Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremely Personal........females Only!


Mahee34

Recommended Posts

Heather22 Rookie

Wrong board.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

For me, the cramps I feel in my legs aren't like charlie horses, more like a dull ache that starts in my low back and pelvic region, travels down the front of my thighs and continues down to my ankles. I have been telling my husband about this for ages, he gives me really good ankle rubs when I'm having this problem. I was reading about endometriosis the other day and one of the symptoms was aches/cramps in your legs and I thought OMG! that's me!

So when you took the med for 6 months and went into menopause, did you stay in menopause after you stopped the drug? While it would be a tough 6 months, I WOULD LOVE THAT!!!!!

Honestly, I used to dream of getting a hysterectomy but my mom's friend got one last year and when I heard the details, I got chicken about the whole thing. Anyway, I'll see the gyne in three weeks so maybe I'll find some good solutions.

Stephanie

hthorvald Rookie

I've had similar pain during intercourse, too, but my doc just figures it's associated with menopause -- early onset due to hysterectomy. Prior to diagnosis, I was told I had adenemyosis a cousin to endo. He's just given me vaginal hormone suppositories I use twice a week. What a hassle! If anyone can give me any info to give to him, let me know. My docs are learning about celiac disease right along with me.

Helen.

cgilsing Enthusiast

skbird and Jen

The Lupron is for the treatment of endometriosis and after your last dose it takes about 2 months to get over it and it's back to normal periods and no more hot flashes. For me it was a godsent, I was only 20 and not even dating anyone much less ready for a family. They were conserned that my fertility was at stake. It's not a cure all, the endometriosis can return. THey told me it would be seven years. It's been 5 and just now my periods are getting heavier again and my cramps are getting worse, but NOTHING like it was before! I would do it again (although unpleasent) if I had to. It's a rough 6 months, but in comparison to the monthly hell I say it's worth it!! ;)

skbird Contributor

Wow, thanks for the info. That sounds really intense, but I can understand. I'll do some research on that. Though the rough 6 months is pretty daunting.

Good to know what options exist out there.

Thanks!

Stephanie

Mahee34 Enthusiast

How do they do a test to notice that you have endometrioso?

sdore Enthusiast

Is the pain on the outside or inside?

I have cysts and they can hurt. (inside)

I went my doctor and he said that I have vestublites (that may be spelt wrong) and this hurts on the outside. It's simply another allergic reaction. I have to wear cotton, white underwear and only use detergents without any dyes or parfume. I cannot use saop with any scent. My Dr. recommended neutrogena. Also do not d%$#@#$!!! I didn't know you are not suppose to and this brought on a PID infection which is one of the worse things that I have ever experienced!! Also, use unscented and white tp, and unscented tampons.

I have been doing this for a few weeks now and I am feeling much better.

I hope this may help!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Inhaler problem

    2. - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Inhaler problem

    3. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Inhaler problem

    4. - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Inhaler problem

    5. - trents replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Inhaler problem


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,823
    • Most Online (within 30 mins)
      7,748

    Patti Sorrentino
    Newest Member
    Patti Sorrentino
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Ann13, thanks for the clarification. I think I understand your point now. Yes, I realize gluten can produce non Gi Reactions. Let us know if you find out that there is gluten in these inhalers. I have my doubts but gluten does show up in strange places. It could also be manufacturer dependent of these inhaler products are generic.
    • Ann13
      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
    • trents
      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
    • Ann13
      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
    • trents
      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
×
×
  • Create New...