Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rotation Diet


cait

Recommended Posts

cait Apprentice

I'm working with a nutritionist due to ongoing fatigue and other symptoms after removing all of my obvious triggers. I've been gluten-free since May, and removed corn, soy, and dairy after doing an elimination diet this fall. Haven't trialed oats yet since I suspect it wouldn't go well. Was vegetarian until fall, when it became clear I needed to add in other protein sources, and still haven't added in red meat. Not sure I can go there yet, and not sure how my body would react since I haven't had red meat in about 20 years. In the last consult, my nutritionist suggested doing a rotation diet to keep me from developing issues with other foods. How likely is this? I'm not anxious to make food any more complicated than it already is, but obviously I don't want to add to the list of foods I can't tolerate. I was sort of hoping that over time I could add things in rather than taking more away. Any opinions/experiences?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I agree with your nutritionist,Rotating foods especially while healing would be most helpful.At one point my safe food list was very ,very short <_<

With healing,I have over time been able to add back many foods and most others I can tolerate as long as I rotate them.

Rotating foods like nightshades,corn and legumes is the only way I can tolerate them.

I was vegan for most of my adult life.I started having issues with legumes and sea food was out of the question (because of my DH) so I also had to add meat sources of protein to my diet. I find that ground meats are much easier for me to swallow and digest than meats that are not ground.

Newbee Contributor

I've read that doing a rotation diet is a good idea as you can develop other food intolerances if you eat them regularly. I've thought about trying this diet but can't figure out how to make it work just preparing food for one person. Good for you for taking so many other things out of your diet besides gluten. I want to try that eventually.

mushroom Proficient

I am one who should have rotated but didn't. I lost many more foods than the gluten, soy and corn that I started with because of this, particularly when I quit nightshades for inflammatory reasons. Ate too many green beans and peas, and too much citrus. I am planning on trialling some of those foods this summer.

I ate out at a gluten free lunch prepared in a house normally occupied by gluten eaters (the house-sitter was hosting), and got zapped. I am still trying to figure if it was a hidden bad ingredient for me or if it was a gluten pan or utensil that got me. There was a 'mystery" quiche that might have been the problem and it makes me concerned about my planned trial :unsure:

missy'smom Collaborator

I am one who benefits from rotation. It is not a situation where you have to lose the foods you have now. You can keep all that you tolerate now AND add some back. There are templates/papers that you can fill in to help keep track, otherwise I could never if I didn't have it all written down.

I should have rotated sooner, but I didn't know about it. I lost SO many foods. I don't know that we all need to, but some of us do need rotation. You are lucky to have someone who will help you and work with you on it. It is not the easiest thing so it is good to have help. But I came to it with a considerable list of avoids to start with so I struggled emotionally. I put myself on one after my allergist told me he could do no more for me and I was miserable. But I am on the lookout for someone who can help me get back on one again because I think I still need to be. I developed a few more allergies and got overwhelmed and life got in the way and I dropped it. I'd do better if I could check in with someone from time to time.

I've been a veggie wannabe my whole life but I need the meat in my diet. I too do better with ground meats, poultry and fish. If you increase it slowly and consciously, you may do well. That's what I did. It really helped with my blood sugar, weight and overall well being. I still don't love it, but my body clearly works better with it so I made my peace with what forms I could tolerate.

Juliebove Rising Star

My daughter and I did the rotation diet with some foods. It is tough. The worst part is that other people don't understand it. They would make fun of is. They would say things like, "Is this a dairy day?" They couldn't understand why we could eat dairy on some days and not others. And why we couldn't make exceptions for holidays. In the end, we both realized that we were sneaking dairy on other days and we weren't getting sick from it.

That being said, I do try to give us as much variety as I can with our meals. I try not to make the same things too often in one week.

It's especially tough for me because I am one of those people who is content to eat the same things day after day. But I know that I can't do that.

When my daughter was diagnosed with the IgG peanut allergy, she switched to almond butter. Now she has an IgG allergy to almonds. So I do know first hand that it doesn't work to eat like I would.

cait Apprentice

Sigh. You all make a good case for it. As soon as we figure out how to do it, I will. I won't like it though. So there!

This seems to be bringing up all of the rage I didn't have about giving up gluten and other foods as I discovered additional issues. I've already had to cut out so many of the things I liked that the idea of not being able to have the few things I do still enjoy whenever I want them makes me furious. And it's already so hard to eat that complicating it further just makes me want to cry. I'll get over it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

...I've already had to cut out so many of the things I liked that the idea of not being able to have the few things I do still enjoy whenever I want them makes me furious. And it's already so hard to eat that complicating it further just makes me want to cry. I'll get over it.

A lot of us go through a grieving process (or 'rage' process, heh), especially when we start losing a lot more foods than just gluten. People who don't have to do that frequently don't 'get' it.

It's hard. It's something we will have to confront many times a day, on a daily basis, for as long as this lasts (some of it forever). And it affects social situations, our cooking, our tastes, our sense of comfort - it IS a loss of something that usually matters to us, so I really think it's perfectly justified to feel upset about it.

I know I had a few crying jags here and there over foods I had to stop eating, usually on a really crappy day. But they happen a lot less now (it's been a little over 2 years for me, now). I decided I would just learn to cook awesome food that didn't use these ingredients - uh, yeah, that still needs a little work, LOL. But it feels more hopeful now, at least, rather than overwhelming and upsetting.

Re: the rotation diet - I think a challenging part of it is that it's hard to tell if you need one until it's too late, and you've just lost a food. So the better safe than sorry schtick definitely applies. I went on a rotation diet, too, but had so many problems with foods and getting sick from them that I literally got down to a handful of foods I could eat. I ate the same foods, for every meal, for 8 months - never became allergic to a single one of them.

But then with some new foods I added from food families I had allergies in, I slowly became allergic to the entire food family. So the rotation diet wasn't needed for me for my basic foods, but perhaps if I had not been trying foods in that one family so frequently, I might have avoided increasing my allergies there. Just no way to tell, I don't think.

mushroom Proficient

My personal opinion (and perhaps experience, it's hard to say) is that if you react to a food in one food family, and then another food in that same family, it's best to cut out the whole family right away, and avoid aggravating your body with all the other family members. I think you will heal more quickly and possibly regain that family of foods more quickly (if you are going to be able to regain them, that is - some of them might be permanent :( ) I am hopeful of regaining legumes and citrus, and am going to try some frresh homegrown tomatoes this summer. I really miss potatotes and all the yummy dishes you can create with them, but they can wait..... they gave me hives, and tomatoes killed me in other ways so I didn't even test what eggplant did to me after that discovery. That's still to come sometime in the futuer. And when I do, it won't be more often than every 4-5 days.:)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      7

      Question

    2. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      7

      Question

    3. - Tuba1971 replied to Pat B's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      FDA says that most drugs are gluten-free???

    4. - PA Painter replied to PA Painter's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      NCGS Diagnosis

    5. - Viroval replied to Nicbent35's topic in Related Issues & Disorders
      13

      3 year old gluten intolerance?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,752
    • Most Online (within 30 mins)
      7,748

    miikarochan
    Newest Member
    miikarochan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      endomys is, aka, "EMA" and is a celiac disease antibody test. It was negative. gliaiga is, aka, IGP-IGA, is also a celiac disease antibody test. It was negative. TRANSGLUA is, aka, TTG-IGA, another celiac disease antibody test. It was in normal range. tranigg is, aka, TTG-IGG, still another celiac disease antibody test. It was high, or above normal range. immaqnt is, I believe, what is also known as "total IGA" and at 160, looks to be in normal range since it wasn't flagged otherwise. This is a test for IGA deficiency. If someone is IGA deficient then all other IGA test scores cannot be trusted as being accurate. You are not IGA deficient. Here is a primer explaining the various tests that can be used to diagnose celiac disease: Celiac disease blood antibody testing is not valid when someone has been gluten free or eating low gluten for a significant period of time. The IGA tests are more specific for celiac disease than are the IGG tests but your slightly high TTG-IGG test score could reflect that you have celiac disease and have had low level exposure to gluten over time or a recent exposure. You could also have NCGS (Non Celiac Gluten Sensitivity).
    • fritz2
      I'm 70, had gut issues my whole life.  15 years ago my grandchild was diagnosed with celiac.  Since I had a constant either constipation or diarrhea and what the doctors thought was fibromyalgia and other issues I decided to see what happens if I quit gluten.  I got a lot better.  BTW, 30 years ago I had head & neck cancer, the radiation destroyed my thyroid.  I suffer from chronic fatigue and have to take synthroid. A few months ago, I bought a bottle of Ice water, I was thirsty and all they had at the motel was this.  It said sugar free and had a bunch of vitamins.  I couldn't read the fine print so I thought it's safe, so I bought several bottles (it had sucralose and maltodextrin in it).  I thought one per day would be ok and it absolutely was delicious.  In the meantime, my wife found some links and bratwurst for breakfast, we didn't know it had wheat in it and we picked up a half gallon of her favorite ice cream and unknown to us they had changed the formula and added wheat.  I had several meals and several bottles before I realized something was wrong.  Did all the sugar add to the issue?   In a day, I wasn't feeling well, my joints started swelling.  In a couple days, I thought sure I had gout in both hands.  In three days, I needed help to stand up or sit down, the pain was extreme.  I went to the emergency room.  They took blood and gave me cholchistine to alleviate the gout, it did nothing.  I didn't get a report on the test.  The next week the doctor ordered more blood tests and it's all acronyms but a couple items on celiac were listed as high.  The nurse I asked about the report had no clue and the RA was negative.  This has been ongoing for over a month and only now am I able to use my hands, but it's painful. Under the Celiac labs headline it says:  endomys-Negat gliaiga-  5 gliaigg-  1 TRANGLUA -3 tranigg-  8  (high) immaqnt-  160 Rheumatoid factor <12 Thyroid stimulating hormone: 2.81 Does anyone know what this means?
    • Tuba1971
      I had been glutened from somewhere since I pretty much make all my food from scratch. I had to have an endoscopy which should gluten damage, had blood work which also indicated high gluten. 4 years ago when I had these tests my gluten levels were all in good alignment. It comes down to my levothyroxin accord brand that must have gluten in it. I switched to synthroid 3 weeks ago and have been doing much better and am able to sleep at night again.
    • PA Painter
      That somes it up. It is worth mentioning GliadinX does not reduce symptoms for me at all. I also react to banana, avacado, cabbage, Oatmeal, and pecans among other things. If anyone else out there is like me, I had to eliminate gluten and all processed food before I could start to heal. I wish I had know this a long time ago. Thanks for the acknowledgement.
    • Viroval
      Thanks for sharing this detailed explanation. It’s really helpful to understand the differences between celiac disease and gluten sensitivity. I had no idea that gluten withdrawal could feel similar to addiction, and it’s great to have that context when considering how it affects people. It’s also good to know how important it is to continue eating gluten for accurate testing. I’ll keep all of this in mind!
×
×
  • Create New...