Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reaction To Buckwheat And Other Grains?


SGRhapsodos

Recommended Posts

dilettantesteph Collaborator

Yeah, have you seen their shipping? The last time I checked it was a lot. I may have to bite the bullet and order in the future though.

I know. I've ordered from them. If you get enough it is comparable in price to the health food store.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SGRhapsodos Rookie

uote name='IrishHeart' timestamp='1328972571' post='772631']

Just curious...how long have you been gluten-free?

Could be you are just still healing your gut and unable to digest some complex starchy carbs. It is not always about gluten and possible CC.

I know it took me a while ( 9-10 MONTHS) before I could

handle some of the more starchy carbs. My GI tract was a mess.

Lactose and complex carbs--the hardest to digest at first. Blunted villi, insufficient enzymes, etc.

My doc says some people take 2 years for gut healing. (that's probably going to be me...sigh) :rolleyes:

Just suggesting--before you start assuming some products are unsafe. :)

I've been gluten-free since august of 2011, but wasn't feeling completely well. Idk if it's that I have a sensitivity or just, like you said, it may be too much for my system to digest. I will not give up on trying the product again after a while though. Maybe my gut needs some time to heal. I will be seeing another doctor soon that can give me more guidance. Till now aboidance of all grains has been the best solution.

IrishHeart Veteran

Probably wise! One of the many things I have learned about this disease process is....everyone is different!

I can eat gluten-free oatmeal to my heart's content, but try and eat

too much corn? ah, nope! :lol:

And it does not mean we are not healing, hon---just "not there yet"

Ask your doc about it, though, just to be sure.

best wishes!

UKGail Rookie

I have also been gluten-free since end of August, and feel better if I stick to getting my carbs from starchy vegetables. However, although I have no trouble avoiding gluten, I do find it difficult to completely stay away from grains. This is sometimes due to the convenience of some grain-based foods when I am pushed for time, and sometimes because I really miss my carbs. I seem to do ok with them if I stick to eating only a couple of grain-based meals/snacks a week, so I suspect, like Irishheart says, it is a problem with digestion still. I also have trouble with too much fat, and too much sugar, which I think probably supports this idea.

IrishHeart Veteran

I also have trouble with too much fat, and too much sugar, which I think probably supports this idea.

I am like you--I like my carbs, I admit it! :lol:

I had no trouble giving up gluten (good riddance to the poison that was killing me, I say!) but rice, corn, potatoes, oats? uh,uh, no way! :)

Who doesn't like a sweet treat once and awhile?

And we need some healthy fats. A juicy steak for protein, for example (apologies to the vegans among us) because many of us were so malnourished. My muscles were deeply impacted. I need protein

and it will not come from lettuce and blueberries.

Our GI tracts are still messed up and digestion is impaired, so what's a cellac to do?

Enter, digestive enzymes. :)

Take one before a meal and you may find your digestion improved.

Between them and probiotics, I was able to eat (and keep IN) more foods and my appetite improved and eventually, I gained back some weight and some muscle. ( I had dropped 90 lbs. and lost major muscle mass)

Just a suggestion!

UKGail Rookie

Hi Irishheart. You are quite right. I had been taking digestive enzymes following a suggestion from Roda, and it helped significantly. Once the course ran out I didn't get a new one, as I was much better, and by then didn't really notice the difference in not taking them. However, things have gradually got worse again, following a few probable glutenings from CC (the symptoms are for me a bit different to the pain of poor digestion - the biggest clue being a migraine and worsening brain fog). I bought a new course last week, and have now added some probiotics too (and Bs, Calcium, Magesium, D, C and Iron, so I think I am now covering all my bases!) Anyway, the pain and gassiness have reduced again significantly, so they really do seem to help. I won't really know how much better I am until after I eat my nice juicy steak that is waiting for me at home tonight. I agree steak is a great for our recovery, but it is quite a tough food to digest. I have to steer clear when I am under the weather.

I had significant problems with inflammation too. The only way the docs measured it was via a sky high ESR, but I felt it throughout my body. Not only was my digestive system up the creek, but I could barely move because I was so stiff and sore, and was very overweight too. It is not a straight line recovery, and even though I still haven't summoned the energy to start stretching or exercising, I can sometimes feel the tension draining from my soft tissues, and they are sometimes sitting more comfortably around my frame.

I know what I should be feeling with this, as I spent a lot of money on specialist rehab using pilates a few years ago, after a car accident, and got really well after a while. I was also inadvertently eating a healthy gluten free diet too. Then, when I got sick I just couldn't understand why my pilates routine, which had previously worked so well, stopped working at all, so I stopped exercising because I was just hurting myself. I never saw until recently, that it was the gluten free diet that had probably been primarily responsible for my wellness. Unfortunately, having been pretty sick for the last couple of years, it is not such an easy road back to health. I am optimistic though that I will get there, given time and a healthy gluten free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      High TTG-IgG and Normal TTG-IgA

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    3. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    4. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,838
    • Most Online (within 30 mins)
      7,748

    Pepper Loo
    Newest Member
    Pepper Loo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.