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Waiting For Test Results


pinkpumpkin

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pinkpumpkin Newbie

My daughter is 14 months old. She had a scope done yesterday and are waiting for the results. We know that she has an IGA deficiency and are pretty sure about Celiac. We have to wait on the results to be sure, though. Does anyone have any experience with dealing with both of these? I have been worrying myself sick about this and could use any advice. Thanks.

pinkpumpkin


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KaitiUSA Enthusiast

IgA deficiency is seen a bit with celiac and that makes blood tests come back wrong sometimes. However, testing with kids under 2 can be inaccurate anyway.

Biopsies can rule celiac in but they can't rule celiac out so keep that in mind. She may still have it even if the scope results come back negative.

scaredparent Apprentice

Now that all test are done you could but her on a gluten-free diet and if you see improvements then wether the test are postivie or negitive you can tell by a diet change.

All of my son's test came back negitive but had a postive dietary change. He was 15 mo when tests were done and 20 mo when we started gluten-free diet and 4 days latter he was a different kid. If I knew then what I know now he would of been gluten-free at the age of 15 mo.

Good luck and this is the best website if you have any questions. Don't worry about dietitions just ask questions here. My dr just told me "put him on a gluten-free diet and see what happens" . And that was all if it wasn't for this website I don't think my son would be doing as well as he is now. :D

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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