Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed With Celiac Disease


ChristenDG

Recommended Posts

ChristenDG Rookie

So I was diagnosed with Celiac Disease on February 6th and I am rather overwhelmed right now... My doctor didn't give me a lot of information, just to get on a gluten-free diet. She gave a list of websites and I checked those out, but it just seems like a lot... At first I was super positive and thinking, "Oh ok, just change my diet, no big deal." Now though, it seems as though there is a lot more I'm going to have to change...

I've been reading, and I'm just not sure what all I should do. Do I really need seperate dishes? That's an expense I can't afford (cookware is not all that cheap...). Do I need my own seperate mayo, butter, etc.? Does my husband really need to brush his teeth before kissing me if he has eaten something not gluten-free?

Maybe it's a dumb question, but how careful should I be? And what all is necessary? I'm just feeling a little lost and I want to do things right so I can heal and finally gain some sense of normalcy, but it's just a lot to take in and I'm not sure what to do right now.

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ziva Newbie

I can relate to what you are asking because I'm new at this also and have some of the same questions. I hope you get some good information. I need it too!

ravenwoodglass Mentor

So I was diagnosed with Celiac Disease on February 6th and I am rather overwhelmed right now... My doctor didn't give me a lot of information, just to get on a gluten-free diet. She gave a list of websites and I checked those out, but it just seems like a lot... At first I was super positive and thinking, "Oh ok, just change my diet, no big deal." Now though, it seems as though there is a lot more I'm going to have to change...

I've been reading, and I'm just not sure what all I should do. Do I really need seperate dishes? That's an expense I can't afford (cookware is not all that cheap...). Do I need my own seperate mayo, butter, etc.? Does my husband really need to brush his teeth before kissing me if he has eaten something not gluten-free?

Maybe it's a dumb question, but how careful should I be? And what all is necessary? I'm just feeling a little lost and I want to do things right so I can heal and finally gain some sense of normalcy, but it's just a lot to take in and I'm not sure what to do right now.

Thanks so much!

Yes you do need seperate mayo, nut butters, butter etc. You don't need to replace dishes but you do need a seperate, new toaster and new strainer for gluten-free pastas. And yes your DH does need to brush his teeth before kissing if he is a gluten eater or drinker.

You should replace scratched non-stick cookware and cutting boards and wooden utensils.

You do have to be very careful as celiac is autoimmune and it takes very, very little to set the antibodies into action. The best way to stay safe and heal fastest is to eat whole unprocessed foods. You may go through withdrawl so if you get a bit moodier than usual for a week or two know that will pass.

It does get a bit overwhelming at first but it will be worth it in the end. Welcome to the board and read as much as you can. Feel free to ask any questions needed and I hope you are feeling better soon.

Cara in Boston Enthusiast

My nutritionist gave us this advice:

First, replace the obvious contaminated items (pasta strainer, toaster, wooden cutting board and wooden utensils.) Things that go into the dishwasher and are non-porous should be fine. If you use a toaster oven, you can continue to use it, just put your bread on a piece of foil so it doesn't touch the toaster. You do need your own condiments - anything you spread with a knife. Squirt bottles (mayo, mustard, etc.) should be fine. Don't forget to get a new toothbrush for yourself.

If after several months you are still getting glutened (and we were) you need to go to the next level. Replace non-stick pots and pans, etc.

Be careful not to share things with the gluten-eaters in your house (like a sip from his water bottle) . . .

At first we were buying products that contained no gluten ingredients. After failing the 6 month blood test (no change in son's levels) we had to also eliminate foods processed in a facility that also processes wheat. I kind of wish we had just started out with that rule and not wasted so much time getting healthy.

Some advice from me:

The gluten-free products you might purchase to replace your old favorites (sandwich bread, waffles, bagels, pasta, etc.) are all pretty void of actual nutrition. They taste good and can help make the transition easier, but don't make them a part of your long term plan. Logically I should have lost weight when switching to gluten-free (no more impulse eating while out - donuts, pizza, fast food, processed junk food, etc.) but I put on 10 pounds in 6 months! Now that I steer clear of the "replacement" food and just eat naturally occurring gluten-free food (lean meats, fruits, vegetables, nuts, rice, quinoa, etc.) I am back on track.

Don't forget to check your medicine cabinet and any vitamins you may take. I found gluten in my B Complex . . . Lipstick too . . .

The first few weeks (months?) can be hard, especially shopping. But after a while, you learn what brands are safe and you get into a groove. And your craving for bread will actually diminish . . . .

Cara

ChristenDG Rookie

Thanks so much! I know a lot of this information is already on the forum boards, so I apologise for repeating!

I just finished going through my vitamins and medications and fortunately my Super B-Complex was the only thing not gluten-free. I found this website also, which could be helpful to others: Open Original Shared Link.

Fortunately, It's just me and my husband so I think transitioning will be a lot easier than if there were children and/or other family members. I was kind of freaking out at first and thinking, "Oh my goodness! How am I going to manage?" But it doesn't seem so bad.

Thanks so much! I may become a regular around here... ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem

    2. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem

    3. - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem

    4. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem

    5. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Inhaler problem


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,820
    • Most Online (within 30 mins)
      7,748

    Charisse25
    Newest Member
    Charisse25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ann13
      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
    • trents
      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
    • Ann13
      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
    • trents
      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
    • trents
      Are you saying you believe there is gluten in the inhaler products? I mean you talk a lot about reacting to foods that are supposed to be gluten free but this thread is about inhalers. 
×
×
  • Create New...