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Who's In Their 20's?


GlutenFreeStudent

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LRgirl Explorer

Hi,

I'm 26 and from Maryland. It has been hard adjusting to my gluten intolerance as well as other allergies. You'll find this to be a very helpful and supportive board.

Traci


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Guest zipy

Hi there! I'm 25 and was dxed about 1 month ago. I'm a grad. student at ASU and it's hard to be gluten-free. All the parties, socials, gatherings...free pizza by the Greek rush ....it's not much fun to be on the outside of all the "fun" and normal stuff. I was thinking about seeing if there is gluten-free student support group on campus, or maybe looking in to starting one? I mean, what do students stuck in the dorms eat when they buy a meal plan? Hang in there...I'm making all my own foods from scratch and it is a pain and does take a lot of time...but they taste good! I chewed my husband out the other day for eating my home-made gluten-free granola bars when we have a pantry full of the store bought ones...he said he liked mine better! Lol!

happygirl Collaborator

It's nice to know that there are others out there that are young and living gluten free (or trying the best we can!). I've never met anyone with celiac disease so it makes me feel better to know that there are others like me :)

VegasCeliacBuckeye Collaborator

I just turned 30 a few months ago (ok, 7 seven months ago).

I have been diagnosed since 1997.

The first couple of years were difficult, but they got easier.

You should always be reading about celiac disease and always be reading about food. I have plenty of cookbooks and food-educational sources at home. The more knowledge the better.

This site is great, better than any Doctor I have ever seen. Welcome!

Ken Guzzardo Newbie

Hey everyone, my name is Ken and I'm 24 years old. I was diagnosed in October, and had been getting sick for about 5 years previously. I'm new to all this posting stuff, but I wanted to hear from more people my age that have this disease. GFSTUDENT, if you allow your body some time to heal; there's a good chance that you will be able to tolerate more foods in the future. Eating a very restrictive diet for a limited time is a small price to pay if it buys you years of health in the future. As someone else posted (I forget who), dealing with eating out with friends is a difficult situation for me. My friends will laugh when I bring my cooler of food on the golf course, as they're all toating their coolers of beer, but oh well. A quick note to everyone.. I recently returned from Disney World, which was the first vacation I have taken since being on the diet, and I would definitely recommend it to anyone. As long as you make all the reservations with advance notice and alert them to your restrictions, they were more than accomodating. Each head chef came over to talk to me, which made the trip a lot less stressful for me (and therefore my girlfriend). I'm living outside of Philly, so anyone in the area email me or post back... i haven't met anyone aside from 50 year olds with this, so it will be nice to talk to someone more my age.

emeraldskies Rookie

I'm 27 and was diagnosed with celiac disease slightly over a year ago, but I've had signs of it since infancy.

I'm in my twenties, too. I think people our age are more open to the idea of food causing illness, compared to my grandparents' generation. I think it's because there's more awareness now that not everything can be solved with a "suck it up, get over it, and move on" --type attitude. You know, the mentality that says, "if I don't see gushing blood, you're just fine." Has anyone else noticed this? In my experience, when I tell someone 30 years older than me what celiac disease is, I'm much more likely to get a skeptical reaction than if I tell someone my own age.

<{POST_SNAPBACK}>

Yes, I've had a similar reaction even though I had most of the same health issues (and more) as the middle aged people I'd encounter. I was also told, "You're young; you'll bounce back from anything" repeatedly pre-diagnosis. I still haven't bounced back.

Lauren M Explorer
I'm living outside of Philly, so anyone in the area email me or post back

<{POST_SNAPBACK}>

Hey Ken - I'm in grad school at Drexel!

Do you ever visit Mr. Ritts in Philly?

- Lauren


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Ken Guzzardo Newbie
Hey Ken - I'm in grad school at Drexel!

Do you ever visit Mr. Ritts in Philly?

- Lauren

<{POST_SNAPBACK}>

Hey Lauren - I've been to Mr. Ritts a couple of times. Their jewish apple cake is ridiculously good. what are you going to school for? i graduated from jefferson last year.

ken

Lauren M Explorer

Ken,

I'm getting my masters in Publication Management. I have my bachelors in Rhetoric & Communications. For one of my grad classes last year, I "created" a magazine entirely about Celiac disease and the gluten-free diet :P

I think EVERYTHING at Mr. Ritts is ridiculously good! I'll have to try the apple cake next time. I got my birthday cake from them last year (my only request was that it had to have chocolate and it had to have peanut butter) and they came up with something that was to die for :D

It's cool to find out about others my age with celiac disease! And you're all so nice!

- Lauren

frenchiemama Collaborator

I'm in my (late) 20's as well, but I have to say that I haven't had too much trouble with people regarding celiac disease overall. My husband's family have really been the only ones to have a strange reaction ("can't she just take some benadryl?").

jkmunchkin Rising Star

Welcome! I'm 27 (will be 28 in just over a week). I just found out a couple months ago that I have celiacs, but have most likely had it for nearly 10 years. Atleast now I know why I was always sick.

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    • trents
      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
    • Bebygirl01
      On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those on a 'traditional' gluten free diet , who are also still sick and struggling, are you also reacting to these other types of gluten as listed below? NOTE:  The new movement if you want to call it that, is now called 'grain free' and that is the true definition of gluten free. I no longer suffer with ataxia, confusion, anxiety, depression, OCD, Insomnia, ADD, acid reflux, dermatitis herpetiformis, migraines, headaches, and weight issues all due to going 'grain free'. I hope to reach as many of you out there that are still struggling and unaware of what might be setting you off such as my most recent glutening was from a vegan supplement that contained 'magnesium sterate' and 'glucose syrup' both of which are from Zien (zane) gluten at 55%. I was covered in sores that were bleeding, I was seeing squigly lines when I was trying to drive, had acid reflux, insomnia, and nightmares all from the gluten in Corn. Here are the other types of glutens that Celiacs and Gluten Intolerant people also react to: Wheat -Alpha Gliadin Gluten- 69% Rye - Secalinin gluten-30-50% Oats-Avenin gluten -16% Barley-Hordein Gluten -46-52% Millet-Panicin Gluten-40% Corn-Zien Gluten -55% Rice-Orzenin Gluten-5% Sorghum-Kafirin gluten-52% and Teff-Penniseiten Gluten 11%.
    • Scott Adams
      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
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