Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs


badgerette

Recommended Posts

badgerette Rookie

I'm going nuts here. I stopped eating gluten last July, but still once in awhile I get that icky-gut feeling. I get intestinal cramps (mild), and have to poop frequently all in one day. In addition, I usually feel tired. The stools are not watery.. not the most solid, but not like bad diarrhea or anything. Is it IBS? Or do I have another food allergy/intolerance? What the heck?

I want to see a doctor about all these food issues sometime this year. What kind of doctor should I see?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

I'm going nuts here. I stopped eating gluten last July, but still once in awhile I get that icky-gut feeling. I get intestinal cramps (mild), and have to poop frequently all in one day. In addition, I usually feel tired. The stools are not watery.. not the most solid, but not like bad diarrhea or anything. Is it IBS? Or do I have another food allergy/intolerance? What the heck?

I want to see a doctor about all these food issues sometime this year. What kind of doctor should I see?

Hi Badgerette, and welcome to the forum!

I hope you start feeling better soon. Some people start developing other food intolerances. For me it was soy, dairy, corn and some of the alternate grains like gluten-free oatmeal and quinoa.

I'm ok with those foods now (haven't tried reintroducing soy or quinoa though, and probably won't). Other people have had problems with legumes and nightshade vegetables after going gluten-free.

I know it's frustrating, you have to be a food detective and try to figure out what the heck is bugging you.

Gastroenterologist is the specialty mainstream doctors refer patients with IBS to. The one I went to was a very good Doctor, but I honestly learned more on this forum then I did from him! I still see him once a year.

isasmommy Newbie

Hi,

I am new to the forums but I had a similar experience.

1) I would take the advise above and give your body time to heal and if it is still going on then try and see if other foods are the offending agents.

2) After 2 years gluten free I still had problems and the fatigue was getting worse. I just thought I needed to wait to heal. However, finally this last fall I ended up in the hospital after 2 weeks diarreah (with blood in it) and turned out my colon was inflamed. After subsequent biopsy it was found that I had microscopic colitis, basically similar to Celiac but in the colon for me instead of the duodenum (small intestine). It is a type of inflammatory bowel disease (IBD).

I am now taking entocort for the inflammation and after 2 weeks it is finally helping relieve that abdominal pain. It is probably unlikely that this is going on but my doctor did say that it is not totally uncommon to have more than one of these problems along with Celiac.

3) I would make absolutely sure that there is no hidden gluten. I went back and double checked chapstick + lotions that I use.

Lastly, if you are referred to a gastroenterologist they may say you have IBS if there are no signs of other inflammation. Also, have you had your vitamin D checked? I had a problem with that before it was too low and that was also contributing to the fatigue.

Hugs and I hope you feel better.

badgerette Rookie

Hi Badgerette, and welcome to the forum!

I hope you start feeling better soon. Some people start developing other food intolerances. For me it was soy, dairy, corn and some of the alternate grains like gluten-free oatmeal and quinoa.

I'm ok with those foods now (haven't tried reintroducing soy or quinoa though, and probably won't). Other people have had problems with legumes and nightshade vegetables after going gluten-free.

I know it's frustrating, you have to be a food detective and try to figure out what the heck is bugging you.

Gastroenterologist is the specialty mainstream doctors refer patients with IBS to. The one I went to was a very good Doctor, but I honestly learned more on this forum then I did from him! I still see him once a year.

Aha, yes, a gastroenterologist.. got it. If I meet my insurance deductible this year.. maybe... :P

Aggh I so hope I don't have other intolerance, but it's likely. My diet is already quite restricted because of the gluten and I have interstitial cystitis and I'm vegan. If I can't have legumes or anything in the nightshade family anymore... jeeeeez. Guess we'll have to wait and see! Thanks for the reply/info!

badgerette Rookie

Hi,

I am new to the forums but I had a similar experience.

1) I would take the advise above and give your body time to heal and if it is still going on then try and see if other foods are the offending agents.

2) After 2 years gluten free I still had problems and the fatigue was getting worse. I just thought I needed to wait to heal. However, finally this last fall I ended up in the hospital after 2 weeks diarreah (with blood in it) and turned out my colon was inflamed. After subsequent biopsy it was found that I had microscopic colitis, basically similar to Celiac but in the colon for me instead of the duodenum (small intestine). It is a type of inflammatory bowel disease (IBD).

I am now taking entocort for the inflammation and after 2 weeks it is finally helping relieve that abdominal pain. It is probably unlikely that this is going on but my doctor did say that it is not totally uncommon to have more than one of these problems along with Celiac.

3) I would make absolutely sure that there is no hidden gluten. I went back and double checked chapstick + lotions that I use.

Lastly, if you are referred to a gastroenterologist they may say you have IBS if there are no signs of other inflammation. Also, have you had your vitamin D checked? I had a problem with that before it was too low and that was also contributing to the fatigue.

Hugs and I hope you feel better.

Thanks for all the info! Glad YOU are feeling better. I hope I get there soon! I will double check my external stuff (shampoo, lotion, etc) thanks for reminding me!

Bubba's Mom Enthusiast

Aha, yes, a gastroenterologist.. got it. If I meet my insurance deductible this year.. maybe... :P

Aggh I so hope I don't have other intolerance, but it's likely. My diet is already quite restricted because of the gluten and I have interstitial cystitis and I'm vegan. If I can't have legumes or anything in the nightshade family anymore... jeeeeez. Guess we'll have to wait and see! Thanks for the reply/info!

Keep a log of everything you eat, along with any symptoms. Many food intolerances are delayed reaction, so having a way to know what you ate/when symptoms appeared is very important. It will help you sort out what's best for your body, as we are all different. It takes a little bit of dectective work.

There are tests for allergies, but intolerances aren't so easy. The best way to know is to keep a log.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Inconclusive results

    2. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Russ H replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    5. - cristiana replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,435
    • Most Online (within 30 mins)
      7,748

    Vivien Armstrong
    Newest Member
    Vivien Armstrong
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
    • Scott Adams
      In the USA only wheat-based breads are fortified with certain vitamins, but not gluten-free breads, thus we typically encourage celiacs to take multivitamin supplements.
    • Russ H
      For people who can tolerate oats, Marks and Spencers sell a nice loaf:   https://www.marksandspencer.com/food/made-without-wheat-gluten-free-oaty-loaf/p/fdp60140058
    • cristiana
      Not much use to Canadians but if any British Lindt lovers are looking at this, give Marks & Spencer's Swiss Truffles a try - no barley but same taste.  I'm pretty sure that in a blind tasting a coeliac would not know the difference - but then again, if you want to put this to the test, get  a non-Coeliac to try this!  I don't want anyone here to get glutened! https://www.marksandspencer.com/food/swiss-milk-chocolate-truffles/p/fdp21056736
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.