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- trents replied to Bebygirl01's topic in Related Issues & Disorders3How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
Key word, "gluten-like". By the way, have you looked up Dr. Osborne's credentials and his background? He is a licensed nutritionist but his scientific? medical? clinical background is that of a chiropractor. He is not taken seriously by many experts in the medical and scientific community. If it is helpful to you to see these other cereal grain... -
- Nicola McGuire posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Testing
I was told by my doctor that due to high levels in bloods my son has celiacs but can do a test with biopsy etc but she said she can see the levels without this in his bloods . Is that correct -
- trents replied to Nicola McGuire's topic in Coping with Celiac Disease1
My son newly diagnosed
Welcome to the forum, @Nicola McGuire! An appointment with a dietician might be helpful. In the meantime, this article might get you off to a good start: It is easy to eliminate major sources of gluten in the diet but to arrive at a consistently "gluten-free" state is much more challenging. There is a real learning curve involved and part of that... -
- Bebygirl01 replied to Bebygirl01's topic in Related Issues & Disorders3How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
Ortiz-Sánchez JP, Cabrera-Chávez F, de la Barca AM. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients. Nutrients. 2013 Oct 21;5(10):4174-83. doi: 10.3390/nu5104174. PMID: 24152750; PMCID: PMC3820067. AND SEE: Oats Intolerance in Celiac Disease. PLoS Med. 2004 Oct;1(1):e23. doi: 10.1371/journal.p... -
- Nicola McGuire posted a topic in Coping with Celiac Disease1
My son newly diagnosed
It’s quite overwhelming receiving diagnosis my son is 14 should I have had an apt for him to discuss food etc ? I have read up a bit but have lots of questions re cross contamination
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Key word, "gluten-like". By the way, have you looked up Dr. Osborne's credentials and his background? He is a licensed nutritionist but his scientific? medical? clinical background is that of a chiropractor. He is not taken seriously by many experts in the medical and scientific community. If it is helpful to you to see these other cereal grain proteins as "gluten", I'm fine with that. The problem is, when you begin to promote that line of thinking to others, people get confused about what grains they actually need to avoid. About 10% of celiacs react to oat protein (avenin) like they do gluten (the protein in wheat/barley/rye). That is not news. But the vast majority of celiacs have no issue with these other cereal grains. If we start throwing around the term "gluten" to loosely embrace the proteins found in all cereal grains it's going to be very confusing to those just getting started who only need to avoid wheat/barley/rye. And it will also create a great deal of confusion in the restaurant industry trying to cater to that element of their customer base needing to eat gluten free. -
By Nicola McGuire · Posted
I was told by my doctor that due to high levels in bloods my son has celiacs but can do a test with biopsy etc but she said she can see the levels without this in his bloods . Is that correct -
Welcome to the forum, @Nicola McGuire! An appointment with a dietician might be helpful. In the meantime, this article might get you off to a good start: It is easy to eliminate major sources of gluten in the diet but to arrive at a consistently "gluten-free" state is much more challenging. There is a real learning curve involved and part of that is just experience. In time, you and your son will develop a sixth sense of where gluten might be hiding as you shop for food and eat out. Eating out is the biggest challenge. You will make mistakes so give yourselves some grace. It is important that your son take ownership of this new health reality as you cannot be with him 24/7.
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By Bebygirl01 · Posted
Ortiz-Sánchez JP, Cabrera-Chávez F, de la Barca AM. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients. Nutrients. 2013 Oct 21;5(10):4174-83. doi: 10.3390/nu5104174. PMID: 24152750; PMCID: PMC3820067. AND SEE: Oats Intolerance in Celiac Disease. PLoS Med. 2004 Oct;1(1):e23. doi: 10.1371/journal.pmed.0010023. Epub 2004 Oct 19. PMCID: PMC523841. AND ALSO SEE: Bascuñán KA, Orosteguí C, Rodríguez JM, Roncoroni L, Doneda L, Elli L, Araya M. Heavy Metal and Rice in Gluten-Free Diets: Are They a Risk? Nutrients. 2023 Jun 30;15(13):2975. doi: 10.3390/nu15132975. PMID: 37447301; PMCID: PMC10346754. Celiac disease is one of the most common autoimmune gastrointestinal diseases; over the last decades, its prevalence indicates a mean annual increase in frequency currently calculated at 7.5% per year [23]. celiac disease is triggered by gluten present in the diet and the disease involves autoimmune and inflammatory damage to the small intestine in genetically susceptible individuals. To develop celiac disease a person must inherit the genetic predisposition; however, about one third of the population carries the risk genes and only ~1% of the population develops the disease, indicating that genetics is not sufficient to explain the condition. The environment participates by providing the triggering factor, i.e., gluten, and the disease is activated by environmental factors which, until now, have not been fully understood, among which changes in eating habits and the intestinal microbiota are considered to be significant factors [24,25]; yet, current knowledge is insufficient to explain the mechanisms involved. Currently, the only treatment for celiac disease is a GFD for life. AND ALSO SEE: Dr. Osborne: Although rice is considered gluten-free based on the definition set forth by the FDA, rice does contain a different form of gluten prolamin called orzenin. In my experience, those with known celiac disease or non celiac gluten sensitivity issues do better when avoiding rice. -
By Nicola McGuire · Posted
It’s quite overwhelming receiving diagnosis my son is 14 should I have had an apt for him to discuss food etc ? I have read up a bit but have lots of questions re cross contamination
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