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Negative Biopsy

ashlee.ream

By ashlee.ream
in Meet Up Room

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ashlee.ream Rookie
ashlee.ream
Posted

but i have all of the symptoms of celiac and a positive blood test. maybe its crohns or IBD? my mom and i both think i do have celiac disease.

the GI said i dont have celiac which doesnt make sense to me.

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maximoo Enthusiast
maximoo
Posted

Did you go back on gluten prior to the biopsy? Or were you gluten-free up till the time you were scoped?

Jai Rookie
Jai
Posted

Well, I had an "inconclusive" blood test and negative biopsy (of course this was done several months post gluten-free) We had suspicions and there was no way I could continue to eat gluten while waiting for the biospy (gotta love Canada's healthcare system!)

My mother has celiac and I had 100% the same symptoms as she had. I eliminated gluten and s...l..o..w..l..y but surely I got better. My gastro felt confident in saying I had celiac based on elimination of other diseases and family history.

Tests are not perfect! Despite my results I will NEVER eat gluten!

ashlee.ream Rookie
ashlee.ream
Posted
  • Author

i wasnt eating gluten when they did the biopsy. it makes me really sick and my bones and muscles ache. ect. my mom and i say i have celiac even though the biopsy says otherwise.

Jai Rookie
Jai
Posted

i wasnt eating gluten when they did the biopsy. it makes me really sick and my bones and muscles ache. ect. my mom and i say i have celiac even though the biopsy says otherwise.

oh well, if you weren't eating gluten, then there you go! You have to be in order for the biopsy to be accurate. And do you feel better when you stop eating gluten? Do you need more of an answer than that? I've had a top GI tell me that clinical results are worth way more! He said negative biopsy and all, he considers me celiac...

ashlee.ream Rookie
ashlee.ream
Posted
  • Author

yes i feel alot better when i dont eat gluten. thank you for the reply :)

  • 2 weeks later...
Retrotea Newbie
Retrotea
Posted

I'm not doctor, obviously, but if the blood tests are positive I'd say you have celiac. If it's literally looking at your "tract" and you haven't eaten gluten then it would be negative. And I would think regardless if your blood test was positive, no matter the GI tract test, then it doesn't matter. I'm told I'm celiac and I honestly don't have many issues aside from joint, teeth issues, vitamin deficiency, passing out once in awhile and bloating/stomach aches. I bet if I had my tract checked it wouldn't be that bad and may even be negative, etc, even when I do eat gluten.

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ashlee.ream Rookie
ashlee.ream
Posted
  • Author

thank you! :)

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
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      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
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      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
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