Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scalp Problems

LauraZ

By LauraZ
in Dermatitis Herpetiformis

Recommended Posts

Joan D Newbie
Joan D
Posted

Hi, i am Joan, and I have been gluten free for 15 months now. Before that I used to had terrible dandruff like flakes falling from my scalp, it itched a lot and I was losing so much hair that I was worried, I tried different shampoos and vitamins, nothing seemed to help. Also my nails broke for no reason all the time. Then I was diagnosed a gluten allergy because I use to had terrible migraines. I started the gluten free diet and almost immediately my hair and nails improved so much that I couldn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Joan, you posted in a thread which is from 2005. I doubt that the original posters are around anymore. Always remember to check the dates on the threads.wink.gif

Welcome to the board Joan!smile.gif

Alwayssomething Contributor
Alwayssomething
Posted

I too have this along the back of my neck and on my scalp, sometimes behind my ears and was loosing huge clumps of hair, I have thick hair so it wasn't noticable to anyone but me, but I swear I could have made a wig or two with it.

My rash was all over my body and actually was diagnosed with a positive TPO for hos$#&moto's by an allergist, the Endo he sent me to recogonized that the rash, and the TPO and all my other issues (low vit D, anemia, low vit B etc) were all from celiac and sent me for a boipsy, the derm said no need to biopsy this is DH. So I have a diagnoises but without biopsy, but agreeded upon by two dr's, so I was very comfortable with that.

My body cleared just going gluten free, my face and scalp have been more work, all my haircare products and body products had gluten (as well as my color) so I had to change all of those. I still had episodes and gave up iodine (based on help here and the relation to hoshimoto's) and I an happy to say I am 99% clear on my face and scalp.

It is my experience that if you have a skin reaction of any sort to gluten you have to rid your life of gluten not just your diet, makeup, lotion, shampoo, conditioner, etc.

Now if I can just get all my animals foods and treats gluten free I will be thrilled (right now someone else in the family does all the animal care until I fully transfer them over)

  • 3 years later...
BeeGfree Newbie
BeeGfree
Posted

Hi.  I can't seem to find out any information about this scalp itching and the flaking off like oatmeal except for in here.  I have been off gluten for a month now and am eating Quaker rice cakes .  Had 2 today, and while I do not have tummy troubles, I do notice that the itchy skin at my elbows starts to burn and itch, and my head gets very itchy and the dandruff kind of thickens and gets very itchy.   i get this all over my head.  I can't seem to locate any info about these symptoms.  Does anyone in here deal with this from other things than wheat?

Thank You,

BeeGFree

SLLRunner Enthusiast
SLLRunner
Posted

Welcome, @BeeGfree. :)

Are you aware you responded to a thread that was started in 2005, with its last post in 2012?  I am sorry, but you may not get a response from any of those posters because they may not be around anymore..  :)

  • 1 month later...
irish11 Apprentice
irish11
Posted

Omigosh Laura Z.  What you described , describes ME perfectly this past year.  Perfect description of the scalp.  That has been my biggest problem.  And it increases late afternoon and night.  I couldnt get docs to understand that a 9 am appt would not produce that for them.

I have been through h and back.  And I am right back to where i started.  Its DH, and I don't test positive because of the low IGA I think  (I have similar to your number).  I am so upset I could scream.

 

Irish

 

  • 3 weeks later...
Kurasz Contributor
Kurasz
Posted
On 8/30/2005 at 9:33 AM, LauraZ said:

Thanks, Karen. Interesting you mention that -- Thyroid problems run in my family -- my uncles and cousins all have it. Mine has been checked and shown to be normal... Is there is another type of test that is more sensitive that I should request? My knowledge of thyroid tests is minimal...

 

Thanks!

Laura

Sounds like hashamotos disease. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jeff Platt
      - Jeff Platt replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Weird Symptoms

      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.
    2. cristiana
      - cristiana replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Weird Symptoms

      Not sure if related to coeliac disease but my ear ringing has stepped up a notch since diagnosis. Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out. Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes...
    3. Scott Adams
      - Scott Adams replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Maybe a Possibility?

      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though t...
    4. More2Learn
      - More2Learn posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Maybe a Possibility?

      Hi, I am new! (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here. I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy...
    5. Wheatwacked
      - Wheatwacked replied to GardeningForHealth's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Ground meat absolutely full of gluten?

      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass organic meat can be fed wheat feed
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,102
    • Most Online (within 30 mins)
      7,748
    Karen Linnea
    Newest Member
    Karen Linnea
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Weird Symptoms

      By cristiana · Posted

      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
    • Scott Adams
      Celiac Maybe a Possibility?

      By Scott Adams · Posted

      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though they can overlap with other conditions as well. The recurring sinus infections, being underweight as a child, chronic gastrointestinal issues, nutrient-related symptoms like cramps, and the persistent fatigue and brain fog are all things that many people with undiagnosed celiac report. Your reactions to gluten also stand out. The improvement in symptoms when you reduce or remove gluten, followed by the resurgence of pain and other problems when you reintroduce it, is a common experience for those with celiac or gluten intolerance. While your frustrations and trials with elimination diets might not have given you concrete answers yet, they’ve provided valuable clues. It’s also worth noting that celiac disease doesn’t always present in the classic way. Many people, like yourself, may not experience severe gastrointestinal distress but instead have “atypical” or extraintestinal symptoms like joint pain, menstrual irregularities, fatigue, and more. It’s a condition that can go undiagnosed for years, especially when symptoms are subtle, sporadic, or mistakenly attributed to other issues. The fact that you’ve sought alternative approaches to feel better shows just how determined you’ve been to find relief, even without a definitive diagnosis. Given your history and how your body responds to gluten, it would be worth exploring celiac disease further with a medical professional. Before removing gluten completely, it’s important to get tested while you’re still eating it, as going gluten-free beforehand can affect the accuracy of the results. A blood test for celiac antibodies (like tTG-IgA) is usually the first step, and if positive, an endoscopy may follow to confirm the diagnosis. If the testing process feels daunting, keep in mind that getting answers could give you clarity and help guide your health decisions going forward. Whatever the outcome, you’ve already made significant strides in identifying triggers and managing your symptoms. Your awareness and persistence are key, and this community is here to support you as you continue to seek answers. This article might be helpful. It breaks down each type of blood test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      Hi, I am new!  (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here.  I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy that needed an EpiPen, and I know that's not me.  However, I stumbled upon some symptoms, realized I was wrong, and after some research I'm almost shocked at what I have found.  It seems like anything I've ever struggled with has a potential correlation to this disease!  I'm in my 40's, now.  Here is my journey to date... Issues as a Kid: tons of allergies, and had sinus infections all the time... however I didn't have hayfever-like allergies and the scratch tests didn't register much, it was more that when I was exposed to allergens (like say I spent hours with a cat) I was certain to get a sinus infection and it lasted months. was extremely skinny and everyone always said I was anorexic (I wasn't) always getting sick and the illnesses hang on for a long time always cold (my favorite thing to do is sit in front of a space heater or be out in 90 degree weather) intermittent bad constipation (still happens but not as severe) horrible toe cramps that would wake me up in the middle of the night As I got older (teenage/college years): acid reflux diagnosis learned that beer made me EXTREMELY sick, cannot tolerate it horrible issues with menstrual cycle - I wasn't regular, had awful cramps and PMS, sometimes cannot function the first couple of days night terrors/sleep walking more stomach issues - I learned I couldn't have black coffee.  I often had issues especially when traveling.  For example I finally noticed a pattern that I could never, ever eat at a hotel buffet spread - it would always make me sick afterwards. More recent problems: always tired periodic pain on right side that can be so painful I can't stand up straight. Have had all kinds of scans and doctors always say I'm fine.  I was so sure I had gallstones or my liver was failing but... nope. chest pain brain fog not diagnosed but many, many ADHD symptoms lots of inflammation, am overweight now toe cramps evolved into leg/calf cramps None of my symptoms from any era of my life ever really resolved, except I went from being skinny to ~20/30 pounds overweight, and as I got older I got less outright sinus infections.  Largely due to the pain in my right side and the fact that I always, always seem to pick up every illness, especially when traveling, I started pursuing alternative medicine paths... I did the Pritikin lifestyle, I tried an elimination diet, I followed the Root Cause Protocol, I did a Leptin reset.  A lot of these paths recommend removing gluten, and in the past year or so some of my symptoms have gone away!  Specifically less issues with toe cramps, sometimes the side pain would go away for a long time, and my acid reflux got much better.  But, because I was never diagnosed with any specific intolerance, I wasn't militant about the gluten - I had cut out dairy, soy, all kinds of things.  So I would say cross-contamination is ok, or make an exception at a group outing. Then one day, I just got frustrated and ate some normal slices of pizza... and my side pain came back!  I started doing research and now I'm here and wondering... could I have actually had this my whole life??!? Thoughts and observations welcome.           
    • Wheatwacked
      Ground meat absolutely full of gluten?

      By Wheatwacked · Posted

      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass  organic meat can be fed wheat feed
×
×
  • Create New...