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Adding Foods Back In The Diet

Michelle L

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Michelle L Apprentice
Michelle L
Posted

Hey...I know that with a gluten free diet you are supposed to be 100% or nothing at all. Right now I have been eating gluten free after I went to an allergist / nutritionist. Gluten and wheat both came up on the list of stuff I was allergic to in addition to dairy.

But, after following a strict clean diet for 1 month, I was retested and only "wheat" came up as an allergen. Gluten did not appear on the list.

So...I still am sticking to a gluten free diet for a long time, so all the damage can heal. But, since gluten did not reappear on the list...do you think that means I am not really gluten intolerant?..just wheat intolerant? I still have a feeling I am allergic to gluten, as of now, even thought it did not come up on the list.

And, I don't know if I am extremely allergic to wheat and/or how much of it I can tolerate? All I know is that it came up on the list a second time. So my question is..has anyone, after eating gluten free for a substantial time, been able to add a normal food in once in a while and felt fine?

Also, so then I am guessing I am just wheat intolerant? Is that largely different than gluten intolerant? I just was wondering about maybe having regular piece of food here and there..sometime in the future? Does anyone do that?

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burdee Enthusiast
burdee
Posted

Hey...I know that with a gluten free diet you are supposed to be 100% or nothing at all. Right now I have been eating gluten free after I went to an allergist / nutritionist. Gluten and wheat both came up on the list of stuff I was allergic to in addition to dairy.

But, after following a strict clean diet for 1 month, I was retested and only "wheat" came up as an allergen. Gluten did not appear on the list.

So...I still am sticking to a gluten free diet for a long time, so all the damage can heal. But, since gluten did not reappear on the list...do you think that means I am not really gluten intolerant?..just wheat intolerant? I still have a feeling I am allergic to gluten, as of now, even thought it did not come up on the list.

And, I don't know if I am extremely allergic to wheat and/or how much of it I can tolerate? All I know is that it came up on the list a second time. So my question is..has anyone, after eating gluten free for a substantial time, been able to add a normal food in once in a while and felt fine?

Also, so then I am guessing I am just wheat intolerant? Is that largely different than gluten intolerant? I just was wondering about maybe having regular piece of food here and there..sometime in the future? Does anyone do that?

Which test did your allergist use for gluten and wheat? If you weren't consuming gluten for a month, you probably didn't have antibodies in your blood to react to the test. That's good news, which means your gut can heal, not rationale to return to eating gluten.

Michelle L Apprentice
Michelle L
Posted
  • Author

Which test did your allergist use for gluten and wheat? If you weren't consuming gluten for a month, you probably didn't have antibodies in your blood to react to the test. That's good news, which means your gut can heal, not rationale to return to eating gluten.

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

Metoo Enthusiast
Metoo
Posted

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

I don't think you should eat gluten.

I tested positive for a gluten allergy IgE, and my family doctor said that that can be indicative of celiac, (I tested negative for the celiac blood test though). She basically said you can test positive as an allergy when you actually have celiac.

If you tested positive for gluten, then removed gluten and the test is now negative you could have celiac disease and not just an allergy, according to my family doctor.

burdee Enthusiast
burdee
Posted

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

Of oourse, you can do anything want, but you will pay the consequences. Most people who abstain from gluten for awhile, react with even stronger reactions when they eat gluten once in a while. Your body will react with even more gluten antibodies after a period of abstinence. If you had mild symptoms, you may have stronger symptoms after not eating gluten for awhile. If you just keep eating gluten, your body will be damaged enough that eventually you will get stronger symptoms or different symptoms indicative of additional autoimmune diseases.

Skylark Collaborator
Skylark
Posted

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

And you believed it? I think to answer your question you need to eat a full-gluten diet for three months and have proper celiac testing done. If you're not celiac you may be able to eat gluten occasionally if you tolerate it. If you're celiac avoidance needs to be 100%.

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    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
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      By trents · Posted

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