Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Super Sensitivity Exist?


weluvgators

Recommended Posts

Di2011 Enthusiast

This is an interesting thread.

I went to work at a bakery in Aug 2010 after most of life avoiding gluten subconciously (avoided breakfast, didn't like pizza/pasta etc etc). In May 2011 I got another (almost continuous by that stage) "virus" sinus infection, had almost a week off work. The first day back at work I left at the end of 6hours with DH rash all over. In hind sight the majority of symptoms where more like allergy - I'd had to repeat my asthma spray prescription repeatedly, my sinus was a mess, and I seemed to have my hayfever all year round.

But now gluten free all the allergy-typical symptoms have gone. After years of problems. A box of tissues a week to a box of tissues a month or more. But the DH is persistent as is normal for this skin condition however the community view of DH = celiac is interesting given my allergy type history. If only there was money in researching these issues. Unfortunately just taking out gluten means there is no industry interest ie finance for research.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 53
  • Created
  • Last Reply
Skylark Collaborator

Ugh, that sounds terrible!

You must not be aware of the research going into celiac. It's considered an emerging market and venture capital is pouring into it. You might enjoy checking out Alba Therapeutics, ImmusanT, and Alvine Pharmaceuticals.

It's not merely a "community view" that DH = celiac. It's a well-documented medical fact. There are IgA antibodies in a DH skin biopsy. If your rash has definitely been diagnosed as DH by biopsy, you sure do have an interesting (and uncomfortable-sounding) combo of allergy and autoimmunity. If the rash hasn't been biopsied I'd be wondering if it were a severe allergy and tracking down sources of wheat exposure!

shayre Enthusiast

Okay, I have not had time to read every post under this thread, but how do you know what ppm you are sensitive to when it's under 5ppm contamination? I have figured out that I react to any products that test only to 10ppm...and some that test to 5ppm. I appear to be okay with levels "undetected" at 5ppm, but lately all of the trouble has started again for me. I only know this by calling the manufacturers. If companies can only test down to 5ppm if they choose to go that low, then how do you know if you react to 1ppm or 3ppm, etc? I think that my body might have just reset itself more sensitive. I am going to post a related question on this now.

dilettantesteph Collaborator

how do you know if you react to 1ppm or 3ppm, etc?

I guess that if you react to a tiny bite of something tested to 10 ppm, then you can assume that you would react to a larger amount of something tested to 1 ppm, if that test were possible.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to sadiec123's topic in Coping with Celiac Disease
      4

      mental health struggles

    2. - knitty kitty replied to Sarah Marie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Bloodwork Help for my Teen

    3. - knitty kitty replied to emily 1's topic in Coping with Celiac Disease
      11

      Black Pepper Reactions

    4. - emily 1 replied to emily 1's topic in Coping with Celiac Disease
      11

      Black Pepper Reactions

    5. - knitty kitty replied to emily 1's topic in Coping with Celiac Disease
      11

      Black Pepper Reactions


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,058
    • Most Online (within 30 mins)
      7,748

    Jacqueline Segelke
    Newest Member
    Jacqueline Segelke
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      How are you doing, @sadiec123?  Did you get through the holidays alright?    Have you been checked for nutritional deficiencies?  Many newly diagnosed Celiacs  are low in Vitamin D and many of the B vitamins like thiamine.  Thiamin insufficiency can cause weight loss and loss of appetite (anorexia) as well as affect mood.   Benfotiamine has been shown to promote intestinal healing and improve mood.
    • knitty kitty
      I agree, @Sarah Marie, it's best to keep eating gluten and get on the doctor's cancellation list.  Some people have extreme symptoms when reintroducing gluten after a brief abstinence.  Be sure she consumes six slices of bread or gluten-y equivalent a day in the two weeks prior to the endoscopy.  There are different amounts of gluten in different products.  Chewy pizza crust and artisan breads have more gluten than cookies and cakes. Keep us posted on your progress!
    • knitty kitty
      Those are links to articles on this site.  I don't do Instagram either. https://www.celiac.com/celiac-disease/cross-reactivity-between-anti-gliadin-antibodies-and-proteins-in-spices-may-trigger-symptoms-in-some-people-with-celiac-disease-r5900/ And  https://www.celiac.com/celiac-disease/beyond-gluten-exploring-lesser-known-triggers-and-cross-reactivities-for-celiac-patients-r6350/  
    • emily 1
      Wow! That's really good information. I have noticed that my Celiac symptoms are ever increasingly seeming like allergy symptoms as well. Stuffed up head, horse throat post navel drip symptoms. I'm afraid I'm not sure I understand how to follow the links you sent for the expanded version of non-histamine diet? Are those Instagram addresses? Because I don't do Instagram. Thank you so much for that reply. To my knowledge, I'm okay on all of those things. Although I don't think that I've been tested for zinc. I do know when the flu's going around I try taking zinc mixed with quercetin but that seems to put my autoimmune into overdrive. As does some of these over-the-counter things which are recommended for traveling. To boost the immune to prevent sickness. Also things like echinacea and elderberry which you would think would be innocuous
    • knitty kitty
      Canker sores can be more frequent if deficient in zinc, Thiamin B1, Riboflavin B2, Pyridoxine B6, Cobalamine B12, Folate B9, iron and Vitamin D.   Following a low histamine paleo diet helps heal.  Mast cells in our body make histamine and release it as a part of the inflammation process.  Foods that contain high histamine levels can make inflammation worse.  Mast cells get "itchy triggers" and can release histamine when exposed to some spices and foods.  The vitamins listed above are also required to clear histamine along with Vitamin C.  Following a low histamine diet like @Mari and @Blue Roanand keeping a food journal like @Blue Roan does are excellent ways to travel on our Celiac journey.
×
×
  • Create New...