Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Embarrassing Mistake


lovegrov

Recommended Posts

lovegrov Collaborator

This is sort of embarrassing to admit but maybe posting will help keep somebody else from doing the same type of thing in the future.

We were out of town a couple of weeks ago and I saw some Midel cookie gluten-free flavors I hadn't seen before, so I bought two bags. Sunday afternoon I opened the lemon ones and ate a few. A couple of hours later I developed a headache and a few minutes later was throwing up. Yep, the lemon ones were NOT gluten-free but were sitting right beside other gluten-free flavors in the store. Somehow I saw them as gluten-free when I picked them up and I never looked at the label again. It's the first time in more than 10 years I've made that sort of mistake, so it shows that experience doesn't make you immune to stupidity.

My reaction lasted only a few hours but unfortunately those few hours were during the time my wife and I were supposed to go see Chris Thile and the Punch Brothers in concert. Bummer.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

That's a good reminder to stay vigilant! I catch myself "assuming" a bit too much at times.

Glad you made a quick recovery richard. :)

alex11602 Collaborator

Glad that your reaction didn't last long.

And those Mi-del cookies are tricky ones sometimes...a store down the road from us has the wheat filled ginger ones right in between the packages of gluten free ones. My husband said something to the manager but they didn't change it.

IrishHeart Veteran

Oh no! Sorry this happened to you. Glad your symptoms resolved quickly, even though you had to miss the show.

It was good of you to share this info about the Midel cookies and to tell us even 10 -year "veterans" make boo-boos once and a while.

I made a doozy with an "alleged" gluten-free flourless cake in Dec. that gave me symptoms for 2 months. (upscale restaurant menu said it was but the bakery it came from makes many flour products, too) My bad.

Glad you are okay! :)

Silencio Enthusiast

I did the same thing with pasta in the organic section. Just assumed it was also gluten free and didn't notice it wasn't til the next time I was about to buy it.

Bubba's Mom Enthusiast

So sorry you got glutened and had to miss the show. :(

Thanks for posting your story. It will alert others to watch more carefully. I've noticed they are putting organic and gluten free items together on the shelves. We have to continue to read labels...sigh.

dilettantesteph Collaborator

Can you tell me, do you normally throw up when glutened? I don't. A few weeks ago I got really sick with a lot of throwing up to the point where I was barely conscious. My husband took care of me or I probably would have thrown up all over myself and everything around me and who knows, chocked to death.

I assumed it wasn't gluten because it was so different from my reaction to trace levels. I had no idea what it could have been. Maybe I got a big dose somehow? Is throwing up more likely to happen with a big dose?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Ugh Richard--can happen to the best of us. Just sorry you had to miss the show.

lovegrov Collaborator

I don't think that throwing up is necessarily "normal" in general, but on the 3-4 occasions that I KNOW I've gotten a decent dose of gluten, I've had a headache and thrown up. The nausea hits anywhere between 2 and 4 hours after ingesting and for a while it's fairly severe. Sometimes I have diarrhea and sometimes I don't. I also generally have some chills or sweats, which I also had for weeks before and after my diagnosis. There's no way in heck I could EVER do a challenge, not that there'd ever be any need for me to do so. I was diagnosed by blood test and biopsy.

richard

kareng Grand Master

I don't think that throwing up is necessarily "normal" in general, but on the 3-4 occasions that I KNOW I've gotten a decent dose of gluten, I've had a headache and thrown up. The nausea hits anywhere between 2 and 4 hours after ingesting and for a while it's fairly severe. Sometimes I have diarrhea and sometimes I don't. I also generally have some chills or sweats, which I also had for weeks before and after my diagnosis. There's no way in heck I could EVER do a challenge, not that there'd ever be any need for me to do so. I was diagnosed by blood test and biopsy.

richard

This cookies have almost tripped me up, too.

I think its quite common for a headache to cause nausea so if the gluten gives you a headache then you might get nausea & vomitting.

GFinDC Veteran

Easy thing to do. I used to eat Midel cookies but stopped due to soy. They do have packages that look very similar. The stores I go to do the same thing too, putting the gluten-free cookies right next to the non-gluten-free cookies. I have had to look twice to make sure which are gluten-free.

Lots of stores put the FFL Ezikiel bread next the gluten-free bread too.

faithforlife Apprentice

I've done that! I spit out a mouth full once! Lol!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,867
    • Most Online (within 30 mins)
      7,748

    Amxjo
    Newest Member
    Amxjo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Most likely cross-contamination I believe.
    • cristiana
      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
    • trents
      Welcome to the forum, @jnstefan! She should start feeling better within a week or two if she is truly avoiding gluten and if she isn't also showing intolerance to other foods. It is quite common for celiacs to be dairy intolerant (not just the lactose but the protein casein in dairy) and to oats (protein is avenin). Casein and avenin have structures similar to gluten. We call this cross reactivity (not to be confused with cross contamination). So, you might look at pulling these two food items from her diet to see if there is improvement. But achieving a gluten free state is more challenging than people realize when the first start in. It is hidden in so many foods you would never expect to find it in like soy sauce and canned tomato soup, just to site two examples. This might help:  
    • jnstefan
      My 10 year old daughter was diagnosed with Celiac 2 weeks ago. We've been on gluten free diet now for 2 weeks. She still experiences abdominal pain at times , and is struggling with fatigue. What is everyone's experience with how long it takes for the body to heal and stabilize after starting the gluten free diet? Thanks for any feedback!
×
×
  • Create New...