Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs


badgerette

Recommended Posts

badgerette Rookie

I'm going nuts here. I stopped eating gluten last July, but still once in awhile I get that icky-gut feeling. I get intestinal cramps (mild), and have to poop frequently all in one day. In addition, I usually feel tired. The stools are not watery.. not the most solid, but not like bad diarrhea or anything. Is it IBS? Or do I have another food allergy/intolerance? What the heck?

I want to see a doctor about all these food issues sometime this year. What kind of doctor should I see?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

I'm going nuts here. I stopped eating gluten last July, but still once in awhile I get that icky-gut feeling. I get intestinal cramps (mild), and have to poop frequently all in one day. In addition, I usually feel tired. The stools are not watery.. not the most solid, but not like bad diarrhea or anything. Is it IBS? Or do I have another food allergy/intolerance? What the heck?

I want to see a doctor about all these food issues sometime this year. What kind of doctor should I see?

Hi Badgerette, and welcome to the forum!

I hope you start feeling better soon. Some people start developing other food intolerances. For me it was soy, dairy, corn and some of the alternate grains like gluten-free oatmeal and quinoa.

I'm ok with those foods now (haven't tried reintroducing soy or quinoa though, and probably won't). Other people have had problems with legumes and nightshade vegetables after going gluten-free.

I know it's frustrating, you have to be a food detective and try to figure out what the heck is bugging you.

Gastroenterologist is the specialty mainstream doctors refer patients with IBS to. The one I went to was a very good Doctor, but I honestly learned more on this forum then I did from him! I still see him once a year.

isasmommy Newbie

Hi,

I am new to the forums but I had a similar experience.

1) I would take the advise above and give your body time to heal and if it is still going on then try and see if other foods are the offending agents.

2) After 2 years gluten free I still had problems and the fatigue was getting worse. I just thought I needed to wait to heal. However, finally this last fall I ended up in the hospital after 2 weeks diarreah (with blood in it) and turned out my colon was inflamed. After subsequent biopsy it was found that I had microscopic colitis, basically similar to Celiac but in the colon for me instead of the duodenum (small intestine). It is a type of inflammatory bowel disease (IBD).

I am now taking entocort for the inflammation and after 2 weeks it is finally helping relieve that abdominal pain. It is probably unlikely that this is going on but my doctor did say that it is not totally uncommon to have more than one of these problems along with Celiac.

3) I would make absolutely sure that there is no hidden gluten. I went back and double checked chapstick + lotions that I use.

Lastly, if you are referred to a gastroenterologist they may say you have IBS if there are no signs of other inflammation. Also, have you had your vitamin D checked? I had a problem with that before it was too low and that was also contributing to the fatigue.

Hugs and I hope you feel better.

badgerette Rookie

Hi Badgerette, and welcome to the forum!

I hope you start feeling better soon. Some people start developing other food intolerances. For me it was soy, dairy, corn and some of the alternate grains like gluten-free oatmeal and quinoa.

I'm ok with those foods now (haven't tried reintroducing soy or quinoa though, and probably won't). Other people have had problems with legumes and nightshade vegetables after going gluten-free.

I know it's frustrating, you have to be a food detective and try to figure out what the heck is bugging you.

Gastroenterologist is the specialty mainstream doctors refer patients with IBS to. The one I went to was a very good Doctor, but I honestly learned more on this forum then I did from him! I still see him once a year.

Aha, yes, a gastroenterologist.. got it. If I meet my insurance deductible this year.. maybe... :P

Aggh I so hope I don't have other intolerance, but it's likely. My diet is already quite restricted because of the gluten and I have interstitial cystitis and I'm vegan. If I can't have legumes or anything in the nightshade family anymore... jeeeeez. Guess we'll have to wait and see! Thanks for the reply/info!

badgerette Rookie

Hi,

I am new to the forums but I had a similar experience.

1) I would take the advise above and give your body time to heal and if it is still going on then try and see if other foods are the offending agents.

2) After 2 years gluten free I still had problems and the fatigue was getting worse. I just thought I needed to wait to heal. However, finally this last fall I ended up in the hospital after 2 weeks diarreah (with blood in it) and turned out my colon was inflamed. After subsequent biopsy it was found that I had microscopic colitis, basically similar to Celiac but in the colon for me instead of the duodenum (small intestine). It is a type of inflammatory bowel disease (IBD).

I am now taking entocort for the inflammation and after 2 weeks it is finally helping relieve that abdominal pain. It is probably unlikely that this is going on but my doctor did say that it is not totally uncommon to have more than one of these problems along with Celiac.

3) I would make absolutely sure that there is no hidden gluten. I went back and double checked chapstick + lotions that I use.

Lastly, if you are referred to a gastroenterologist they may say you have IBS if there are no signs of other inflammation. Also, have you had your vitamin D checked? I had a problem with that before it was too low and that was also contributing to the fatigue.

Hugs and I hope you feel better.

Thanks for all the info! Glad YOU are feeling better. I hope I get there soon! I will double check my external stuff (shampoo, lotion, etc) thanks for reminding me!

Bubba's Mom Enthusiast

Aha, yes, a gastroenterologist.. got it. If I meet my insurance deductible this year.. maybe... :P

Aggh I so hope I don't have other intolerance, but it's likely. My diet is already quite restricted because of the gluten and I have interstitial cystitis and I'm vegan. If I can't have legumes or anything in the nightshade family anymore... jeeeeez. Guess we'll have to wait and see! Thanks for the reply/info!

Keep a log of everything you eat, along with any symptoms. Many food intolerances are delayed reaction, so having a way to know what you ate/when symptoms appeared is very important. It will help you sort out what's best for your body, as we are all different. It takes a little bit of dectective work.

There are tests for allergies, but intolerances aren't so easy. The best way to know is to keep a log.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,833
    • Most Online (within 30 mins)
      7,748

    Grandma13
    Newest Member
    Grandma13
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.