Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Surprise Mystery Glutening

Poppi

Recommended Posts

Poppi Enthusiast
Poppi
Posted

I have always said that the worst part of celiac is not being able to just go out for dinner or enjoy all the dishes at a potluck or be spontaneous about eating out.

I was wrong.

The worst part of celiac is having sudden, painful, explosive diarrhea at someone else's house.

I felt some ominous rumblings in my tummy last night but shrugged it off and went to go knit at a friend's house. Big mistake. The only silver lining is that she suffers from IBS so she understood and gave me some immodium so I could make it back home at least.

I haven't left the house in 2 days until last night. My kitchen is gluten free. The only source of gluten I can think of is the chicken feed. I generally don't touch their food but yesterday I had to pick up a chicken and wash her face because she had some dirt crusted on her comb and I wanted to make sure it wasn't dried blood. Perhaps some dust from their food got on my hands and wasn't washed off well? Who knows.

What is interesting is that my reactions used to be purely inflammatory. My joints and back would flare up and the burning pain would last for days or even weeks but I had almost no digestive reaction. Now I notice that my reactions are almost purely digestive. The crappy part (no pun intended) is that the reaction is sudden and horrible but the good part is that it's over by the next day and I feel better faster than I did before. Is that common?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


newlifeforme Newbie
newlifeforme
Posted

Thank God I'm not alone. I have been asking about feeding my animals for 2 months and no one has replied. I thought maybe it was all in my head. I feed 4 horses, 2 dogs, 3 inside birds, a ferret, a cat, and 2 ducks everyday. Some I feed twice a day. I am now feeding with a mask for horses and hold my breath while feeding all the others. Yes I have gotten gluten by feeding my animals. Yes I believe that's what got you. And I've been I your shoes for the bathroom issue too. I'm sorry. I feel your discomfort. I am very over this. My normal way of living has changed beyond my wildest dreams. I live for my animals. Wear a mask and wash your hands before touching your face. Keep in touch. Better health to you.

IrishHeart Veteran
IrishHeart
Posted

Thank God I'm not alone. I have been asking about feeding my animals for 2 months and no one has replied. I thought maybe it was all in my head. I feed 4 horses, 2 dogs, 3 inside birds, a ferret, a cat, and 2 ducks everyday. Some I feed twice a day. I am now feeding with a mask for horses and hold my breath while feeding all the others. Yes I have gotten gluten by feeding my animals. Yes I believe that's what got you. And I've been I your shoes for the bathroom issue too. I'm sorry. I feel your discomfort. I am very over this. My normal way of living has changed beyond my wildest dreams. I live for my animals. Wear a mask and wash your hands before touching your face. Keep in touch. Better health to you.

Oh hon, I am sorry you asked a question and no one answered you! :(

What section did you post in?

This subject is discussed often on here--animal feed, pet food, etc.

See the SEARCH THIS FORUM VIA GOOGLE in the upper right corner

Use that and a whole selection of similar threads will come up.

I even responded in one of those threads. My friend who raises chickens discovered (after being gluten-free for a while) that when she scattered the feed, the "dust" from it made her wheeze and get DIZZY and when she read the ingredients, she was horrified to see wheat gluten.

She wears a mask now---until the bag is finished-- and then she is searching for a different brand.

Poppi Enthusiast
Poppi
Posted
  • Author

My oldest son does all the chicken feeding but I do the vast majority of the animal care so I touch the birds quite a lot. Plus I scatter straw in their runs and nest boxes and it's msot likely wheat straw. I usually wash all my clothes right away.

IrishHeart - your friend might have a hard time getting different feed for her birds. We feed organic layer pellets and all the chicken feeds we looked at have wheat, barley, rye and/or oats. If you make up your own feed without any gluten grains you might be able to keep them alive but it would wind up being very expensive feed and it would be very difficult to get the protein/fat content just right to have them laying regularly.

The best she can do is get a very large feeder so it doesn't have to be filled often. Wear a mask when she fills it then shower and wash her clothes right after. Letting the chickens free range when possible helps too because they will eat bugs and such and won't need to be fed as often.

IrishHeart Veteran
IrishHeart
Posted

My oldest son does all the chicken feeding but I do the vast majority of the animal care so I touch the birds quite a lot. Plus I scatter straw in their runs and nest boxes and it's msot likely wheat straw. I usually wash all my clothes right away.

IrishHeart - your friend might have a hard time getting different feed for her birds. We feed organic layer pellets and all the chicken feeds we looked at have wheat, barley, rye and/or oats. If you make up your own feed without any gluten grains you might be able to keep them alive but it would wind up being very expensive feed and it would be very difficult to get the protein/fat content just right to have them laying regularly.

The best she can do is get a very large feeder so it doesn't have to be filled often. Wear a mask when she fills it then shower and wash her clothes right after. Letting the chickens free range when possible helps too because they will eat bugs and such and won't need to be fed as often.

Thanks, hon! She is pretty resourceful and has many animals and I think she has already found something else to use. I will ask her. She DOES hose herself down after feeding them, she reports. :) She has been raising various animals and birds for 35 years and never made a connection to the feed until she was gluten-free and of course, her system was clear! She thought she just had terrible allergies all these years.

GFinDC Veteran
GFinDC
Posted

Is this thread you are asking about? I saw several replies but maybe they aren't what you were looking for. There are people who keep horses on the forum so but they may not have seen your post.

Horses horses and Celiac

Anyway, here is a search link for threads about horses and feed. There are lots to choose from, maybe one will answer your question or you could post it in one of them? I know a vet back in Ohio that I could ask about gluten-free food. I don't know what the answer will be though, they may not have any idea about it.

I do know I got sick once by sitting in a pizza joint where the guy was flipping the dough up in the air and plopping it down in flour on the counter top. I didn't eat any of it either, I just sat there with some artist friends while they ate. So I do believe inhalation can makes us sick sometimes. I use gluten free food for my cat Muffin now.

Open Original Shared Link

bartfull Rising Star
bartfull
Posted

And although I don't have chickens (yet), I can commiserate with you on the D. I never used to get D from gluten until I gave it up. It was psoriasis and insomnia that prompted me to investigate celiac and try the gluten-free diet. Cured my psoriasis and insomnia, but now as well as both of those coming back, I get the emergency D when I am exposed.

Our feed store sells corn pellets for chickens. (Oats are not as nutritious for them and makes the eggs rather tasteless.) Of course I'm even more sensitive to corn than I am to gluten so I don't know WHAT I'll feed them when I get some. Living in town, roosters are not allowed (too much noise), but I'm thinking about getting a couple of hens to keep on my 50X150 foot lot. It would be great to have fresh eggs every day.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,685
    • Most Online (within 30 mins)
      7,748
    Janahawk
    Newest Member
    Janahawk
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Brook G
      Not sure if this is Celiac or just a gluten-free intolerance

      By Brook G · Posted

      People who are Celiac don't have a gluten response to Quinoa, but some people who are gluten intolerant do.  I react to quinoa just like I do to gluten.  Freddies/Kroger came out with their own gluten-free Bread and I didn't think to read the ingredients.  I couldn't figure out where I would have gotten gluten in my diet until I read the ingredients in their bread... QUINOA
    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
    • trents
      Colonoscopy with large are of inflammation

      By trents · Posted

      Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates inflammation and, over time, damages the lining of the small bowel which inhibits nutrient absorption whereas NCGS does not damage the lining of the small bowel. They share many of the same symptoms. At the end of the day, the antidote for both is to abstain from foods that contain wheat, barley or rye, the three gluten-containing grains. Some countries supply stipends and healthcare benefits for those with an official celiac diagnosis. If you live in the USA that does not apply. The main reasons for seeking an official celiac diagnosis are psychological and social. Many people have a hard time not falling off the gluten free bandwagon without an official diagnosis. They find it easy to rationalize it all away as being temporary or due to something else. When you have an official diagnosis, you tend to take gluten-free eating more seriously. Socially, family and friends are more likely to respect and attempt to comply with your need to eat gluten free if you have an official diagnosis of celiac disease. Your physician is more likely to take you seriously as well if you have an official diagnosis because there are typically other health problems that are spinoffs which develop from celiac disease in time. One autoimmune disease invites others. There are no tests for NCGS. Celiac disease must first be ruled out. We do have specific tests for celiac disease. By the way, some experts believe that NCGS can transition into celiac disease. If your endoscopy/biopsy is only a month away, I would encourage you to stick it out and go back on gluten to get an official diagnosis. You still have time to get a valid test result if you start back on gluten now, 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread.
×
×
  • Create New...