Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction To Buckwheat And Other Grains?


SGRhapsodos

Recommended Posts

dilettantesteph Collaborator

Yeah, have you seen their shipping? The last time I checked it was a lot. I may have to bite the bullet and order in the future though.

I know. I've ordered from them. If you get enough it is comparable in price to the health food store.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SGRhapsodos Rookie

uote name='IrishHeart' timestamp='1328972571' post='772631']

Just curious...how long have you been gluten-free?

Could be you are just still healing your gut and unable to digest some complex starchy carbs. It is not always about gluten and possible CC.

I know it took me a while ( 9-10 MONTHS) before I could

handle some of the more starchy carbs. My GI tract was a mess.

Lactose and complex carbs--the hardest to digest at first. Blunted villi, insufficient enzymes, etc.

My doc says some people take 2 years for gut healing. (that's probably going to be me...sigh) :rolleyes:

Just suggesting--before you start assuming some products are unsafe. :)

I've been gluten-free since august of 2011, but wasn't feeling completely well. Idk if it's that I have a sensitivity or just, like you said, it may be too much for my system to digest. I will not give up on trying the product again after a while though. Maybe my gut needs some time to heal. I will be seeing another doctor soon that can give me more guidance. Till now aboidance of all grains has been the best solution.

IrishHeart Veteran

Probably wise! One of the many things I have learned about this disease process is....everyone is different!

I can eat gluten-free oatmeal to my heart's content, but try and eat

too much corn? ah, nope! :lol:

And it does not mean we are not healing, hon---just "not there yet"

Ask your doc about it, though, just to be sure.

best wishes!

UKGail Rookie

I have also been gluten-free since end of August, and feel better if I stick to getting my carbs from starchy vegetables. However, although I have no trouble avoiding gluten, I do find it difficult to completely stay away from grains. This is sometimes due to the convenience of some grain-based foods when I am pushed for time, and sometimes because I really miss my carbs. I seem to do ok with them if I stick to eating only a couple of grain-based meals/snacks a week, so I suspect, like Irishheart says, it is a problem with digestion still. I also have trouble with too much fat, and too much sugar, which I think probably supports this idea.

IrishHeart Veteran

I also have trouble with too much fat, and too much sugar, which I think probably supports this idea.

I am like you--I like my carbs, I admit it! :lol:

I had no trouble giving up gluten (good riddance to the poison that was killing me, I say!) but rice, corn, potatoes, oats? uh,uh, no way! :)

Who doesn't like a sweet treat once and awhile?

And we need some healthy fats. A juicy steak for protein, for example (apologies to the vegans among us) because many of us were so malnourished. My muscles were deeply impacted. I need protein

and it will not come from lettuce and blueberries.

Our GI tracts are still messed up and digestion is impaired, so what's a cellac to do?

Enter, digestive enzymes. :)

Take one before a meal and you may find your digestion improved.

Between them and probiotics, I was able to eat (and keep IN) more foods and my appetite improved and eventually, I gained back some weight and some muscle. ( I had dropped 90 lbs. and lost major muscle mass)

Just a suggestion!

UKGail Rookie

Hi Irishheart. You are quite right. I had been taking digestive enzymes following a suggestion from Roda, and it helped significantly. Once the course ran out I didn't get a new one, as I was much better, and by then didn't really notice the difference in not taking them. However, things have gradually got worse again, following a few probable glutenings from CC (the symptoms are for me a bit different to the pain of poor digestion - the biggest clue being a migraine and worsening brain fog). I bought a new course last week, and have now added some probiotics too (and Bs, Calcium, Magesium, D, C and Iron, so I think I am now covering all my bases!) Anyway, the pain and gassiness have reduced again significantly, so they really do seem to help. I won't really know how much better I am until after I eat my nice juicy steak that is waiting for me at home tonight. I agree steak is a great for our recovery, but it is quite a tough food to digest. I have to steer clear when I am under the weather.

I had significant problems with inflammation too. The only way the docs measured it was via a sky high ESR, but I felt it throughout my body. Not only was my digestive system up the creek, but I could barely move because I was so stiff and sore, and was very overweight too. It is not a straight line recovery, and even though I still haven't summoned the energy to start stretching or exercising, I can sometimes feel the tension draining from my soft tissues, and they are sometimes sitting more comfortably around my frame.

I know what I should be feeling with this, as I spent a lot of money on specialist rehab using pilates a few years ago, after a car accident, and got really well after a while. I was also inadvertently eating a healthy gluten free diet too. Then, when I got sick I just couldn't understand why my pilates routine, which had previously worked so well, stopped working at all, so I stopped exercising because I was just hurting myself. I never saw until recently, that it was the gluten free diet that had probably been primarily responsible for my wellness. Unfortunately, having been pretty sick for the last couple of years, it is not such an easy road back to health. I am optimistic though that I will get there, given time and a healthy gluten free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.