Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Adding Foods Back In The Diet


Michelle L

Recommended Posts

Michelle L Apprentice

Hey...I know that with a gluten free diet you are supposed to be 100% or nothing at all. Right now I have been eating gluten free after I went to an allergist / nutritionist. Gluten and wheat both came up on the list of stuff I was allergic to in addition to dairy.

But, after following a strict clean diet for 1 month, I was retested and only "wheat" came up as an allergen. Gluten did not appear on the list.

So...I still am sticking to a gluten free diet for a long time, so all the damage can heal. But, since gluten did not reappear on the list...do you think that means I am not really gluten intolerant?..just wheat intolerant? I still have a feeling I am allergic to gluten, as of now, even thought it did not come up on the list.

And, I don't know if I am extremely allergic to wheat and/or how much of it I can tolerate? All I know is that it came up on the list a second time. So my question is..has anyone, after eating gluten free for a substantial time, been able to add a normal food in once in a while and felt fine?

Also, so then I am guessing I am just wheat intolerant? Is that largely different than gluten intolerant? I just was wondering about maybe having regular piece of food here and there..sometime in the future? Does anyone do that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Hey...I know that with a gluten free diet you are supposed to be 100% or nothing at all. Right now I have been eating gluten free after I went to an allergist / nutritionist. Gluten and wheat both came up on the list of stuff I was allergic to in addition to dairy.

But, after following a strict clean diet for 1 month, I was retested and only "wheat" came up as an allergen. Gluten did not appear on the list.

So...I still am sticking to a gluten free diet for a long time, so all the damage can heal. But, since gluten did not reappear on the list...do you think that means I am not really gluten intolerant?..just wheat intolerant? I still have a feeling I am allergic to gluten, as of now, even thought it did not come up on the list.

And, I don't know if I am extremely allergic to wheat and/or how much of it I can tolerate? All I know is that it came up on the list a second time. So my question is..has anyone, after eating gluten free for a substantial time, been able to add a normal food in once in a while and felt fine?

Also, so then I am guessing I am just wheat intolerant? Is that largely different than gluten intolerant? I just was wondering about maybe having regular piece of food here and there..sometime in the future? Does anyone do that?

Which test did your allergist use for gluten and wheat? If you weren't consuming gluten for a month, you probably didn't have antibodies in your blood to react to the test. That's good news, which means your gut can heal, not rationale to return to eating gluten.

Michelle L Apprentice

Which test did your allergist use for gluten and wheat? If you weren't consuming gluten for a month, you probably didn't have antibodies in your blood to react to the test. That's good news, which means your gut can heal, not rationale to return to eating gluten.

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

Metoo Enthusiast

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

I don't think you should eat gluten.

I tested positive for a gluten allergy IgE, and my family doctor said that that can be indicative of celiac, (I tested negative for the celiac blood test though). She basically said you can test positive as an allergy when you actually have celiac.

If you tested positive for gluten, then removed gluten and the test is now negative you could have celiac disease and not just an allergy, according to my family doctor.

burdee Enthusiast

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

Of oourse, you can do anything want, but you will pay the consequences. Most people who abstain from gluten for awhile, react with even stronger reactions when they eat gluten once in a while. Your body will react with even more gluten antibodies after a period of abstinence. If you had mild symptoms, you may have stronger symptoms after not eating gluten for awhile. If you just keep eating gluten, your body will be damaged enough that eventually you will get stronger symptoms or different symptoms indicative of additional autoimmune diseases.

Skylark Collaborator

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

And you believed it? I think to answer your question you need to eat a full-gluten diet for three months and have proper celiac testing done. If you're not celiac you may be able to eat gluten occasionally if you tolerate it. If you're celiac avoidance needs to be 100%.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to suek54's topic in Dermatitis Herpetiformis
      1

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 posted a topic in Dermatitis Herpetiformis
      1

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

    4. - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

    5. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,247
    • Most Online (within 30 mins)
      7,748

    Noisette
    Newest Member
    Noisette
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    • suek54
      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
    • McKinleyWY
      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.