Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Had My Endoscopy...


Avalon451

Recommended Posts

Avalon451 Apprentice

I just had my endoscopy this morning. Interesting experience. It didn't bother my throat; I was really worried about the gag reflex since they weren't putting me totally under, just sedated. But it was ok. I do recall vaguely doing some gagging as they removed the tube, maybe a little vomiting, but of course my recall is pretty muddled.

Got a bit of a headache, nothing serious. I just took some tylenol. Also, I don't care what they say about having no nerve endings there, I can tell they were messing around in my upper GI, it's a little sore. Again, nothing serious, though.

Get this, the doctor took 20 biopsies! I asked him, just before they sedated me, "How many samples do you usually take? and he said "Six, although if things look weird I might take more." Apparently I had a pretty obvious "cobblestone" appearance in the duodenum that is consistent with celiac. The pics are weird looking.

Well, it will be interesting to see what the results are. Meanwhile, on to the gluten-free adventure!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Chuck1004 Apprentice

Mind if I butt in with a question? I am slowly waiting for a drip of blood tests come back in and I am doing as much research as possible on celiac's disease and autoimmune disorders of the liver after a high ttg iga count.

Last year I had an upper GI, endoscopy and colonoscopy. Celiac's was not on the radar at that point. I understand that biopsies are taken as part of the celiac diagnosis, but the GI indicated that nothing looked unusual in any of the procedures. Is this consistent with not having done a biopsy, or should he have been able to detect something from the endoscopy if I had celiac's?

Thanks,

Link to comment
Share on other sites
Avalon451 Apprentice

I'm pretty new at this myself, but from my own research I've read that there are SOME visual things they look for visually, like scalloping on the folds, and a "cobblestone" look to the surface. I had some of those in my endo today; it can be seen it on the pictures.

That said, the biopsy is looked at under a microscope to see what kind of shape the villi are in-- whether they are blunted, completely flattened, or whatever. That can't be seen with the naked eye.

So if you didn't have a biopsy the doc can't know for sure whether or not you have it, just because it didn't "look" like there was a problem. That's my guess.

Good luck!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,721
    • Most Online (within 30 mins)
      7,748

    cebrasell
    Newest Member
    cebrasell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.7k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      But here's the thing. As long as the product in question tests out at less than 10ppm of gluten then the company can legitimately advertise it as certified gluten free according to GFCO standards.
    • rio
      Thanks so much for this post. I was actually thinking of purchasing it as they do advertise it as gluten-free on their website. But, I clearly had not scrutinized the label closely enough!
    • trents
      There are some causes besides celiac disease for elevated tTG-IGA, such as cow's milk protein, some other bowel diseases, NSAIDs, a certain blood pressure med and parasitic infections but the chances of that being true are not very high compared to the cause being celiac disease. And even with CMP (Cow's Milk Protein) most of those cases involve people who already have celiac disease.   
    • cristiana
      Hi @Schellee94,  it is good to know that you have found this a helpful thread.  Do let us know how you get on! Cristiana
    • trents
      Did you purchase it thinking it was gluten free? The company doesn't advertise it as such do they? Barley is not one of the eight main allergens that the FDA requires to be posted in the allergen info. Wheat is but not barley. But good catch. We don't see many products with barley and rye as ingredients and it is easy to get lazy, not really read the detailed ingredient list and to just go straight for the allergen list.
×
×
  • Create New...