, if positive, we'd do another biopsy in a few months after being on a gluten-free diet. But most people don't need the 2nd biopsy because their bloodwork comes back negative.

My thoughts: So, we can't trust positive results from the bloodwork but we can trust negative results??? What???? What makes those negative results so much more reliable than the positive ones??

Then, she goes on to say that she doesn't want me going on a gluten-free diet without a positive biopsy because gluten-free diets are "extremely difficult and hard to follow".

My thoughts: So, if the biopsy comes back positive, will a gluten-free diet then be easier to follow and not so difficult?? Doubtful. She pretty much just sent all her negative energy towards me about a gluten-free diet!!! Doomed no matter what is the message I got.

I went on the internet last night and found that many people who test positive to the antibodies and have negative biopsies later develop full-blown celiac, which is probably worse than it might have been had they started a gluten-free diet when the serologies were positive.

UGH.

Bubba's Mom Enthusiast

Yesterday my doctor said that even though my serologies were positive, we needed to do a biopsy to confirm. Then, if positive, we'd do another biopsy in a few months after being on a gluten-free diet. But most people don't need the 2nd biopsy because their bloodwork comes back negative.

My thoughts: So, we can't trust positive results from the bloodwork but we can trust negative results??? What???? What makes those negative results so much more reliable than the positive ones??

Then, she goes on to say that she doesn't want me going on a gluten-free diet without a positive biopsy because gluten-free diets are "extremely difficult and hard to follow".

My thoughts: So, if the biopsy comes back positive, will a gluten-free diet then be easier to follow and not so difficult?? Doubtful. She pretty much just sent all her negative energy towards me about a gluten-free diet!!! Doomed no matter what is the message I got.

I went on the internet last night and found that many people who test positive to the antibodies and have negative biopsies later develop full-blown celiac, which is probably worse than it might have been had they started a gluten-free diet when the serologies were positive.

UGH.

Typical. :(

False positives aren't very likely with blood work. The endoscope is mainly to confirm..and assess the level of villi damage.

Maybe she meant the REscope wasn't usually needed after starting the diet and redoing the blood tests show that the Celiac levels have gone down(are negative)?

I'm trying to give her the benefit of doubt here. ;)

If you have positive blood work..and no damage when scoped..congratulations! They caught it early. Stay gluten-free...even if it's hard. Doh!

Sarunski Newbie

My doctor situation when I found out I had Celiac.

Background: My initial doctor who requested blood tests for the Celiac got called for duty and shipped overseas. So my mom and I had to go in and see a completely new doctor who clearly had barely read my file.

Doctor, looking at my file: Do you have a problem with wheat?

Me: Yeah...

Doctor: Oh good cause you have Celiac Sprue Disease. :blink: (This is a good thing?)

Me: *facepalm* well what does that mean?

Doctor: You can't eat anything with gluten, but I'm not an expert so you should google.

Me: Okay well am I more susceptible to any allergies or diseases?

Doctor: I just said I'm not an expert, just don't eat gluten okay? If you want to know about your problem, google it. *walks out*

So rude! Luckily, I found this site and a lot of my questions were answered :)

Bubba's Mom Enthusiast

My doctor situation when I found out I had Celiac.

Background: My initial doctor who requested blood tests for the Celiac got called for duty and shipped overseas. So my mom and I had to go in and see a completely new doctor who clearly had barely read my file.

Doctor, looking at my file: Do you have a problem with wheat?

Me: Yeah...

Doctor: Oh good cause you have Celiac Sprue Disease. :blink: (This is a good thing?)

Me: *facepalm* well what does that mean?

Doctor: You can't eat anything with gluten, but I'm not an expert so you should google.

Me: Okay well am I more susceptible to any allergies or diseases?

Doctor: I just said I'm not an expert, just don't eat gluten okay? If you want to know about your problem, google it. *walks out*

So rude! Luckily, I found this site and a lot of my questions were answered :)

wow. That's pretty close to how I was told about my DX..except the Dr. was nice. She said "you have Celiac. Don't eat gluten. Look it up online." These Dr.s are announcing we have a disease that will change our lives forever and this is the way they deliver that news? :blink:

I'm glad we both found this site! :D

mushroom Proficient

wow. That's pretty close to how I was told about my DX..except the Dr. was nice. She said "you have Celiac. Don't eat gluten. Look it up online." These Dr.s are announcing we have a disease that will change our lives forever and this is the way they deliver that news? :blink:

I'm glad we both found this site! :D

Well, I have to chine in here -- tjhey know by now that that's what we're going to do anyway :lol: And they know they know nothing about it. So why make themselves look any more foolish???

Bubba's Mom Enthusiast

Well, I have to chine in here -- tjhey know by now that that's what we're going to do anyway :lol: And they know they know nothing about it. So why make themselves look any more foolish???

:D :D :D

Mom23boys Contributor

I have too many stupid dr stories so I will stick with the latest.

I went to the dr for woman issues. He said it was because I'm a little overweight. OK, whatever. We proceeded to discuss my diet -- no wheat, no this, no that. He then puts me on this specialized diet. I tell him it is only 1 ingredient different than what I'm on and I don't think it is going to work. He insists I go on it. OK. After a few weeks I'm not losing like he thinks I should so he starts belittling me for not following his diet. I keep trying to tell him I am following it and there is something else wrong. A few appointments later he dismisses me and tells me I can come back when I can give up the twinkies and ding dongs. :angry::rolleyes: I could NOT get across to him that we do NOT eat twinkies and ding dongs. I now have a thyroid diagnosis that is just days old. If I start losing with this, I'm going to have to at least say something.

Bubba's Mom Enthusiast

I have too many stupid dr stories so I will stick with the latest.

I went to the dr for woman issues. He said it was because I'm a little overweight. OK, whatever. We proceeded to discuss my diet -- no wheat, no this, no that. He then puts me on this specialized diet. I tell him it is only 1 ingredient different than what I'm on and I don't think it is going to work. He insists I go on it. OK. After a few weeks I'm not losing like he thinks I should so he starts belittling me for not following his diet. I keep trying to tell him I am following it and there is something else wrong. A few appointments later he dismisses me and tells me I can come back when I can give up the twinkies and ding dongs. :angry::rolleyes: I could NOT get across to him that we do NOT eat twinkies and ding dongs. I now have a thyroid diagnosis that is just days old. If I start losing with this, I'm going to have to at least say something.

:angry::o :o

carlao Newbie

Went to the doctor for extreme fatigue, sore throat, swollen glands at base of neck. After a 2 minute exam, was prescribed antibiotics for a sinus?!? infection.

Ten days later, I went to a new doctor who immediately ordered thyroid tests and I was diagnosed with subacute thyroiditis.

I think we will go with the new doc.

pricklypear1971 Community Regular

I have too many stupid dr stories so I will stick with the latest.

I went to the dr for woman issues. He said it was because I'm a little overweight. OK, whatever. We proceeded to discuss my diet -- no wheat, no this, no that. He then puts me on this specialized diet. I tell him it is only 1 ingredient different than what I'm on and I don't think it is going to work. He insists I go on it. OK. After a few weeks I'm not losing like he thinks I should so he starts belittling me for not following his diet. I keep trying to tell him I am following it and there is something else wrong. A few appointments later he dismisses me and tells me I can come back when I can give up the twinkies and ding dongs. :angry::rolleyes: I could NOT get across to him that we do NOT eat twinkies and ding dongs. I now have a thyroid diagnosis that is just days old. If I start losing with this, I'm going to have to at least say something.

Oh geez.

How is that doc not strung up by his heels in a public forum??

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    • Kathleen JJ
      And yes, of course it's better to know and we will adjust.  It's just, he's 7 and in our house we can control what he gets. But he plays soccer 3 times a week and in the changing room the boys share candies. I can and will tell him not to accept them any more, but "mistakes" will be made.   I'm really burdened by the potential social impact for him. He so loves to go to a restaurant as a family - I'll guess that's finished. Going to birthday parties at another kids house? I am reading about Coeliacs and apparently the fact that something as much as TOUCHED something with wheat is enough, even if he doesn't feel the symptoms - how can we control that bar from keeping him locked up?    And the worst worry of all: how do you tell a little boy to do all of this to not have symptoms that he does not have. If he'd been having horrible diarrhea or feeling really tired, we could tell him 'see, you feel so much better now, that kind of food was just not good for your body', but now, what will our argument be? For clarity: of course we will put him on the diet, I am not saying I don't believe in the necessity of that, it is just that it will be quite a stretch to 'sell' it to him 😞
    • StaciField
      I’m 41. You have helped me achieve the goals of finding a way of getting nutrients into my body so I will see how it works for me. Thank you so much.
    • Kathleen JJ
      Thank you for your reaction. The reference values are both "<10", although I found a medical paper from Netherlands (I'm Belgian) who use the same values and there the see a positive daignosis as twice more then 200 and a positive biopsie. I didn't see how to change this in my original message, sorry...
    • cristiana
      Hi Kathleen Welcome to the forum. I am based in the UK so I am just picking this post up before our US based moderators appear.  I think they will want to know the lab values of both of the figures you have provided us with (min/max reading) as they tend to vary - could you post those for us, please? We see a lot of coeliacs who also have helicobacter pylori on this forum.  I am not sure how that would reflect in the blood results so I will leave this to be answered by my more experienced colleagues @trents or @Scott Adams. Obviously, you won't really know for sure where things stand until you have your meeting with the consultant.  I am sorry that you have to wait, but it will be worth knowing one way or another.  Apart from his recent gastric issues, it is fantastic to know that your son is otherwise a picture of health.  But it is worth bearing in mind that undiagnosed coeliac disease can cause health issues in the longer term, so far better to know now if he does turn out to have coeliac disease and adapt your son's diet accordingly, before other health issues have a chance to appear. Cristiana  
    • Kathleen JJ
      Hi all, I'm very new at this and 'this' has been quite a rollercoaster ride.   Last august my 7 year old son suddenly had these colic like pain attacks that would come a few times per day/night during 10 days. Because they were that bad and because our older daughter had her appendix taken out at 7, we ended up at ER twice to have him checked out. On both accounts blood was taken, on one account an ultrasound was made, showing swollen lymph nodes around the stomach, and the working theory was it was a violent reaction to a viral infection (even though he was not nauseous nor had diarrhea or anything like that). After 10 days it stopped as suddenly as it came on.   On October 1d my daughter started vomiting in the middle of the night, had a fever, and my son also threw up once (no fever). We kept them home from school, daughter kept on vomiting, fever stayed, son was perfectly healthy during the day, although he only ate yoghurt to be safe. The plan was to let him go to school the day after. In the night prior to his school return however, he woke up at 1, screaming with pain, begging to go to ER, which we did - the pain from august had returned.   Again bloodwork, but nothing found. It ended up only being that one pain attack, but because they were that bad, we went to the pediatrician the week after to have him checked up more thoroughly. He is a very energetic, sporty boy and he showed off his six pack with great pride to the doctor. She said he looked as an example of health, but did a more extended search because as the last blood test his liver values had been ever so slightly raised and she wanted to see how they'd do after a month.    So on November 8 we had his blood drawn again. His liver values had returned to normal, which did confirm the working theory that his pains were viral-infection triggered.   However, to everyone's (including the doctor) surprise, he also had these values: Transglutaminase IgA + >128 U/mL Gliadine IgG + 123.0 U/mL    I take it these are quite high. So last Tuesday he got his gastroscopy done, we'll have the result around the 25d we hope.  Whilst going for taking samples of the bowel, the gastro enterologist did notice some nodes in his stomach that present like a reaction to a Helicobacter pylori type infection, which would very much explain the type of pains he had.   We are still very much in shock by the Ceoliakie diagnosis (I know, it still needs to be confirmed by the biopsy, but with those numbers we kind of expect it) as he has no symptoms at all. The doctor said 'once he goes on a gluten free diet you'll see him blossom into an energetic, more happy boy' and we're like: but he is bouncing around singing and joking all day, I really can't imagine him being MORE energetic and happy - meaning, he's welcome to be that of course, but this is not a tired, withdrawn kid.   And even if the biopsy gets back negative (unlikely), what could these numbers have meant then? Could the Helicobacter pylori have an influence on this?   I have so many questions but are only eligible for a consult on December 6d so my data driven mind is going crazy having so little information or knowing so little about what everything means...   Kind regards, Kathleen  
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