Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need A Knowledgeable Doctor


evelyn01

Recommended Posts

evelyn01 Newbie

every doctor so far that i have seen, has been all too quick to pin it on either IBS , colitis, etc. but i cannot get them to listen to the whole list of symptoms, so i cannot get them to switch their thinking. try as i might, i cannot find anything that suggests that there are that many doctors out there who understand that you don't have to be celiac to be gluten intolerant. in fact, my last doctor appt. with gastroenterologist, he looked at me and said, "you cannot be gluten intolerant because your test for celiac was negative." i am so sick of being sick, and i am desperate for a doctor that will listen, have patience with me, and be willing to explore options instead of being so quick to pin it on some general disorder. i don't even mind travelling a couple of hours to get to one. does anyone in my general area (southern new hampshire) have any ideas on some good doctors that may know something about celiac and gluten intolerance? it seems that the medical community isn't quite up to speed here........


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I would suggest you post with a topic entitled

Need a Good GI in ....NH

otherwise, no one will know you WHERE you are located and may not see it and answer this thread, hon! :)

That's what I did and found my new guy!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,251
    • Most Online (within 30 mins)
      7,748

    Chloe Lynn
    Newest Member
    Chloe Lynn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum @Juliana82! Bleeding where? Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe.
    • Juliana82
      Does anyone have bleeding after eating gluten? You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Wheatwacked
      vitamin D levels in obsessive-compulsive disorder "The number of participants with vitamin D insufficient ... and vitamin D deficiency ... in the OCD group was statistically significantly higher than the control group... and also the number of participants whose vitamin D levels were in the normal range ... in the OCD group was statistically significantly lower than the control group." Low vitamin D iscommon in Celiac Disease patients. Also no lithium in drinking water (bottled water) or in areas with low ground water Lithium contributes to anxiety. Association between naturally occurring lithium in drinking water and suicide rates The EPA calculated a provisional oral reference dose (p-RfD) of 2 μg/kg-day using the Provisional Peer-Reviewed Toxicity Value   https://www.epa.gov/system/files/documents/2023-11/ucmr5-technical-fact-sheet-lithium-in-drinking-water.pdf Should we all take a bit of lithium?! Raising my vitamin D to 80 ng/ml and taking 5 mg a day of Lithium Orotate for a few month helped me.
    • Wheatwacked
      After 3 months without gluten he will have healed and his blood tests will be negative. That does not mean "not celiac, ok to eat wheat, rye and barley again.  It does mean the diet is working.  Many of those recently diagnosed with Celiac Disease are often deficient in vitamin D and other vitamins and minerals.  It's a side effect called Malabsorption.  Get his blood checked for 25(OH)D level to be sure.
    • Wheatwacked
      Yeah, but that's probably not where you want to eat, anyway.
×
×
  • Create New...