Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Adding Foods Back In The Diet


Michelle L

Recommended Posts

Michelle L Apprentice

Hey...I know that with a gluten free diet you are supposed to be 100% or nothing at all. Right now I have been eating gluten free after I went to an allergist / nutritionist. Gluten and wheat both came up on the list of stuff I was allergic to in addition to dairy.

But, after following a strict clean diet for 1 month, I was retested and only "wheat" came up as an allergen. Gluten did not appear on the list.

So...I still am sticking to a gluten free diet for a long time, so all the damage can heal. But, since gluten did not reappear on the list...do you think that means I am not really gluten intolerant?..just wheat intolerant? I still have a feeling I am allergic to gluten, as of now, even thought it did not come up on the list.

And, I don't know if I am extremely allergic to wheat and/or how much of it I can tolerate? All I know is that it came up on the list a second time. So my question is..has anyone, after eating gluten free for a substantial time, been able to add a normal food in once in a while and felt fine?

Also, so then I am guessing I am just wheat intolerant? Is that largely different than gluten intolerant? I just was wondering about maybe having regular piece of food here and there..sometime in the future? Does anyone do that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Hey...I know that with a gluten free diet you are supposed to be 100% or nothing at all. Right now I have been eating gluten free after I went to an allergist / nutritionist. Gluten and wheat both came up on the list of stuff I was allergic to in addition to dairy.

But, after following a strict clean diet for 1 month, I was retested and only "wheat" came up as an allergen. Gluten did not appear on the list.

So...I still am sticking to a gluten free diet for a long time, so all the damage can heal. But, since gluten did not reappear on the list...do you think that means I am not really gluten intolerant?..just wheat intolerant? I still have a feeling I am allergic to gluten, as of now, even thought it did not come up on the list.

And, I don't know if I am extremely allergic to wheat and/or how much of it I can tolerate? All I know is that it came up on the list a second time. So my question is..has anyone, after eating gluten free for a substantial time, been able to add a normal food in once in a while and felt fine?

Also, so then I am guessing I am just wheat intolerant? Is that largely different than gluten intolerant? I just was wondering about maybe having regular piece of food here and there..sometime in the future? Does anyone do that?

Which test did your allergist use for gluten and wheat? If you weren't consuming gluten for a month, you probably didn't have antibodies in your blood to react to the test. That's good news, which means your gut can heal, not rationale to return to eating gluten.

Michelle L Apprentice

Which test did your allergist use for gluten and wheat? If you weren't consuming gluten for a month, you probably didn't have antibodies in your blood to react to the test. That's good news, which means your gut can heal, not rationale to return to eating gluten.

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

Metoo Enthusiast

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

I don't think you should eat gluten.

I tested positive for a gluten allergy IgE, and my family doctor said that that can be indicative of celiac, (I tested negative for the celiac blood test though). She basically said you can test positive as an allergy when you actually have celiac.

If you tested positive for gluten, then removed gluten and the test is now negative you could have celiac disease and not just an allergy, according to my family doctor.

burdee Enthusiast

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

Before all of this started, I was eating wheat bread and bagels everyday..so I think that's where the problem started from. I was consuming a very high percentage of gluten. Especially because of the wheat bread....

I know I cannot go back to eating those things everyday, but I just didn't know if it would be possible to have a normal snack once in a while...

Of oourse, you can do anything want, but you will pay the consequences. Most people who abstain from gluten for awhile, react with even stronger reactions when they eat gluten once in a while. Your body will react with even more gluten antibodies after a period of abstinence. If you had mild symptoms, you may have stronger symptoms after not eating gluten for awhile. If you just keep eating gluten, your body will be damaged enough that eventually you will get stronger symptoms or different symptoms indicative of additional autoimmune diseases.

Skylark Collaborator

It was a holistic nutritionist / allergist....so it was a little different. She used bioenergetic testing, so it wasn't the typical allergy test done.

And you believed it? I think to answer your question you need to eat a full-gluten diet for three months and have proper celiac testing done. If you're not celiac you may be able to eat gluten occasionally if you tolerate it. If you're celiac avoidance needs to be 100%.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,225
    • Most Online (within 30 mins)
      7,748

    Paulyw
    Newest Member
    Paulyw
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.