Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diarrhea, Pain, Nausea - Glutened?


NHyogagirl

Recommended Posts

NHyogagirl Rookie

Hello,

Gave my 12 year old daughter ceviche yesterday. She has been 100% gluten-free since intestinal surgery on 1/1/12. Last night pain started in her belly, then nausea, then diarrhea from 3:00 on to 10:00 this morning. She is home from school "sick" again.

I know there is a lot on this forum about being "glutened" - so I called the restaurant and asked. (never thought ceviche would have gluten!) - anyway, they said there is gluten in the seasoning they used.

My question is could that small amount of gluten give her all these symptoms? I'm still trying to learn what works best for her, poor thing. She said "mom, all I want is to feel well".

Also she was in school all day yesterday with gas pains (before eating the ceviche). This was due I believe to eating Baby Bell cheese.

Thanks for any input.

From,

A confused, guilty, and overwhelmed mother


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



biancanera Newbie

Depending on how sensitive she is, even just a bit of seasoning can definitely bring it back. I've been gluten free about a month now and the longer I'm off it the more sensitive I am. Even my lotion with oat oil gave me hives this week, and I found I can't even use the microwave at work anymore without feeling stomach pain for a few hours after. I guess the tiny specks in the heated nuked air is enough to make me really sick too. Which really stinks because then I have to make the choice to have stomach pain OR eat cold food all eight hours of the day.

GF Doctor Newbie

Hi,

You are doing the best you can to keep your daughter from harm.

But the details of following a gluten free diet are something that can take time to learn.

Yes, just a bit of gluten in a seasoning is enough to set off the reaction you have seen.

Yes, you have to be that diligent in asking questions in a restaurant, the "typical" recipe for a classic dish can be morphed by the creativity of a chef.

I'm so sorry she is feeling so awful. Keep lots of fluids going for her with a bit of electrolytes to replace the fluid loss from the diarrhea.

Dr. Jean Layton

NHyogagirl Rookie

Wow, that is too bad about the microwave! Can you cover the food before you nuke it? I usually cover with a paper towel.

Thank you for the info on sensitivity.

sa1937 Community Regular

For most of us microwaves are not a problem as long as we cover our food. I always do that at home, too, as certain things can create quite a mess (think explosion).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,698
    • Most Online (within 30 mins)
      7,748

    HBVB
    Newest Member
    HBVB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Sounds like your doctor is not very knowledgeable about celiac disease and may not be supportive of your efforts to run this down. Unfortunately, there is still a lot of ignorance in the medical community with regard to celiac disease. He/she may not even know what tests to run. Those of us who have been on the celiac journey for sometime have come to realize we need to be our own advocate and need to be appropriately assertive in order to get proper testing done. So, when the day comes for the appointment, here are some recommended tests you should discuss with your doctor that are celiac specific: At the bare minimum, the doctor should or: 1. total IGA. This test checks for IGA deficiency. If you are IGA deficient, then next test, #2 below, will give falsely low scores and may produce a false negative. 2. tTG-IGA This is the centerpiece of celiac disease testing and is the most popular test run by doctors. If  the doc is willing, ask for these in addition: 3. DGP-IGA 4. DGP-IGG 5. tTG-IGG These five tests would constitute a fairly complete celiac panel and give fuller picture. What one test may miss another may catch. Here is an article giving an overview of celiac disease blood antibody testing, the relative sensitivities and accuracies of each test. The one test mentioned in this article I did not include in my list is the EMA which is not used often anymore. It is expensive to run and has largely been replaced by the tTG-IGA. One other thing to be aware of and that is if there are positives in the antibody testing, you likely would get a referral to a GI doc who may want to do an endoscopy with biopsy of the small bowel lining to confirm the antibody testing results. You would needs to still be consuming gluten for this one as well.
    • trents
      I question your terminology. I believe "gluten intolerance" is used as a synonym for celiac disease in most circles today whereas "gluten sensitivity" is used of NCGS (Non Celiac Gluten Sensitivity) though you still see a lot of inconsistency in how the terms are deployed.
    • cameo674
      Because of my brother’s supplement regime and my and my husband’s known gene mutations, all of the kids (26,28,30 - I should not call then kids) take PureTherapro RX Methyl Multi without iron, the MagTech magnesium supplement with 3 forms of magnesium, and D3.  I am still trying to find a Fish Oil supplement for them that comes in smaller size capsules.  I take the Metagenics lemon flavored Fish Oil Epa Dha 1000mg gels and the kids call them horse pills.  They want something 1/2 that size bur don’t have a fishy taste. 
    • growlinhard1
      Thank you for the response. I didn't think of  the things you presented but they make a ton of good sense. I'm in the USA so no stipend for a formal dx. With the added cost of gluten free food, I wish there was some program to help. I bought a loaf of gluten free bread that cost $7.99 and my usual multi grain is $2.57!  I REALLY felt the doctors taking you more seriously comment. That is a huge issue. I just had fairly extensive blood work done, none of which was testing for celiac, and everything came back normal. I felt completely dismissed by my doctor even though my symptoms remained unchanged. As a matter of fact, Celiac disease wasn't even on my regular doctors radar. I think after studying the symptoms and comparing them with my symptoms that should have been one of his top differential diagnoses. I will follow your advice and wait until after the bx to begin eating gluten free. I'm fairly certain of the diagnosis at this point because 4 days of no gluten has made a difference. I feel somewhat stronger, nowhere near as anxious or irritable, urinating every 2 hours instead of every 30 minutes to an hour and much less nausea.  If anybody has any other words of wisdom, advice, really anything, please let me know..I'm kind of alone in this.
    • knitty kitty
      Yes, some people with Celiac do react to quinoa.  I know i do.  Apparently, two different "breeds" of quinoa can stimulate the immune system. Read here... Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease https://pubmed.ncbi.nlm.nih.gov/22760575/#:~:text=Cultivars Ayacuchana and Pasankalla stimulated,for patients with celiac disease. And some of us react to corn (maize) as well. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients https://pubmed.ncbi.nlm.nih.gov/24152750/   P.S. @Brook G have you thought about getting a genetic test done for known Celiac genes?  
×
×
  • Create New...