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Gi Symptoms And Canker Sores After Going Gluten Free


chi1968

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chi1968 Rookie

I was diagnosed by "accident" with Celiac. One of my sons had a test for Celiac disease during a routine screening for growth and development issues. When he was diagnosed, we were all tested. I, and one other child, came back positive. None of us had any symptoms, at least the "classic" GI symptoms.

Now, for years, I had canker sores, off and on, some years worse than others. But, I remember a particularly bad year when I had them maybe 4 times, probably after my 2nd son was born. My dentist told me it was a virus and prescribed Valtrex. Nothing seemed to work until I stopped using flouride toothpaste. Why this worked was a mystery to me since I also used a flouride mouth rinse with no issues. The theory that is was some sort of additive in the toothpaste.

Then, years later (recently), when I was looking into the symptoms of celiac and saw that canker sores were a symptom, I thought I had found the answer.

Well, I've been gluten-free for just over 3 weeks. Like others I've seen on the board, I experiences a few days of withdrawal symptoms, when I felt tired and had migraine-type headaches. But, after about 4-5 days, I felt better and the bonus was that I no longer felt tired when I woke up in the mornings. No longer did I feel like I hadn't slept a wink when I supposedly had gotten 8 hours of sleep. This, if anything, was probably my only noticeable celiac symptom (that I'm aware of so far).

About a week and a half ago, I ran out of my toothpaste and started using one we had around the house. Within a few days, I got three canker sores. I finally put two and two together and realized that it could be the toothpaste. I stopped using it, finally got my old brand back, but the canker sores just are not going away!

Also, like I said above, before going gluten free, I didn't have any noticeable GI symptoms. But, now, even though I don't have diarrhea, I have VERY loose stools. Sorry to be so gross. But, there is just no form at all. Why would this be? Is it from some other issue? Like before, eating gluten made me slightly constipated, but not really, enough to have more solid BMs, and now that I'm off, some other issue I have is causing them to be the opposite?

Sorry to be so gross.

But, I feel like I have reverse celiac or something. Like, I had no symptoms before going gluten-free (other than a positive blood test, confirmed biopsy, and maybe feeling tired). And, now that I'm off of gluten, the symptoms are all starting to appear. What gives?


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AVR1962 Collaborator

I was diagnosed by "accident" with Celiac. One of my sons had a test for Celiac disease during a routine screening for growth and development issues. When he was diagnosed, we were all tested. I, and one other child, came back positive. None of us had any symptoms, at least the "classic" GI symptoms.

Now, for years, I had canker sores, off and on, some years worse than others. But, I remember a particularly bad year when I had them maybe 4 times, probably after my 2nd son was born. My dentist told me it was a virus and prescribed Valtrex. Nothing seemed to work until I stopped using flouride toothpaste. Why this worked was a mystery to me since I also used a flouride mouth rinse with no issues. The theory that is was some sort of additive in the toothpaste.

Then, years later (recently), when I was looking into the symptoms of celiac and saw that canker sores were a symptom, I thought I had found the answer.

Well, I've been gluten-free for just over 3 weeks. Like others I've seen on the board, I experiences a few days of withdrawal symptoms, when I felt tired and had migraine-type headaches. But, after about 4-5 days, I felt better and the bonus was that I no longer felt tired when I woke up in the mornings. No longer did I feel like I hadn't slept a wink when I supposedly had gotten 8 hours of sleep. This, if anything, was probably my only noticeable celiac symptom (that I'm aware of so far).

About a week and a half ago, I ran out of my toothpaste and started using one we had around the house. Within a few days, I got three canker sores. I finally put two and two together and realized that it could be the toothpaste. I stopped using it, finally got my old brand back, but the canker sores just are not going away!

Also, like I said above, before going gluten free, I didn't have any noticeable GI symptoms. But, now, even though I don't have diarrhea, I have VERY loose stools. Sorry to be so gross. But, there is just no form at all. Why would this be? Is it from some other issue? Like before, eating gluten made me slightly constipated, but not really, enough to have more solid BMs, and now that I'm off, some other issue I have is causing them to be the opposite?

Sorry to be so gross.

But, I feel like I have reverse celiac or something. Like, I had no symptoms before going gluten-free (other than a positive blood test, confirmed biopsy, and maybe feeling tired). And, now that I'm off of gluten, the symptoms are all starting to appear. What gives?

It was the same for me, have not really understood it myself. There were a few things that as I look back now I can relate but nothing was just obvious and evident. I was not the typical case that is printed in textbook with all the issues with the stomach. I was having issues for the last 3 years but they were mild, I was not losing weight, if anything I was gaining. Docs had no clue.

I had become so tired, sleeping 10+ hours a night and I finally decided to do a liver cleanse to see if maybe I could raise my metabolism. And that when my system went nuts. Docs felt I had reacted to the herbs but what was uncovered was my under-lying health issues. So the way I make since of this is it is like a pressure cooker in your body. We can hold this in our system and it can be inactive for a long long time but when it decides to flame you then finally have issues. I think for me, stress finally was the trigger.

It's been a year for me now since I got real sick, have been on a gluten-free diet for 10 months and while alot has gotten better, I am still putting out fires in my body, waiting for the day when this all settles and I can hopefully live without the constant attacks.

chi1968 Rookie

What's weird is -- I eat pretty clean. A lot of protein (chicken and egg whites), veggies, salads, and I try to steer clear of gluten-free "substitutes" except in moderation. But, last night, I indulged on some gluten-free pretzels (about 20?), and my system was more normal today. You would think it would be the opposite. That my body would react differently if I ate a lot of the "bad for you" gluten-free junk.

Also, even though I had switched to non flouride toothpast, I was using a mint kind. Last night, I broke down and opened my normal cinammon one, also flouride-free. And, wouldn't you know? Today, I woke up and the canker sores were 80% gone!

Weird!!!

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    • trents
      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw test scores without reference ranges are not necessarily helpful as different labs used different reference ranges. Here is an article that describes the various antibody tests that can be ordered when checking for celiac disease: As you can see, there are IGA tests and there are IGG tests. What are your symptoms? There is another gluten disorder known as Non Celiac Gluten Sensitivity (NCGS) that shares many GI symptoms with celiac disease and is 10x more common than celiac disease. There are no tests for NCGS so celiac disease must first be ruled out by formal testing.
    • Nikki03
      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200 symptoms on a growing list. And many of them present as non-GI related.
    • fritz2
      Well, as much pain as gluten has caused in the past, there's no way in hell I'm taking gluten on purpose.  What is NCGS?  And are there any remedies to quickly get over the swollen joints? My joints are swollen and hot to the touch and hurt.  For about two weeks they were too painful to even think about using them.  Six weeks later, I still can barely use my hands.  I struggle to get a bottle cap unscrewed they hurt so badly.  Edema in my legs and the knees hurt to walk.  And that was probably a minor exposure as the wheat was listed towards the end of the "contains" list in very fine print we couldn't read without a magnifying glass.
    • Pat B
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