Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Took Gluten Out And Feeling No Pain


addis001

Recommended Posts

addis001 Apprentice

So my liver is normal

My poop is normal

My colonoscopy was normal, camera down the throat was normal

The GI calls it IBS... Yeah right...

The pain is only on my right side under my right rib.. My biggest 3 concerns is gluten sensitivity/allergy, a stone in bile duct (no gallbladder), and Sphincter of Oddi Dysfunction(happens when you've had gallbladder removed).

My Grandmother has Celiac. And my aunts and cousins on that side have horrible food allergies.. My brother is allergic to shellfish of all things..

I did Gluten free for about a month now.. and the pain is gone.. I have it once in awhile when I am not careful, because I'm not totally gluten free, just avoiding anything potentially gluten. Basically eating Chicken, rice, rice cakes, fruits, vegetables were just added, V-8 juice, and a few other things. But I have cheated once or twice and felt the pain return. So I hope its not in my head and this might solve my mystery pain, diarrhea, nausea etc...

I see my new GI next Monday.. he is amazing and a wonderful listener.. So I'm hopefully going to get the help i need soon..

Do you think I need to get recommended an allergist? Or stick with GI more?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cathlaur Newbie

WOW we could be twins. I am shocked. My Dr had me tested for Celiac and everything came back no. I still had pain on the right side under the rib just like you. She said she thinks it is still Gluten. I have been Gluten free for a month AND OMG I feel awesome. The pain is gone for the most part. I cannot believe it. Who would have thought. So I guess I have a Gluten Intolerance. SO this is how I am eating. I do not find it that hard probably because I do not have to worry about cross contamination.

What a pleasure to feel better. I was so skeptical that this is what it was!

So I am happy to know I can control the pain that was taking over me every single day.

Good luck

Katie

So my liver is normal

My poop is normal

My colonoscopy was normal, camera down the throat was normal

The GI calls it IBS... Yeah right...

The pain is only on my right side under my right rib.. My biggest 3 concerns is gluten sensitivity/allergy, a stone in bile duct (no gallbladder), and Sphincter of Oddi Dysfunction(happens when you've had gallbladder removed).

My Grandmother has Celiac. And my aunts and cousins on that side have horrible food allergies.. My brother is allergic to shellfish of all things..

I did Gluten free for about a month now.. and the pain is gone.. I have it once in awhile when I am not careful, because I'm not totally gluten free, just avoiding anything potentially gluten. Basically eating Chicken, rice, rice cakes, fruits, vegetables were just added, V-8 juice, and a few other things. But I have cheated once or twice and felt the pain return. So I hope its not in my head and this might solve my mystery pain, diarrhea, nausea etc...

I see my new GI next Monday.. he is amazing and a wonderful listener.. So I'm hopefully going to get the help i need soon..

Do you think I need to get recommended an allergist? Or stick with GI more?

Roda Rising Star

Did your doctor even test you for celiac with blood work? There is also a good chance if they were not looking for celiac at the time you had your upper scope that the doctor didn't biopsy for it. Or if they did biopsy, then not enough samples were taken. For some reason doctors only like to take a couple and you need a minimum of 8-11 taken just in the upper part of the small bowel alone not counting the samples they take from the stomach and esophagus. Request a copy of all your labs and your report from your scopes. You might just be suprised by what you find or don't find.

If you want to persue more testing you need to be aware that being gluten free and even gluten light can skew the tests. Or if your done with testing continue gluten free. It sounds like it has helped already.

addis001 Apprentice

Yes being gluten free has helped my energy level, and pain..

Which is funny today and felt my back right rib, and felt a protrusion.. Definitely going to ask GI on Monday's appt.. My biggest fear is that it is a cyst of some kind..

My new GI, I'm going to ask for blood test, a new biopsy test, and a CT scan.. But after going gluten free, and being pain free, I really don't want to go back to gluten and be in pain just so they can test for it.. Its the worst pain ever!

  • 3 weeks later...
loreece Newbie

Hi everyone. I'm a new member here. I've been doing a lot of research online because so far, nothing has been found to be causing my right side pain. My pain is located below my right rib cage on the side, the back, and the front. I've had ultrasounds (abdominal and pelvic), a CT scan to check for kidney stones, and numerous blood work that all showed normal. I'm now waiting on a referral to see a GI doctor and possibly getting a colonoscopy and an endoscopy. The pain is more toward the surface of the skin and it's sharp and pinchy. It sometimes moves around and can feel it in the top of my stomach or left side. But those pains subside but the right side pain stick around. It's been over a month now and I am sick of feeling this pain daily. After reading many posts on this site, I am now wondering if I need to start a gluten free diet? Any insight and/or suggestions? Thank you so much!

addis001 Apprentice

I would try it... I was soooo tired of the pain all the time.. Not knowing how long the episode would last.. I was desperate to try anything...

Now after 6 months of TTC, I am pregnant after just one month on the gluten-free diet.. how crazy is that!!!! With my first we were pregnant on first try.. so taking this long was a surprise to both of us.. but just one month on the gluten-free diet, and we;re pregnant.. I know for sure its celiac..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,372
    • Most Online (within 30 mins)
      7,748

    Paula Andrews
    Newest Member
    Paula Andrews
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Untreated celiac disease is associated with arthritis and other autoimmune diseases which can cause such pain. These categories have research articles on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fibromyalgia-and-celiac-disease/ https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/arthritis-and-celiac-disease/
    • Paula Andrews
      Hi! Did anyone experience severe body aches prior to being diagnosed?  Last year I suddenly experienced widespread pain, completely unexplained. After numerous tests with normal results I was diagnosed with fibromyalgia in August and started taking Cymbalta, which helped about 80%. Now other than pain, I did not have any additional fibromyalgia symptoms.    In the following months I started experiencing diarrhea, to the point where it was constant. In January I was diagnosed with celiac disease and microscopic colitis after having an endoscopy/colonoscopy. I've been gluten-free since that day and recently my pain level has dropped to ZERO.  I'm starting to wonder if I even have fibromyalgia, or if all of my symptoms were celiac and colitis.  I've seen several doctors and no one suggested this, but from what I'm reading it sounds possible.  The fact that I was diagnosed with two different diseases within a few months also seems odd. Has anyone else experienced all-over body aches with celiac?  And if so did the pain end after eliminating gluten?  Unfortunately I don't know anyone who has either celiac or fibromyalgia to talk to.
    • Scott Adams
      Understood, and with any positive blood test the usual next step is a biopsy to confirm celiac disease, and this would be true even if the tTg-IgA is negative.
    • Levi
      ADA, if that applies to you, has specific procedures, guidelines, rules, and regulations for employers to accommodate employees with disabilities. Check with your company HR Dpt. As Scott has mentioned this would be a quick fix, with the protection afforded employees with disabilities through ADA there is no need for you to job hunt. Hope this helps.    Ps. Coeliac Disease is now a listed Disability in the U.S.  
    • trents
      Yes, the TTG-IGG was positive but not the TTG-IGA.
×
×
  • Create New...