Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs


badgerette

Recommended Posts

badgerette Rookie

I'm going nuts here. I stopped eating gluten last July, but still once in awhile I get that icky-gut feeling. I get intestinal cramps (mild), and have to poop frequently all in one day. In addition, I usually feel tired. The stools are not watery.. not the most solid, but not like bad diarrhea or anything. Is it IBS? Or do I have another food allergy/intolerance? What the heck?

I want to see a doctor about all these food issues sometime this year. What kind of doctor should I see?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

I'm going nuts here. I stopped eating gluten last July, but still once in awhile I get that icky-gut feeling. I get intestinal cramps (mild), and have to poop frequently all in one day. In addition, I usually feel tired. The stools are not watery.. not the most solid, but not like bad diarrhea or anything. Is it IBS? Or do I have another food allergy/intolerance? What the heck?

I want to see a doctor about all these food issues sometime this year. What kind of doctor should I see?

Hi Badgerette, and welcome to the forum!

I hope you start feeling better soon. Some people start developing other food intolerances. For me it was soy, dairy, corn and some of the alternate grains like gluten-free oatmeal and quinoa.

I'm ok with those foods now (haven't tried reintroducing soy or quinoa though, and probably won't). Other people have had problems with legumes and nightshade vegetables after going gluten-free.

I know it's frustrating, you have to be a food detective and try to figure out what the heck is bugging you.

Gastroenterologist is the specialty mainstream doctors refer patients with IBS to. The one I went to was a very good Doctor, but I honestly learned more on this forum then I did from him! I still see him once a year.

isasmommy Newbie

Hi,

I am new to the forums but I had a similar experience.

1) I would take the advise above and give your body time to heal and if it is still going on then try and see if other foods are the offending agents.

2) After 2 years gluten free I still had problems and the fatigue was getting worse. I just thought I needed to wait to heal. However, finally this last fall I ended up in the hospital after 2 weeks diarreah (with blood in it) and turned out my colon was inflamed. After subsequent biopsy it was found that I had microscopic colitis, basically similar to Celiac but in the colon for me instead of the duodenum (small intestine). It is a type of inflammatory bowel disease (IBD).

I am now taking entocort for the inflammation and after 2 weeks it is finally helping relieve that abdominal pain. It is probably unlikely that this is going on but my doctor did say that it is not totally uncommon to have more than one of these problems along with Celiac.

3) I would make absolutely sure that there is no hidden gluten. I went back and double checked chapstick + lotions that I use.

Lastly, if you are referred to a gastroenterologist they may say you have IBS if there are no signs of other inflammation. Also, have you had your vitamin D checked? I had a problem with that before it was too low and that was also contributing to the fatigue.

Hugs and I hope you feel better.

badgerette Rookie

Hi Badgerette, and welcome to the forum!

I hope you start feeling better soon. Some people start developing other food intolerances. For me it was soy, dairy, corn and some of the alternate grains like gluten-free oatmeal and quinoa.

I'm ok with those foods now (haven't tried reintroducing soy or quinoa though, and probably won't). Other people have had problems with legumes and nightshade vegetables after going gluten-free.

I know it's frustrating, you have to be a food detective and try to figure out what the heck is bugging you.

Gastroenterologist is the specialty mainstream doctors refer patients with IBS to. The one I went to was a very good Doctor, but I honestly learned more on this forum then I did from him! I still see him once a year.

Aha, yes, a gastroenterologist.. got it. If I meet my insurance deductible this year.. maybe... :P

Aggh I so hope I don't have other intolerance, but it's likely. My diet is already quite restricted because of the gluten and I have interstitial cystitis and I'm vegan. If I can't have legumes or anything in the nightshade family anymore... jeeeeez. Guess we'll have to wait and see! Thanks for the reply/info!

badgerette Rookie

Hi,

I am new to the forums but I had a similar experience.

1) I would take the advise above and give your body time to heal and if it is still going on then try and see if other foods are the offending agents.

2) After 2 years gluten free I still had problems and the fatigue was getting worse. I just thought I needed to wait to heal. However, finally this last fall I ended up in the hospital after 2 weeks diarreah (with blood in it) and turned out my colon was inflamed. After subsequent biopsy it was found that I had microscopic colitis, basically similar to Celiac but in the colon for me instead of the duodenum (small intestine). It is a type of inflammatory bowel disease (IBD).

I am now taking entocort for the inflammation and after 2 weeks it is finally helping relieve that abdominal pain. It is probably unlikely that this is going on but my doctor did say that it is not totally uncommon to have more than one of these problems along with Celiac.

3) I would make absolutely sure that there is no hidden gluten. I went back and double checked chapstick + lotions that I use.

Lastly, if you are referred to a gastroenterologist they may say you have IBS if there are no signs of other inflammation. Also, have you had your vitamin D checked? I had a problem with that before it was too low and that was also contributing to the fatigue.

Hugs and I hope you feel better.

Thanks for all the info! Glad YOU are feeling better. I hope I get there soon! I will double check my external stuff (shampoo, lotion, etc) thanks for reminding me!

Bubba's Mom Enthusiast

Aha, yes, a gastroenterologist.. got it. If I meet my insurance deductible this year.. maybe... :P

Aggh I so hope I don't have other intolerance, but it's likely. My diet is already quite restricted because of the gluten and I have interstitial cystitis and I'm vegan. If I can't have legumes or anything in the nightshade family anymore... jeeeeez. Guess we'll have to wait and see! Thanks for the reply/info!

Keep a log of everything you eat, along with any symptoms. Many food intolerances are delayed reaction, so having a way to know what you ate/when symptoms appeared is very important. It will help you sort out what's best for your body, as we are all different. It takes a little bit of dectective work.

There are tests for allergies, but intolerances aren't so easy. The best way to know is to keep a log.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,153
    • Most Online (within 30 mins)
      7,748

    lucianesouza
    Newest Member
    lucianesouza
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • mermaidluver22
      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive!
    • mermaidluver22
      hi, how are u now? any answers?
    • mermaidluver22
      I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-specific inflammation with no chronic features. Has anyone experienced celiac impacting their ileum as well? the gi world is so confusing! thank u ❤️ 
×
×
  • Create New...