Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It True Anyone Going Off Gluten Will Get Sick If They Try To Eat It Again?

Omma

Recommended Posts

Omma Rookie
Omma
Posted

I've been gluten-free for 9 months now and I'm getting more and more sensitive.(And feeling better).My husband just told me today he has no intention of going gluten free with me, even though he has to be SO careful, because he doesn't want to "mess up his system". He says a friends gastrointologist (or whatever the intestinal dr.s are called)told him EVERYONE who goes gluten-free will have problems going back on!

Has anyone heard of this? Is there a chance that just simply going off of it I'm now extremely sensitive? I find this very hard to believe, but since I don't have my own dr. to ask, I'll ask it here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

If you do not have an intolerance to gluten, you can stop and start eating it at will with no symptomatology. If you develop symptoms when you resume eating gluten, it means that gluten is a problem for you on some level and you should probably avoid it. Why does your husband have to be careful about "messing up his system"? Just because of what that ignorant doctor said? If you are gluten sensitive, you WILL have problems when you resume eating gluten, probably worse than they were before, because your body was so happy to get rid of the gluten it will be upset when it returns :rolleyes: Again, a person who is not gluten sensitive/celiac can stop and start gluten at will. :)

revenant Enthusiast
revenant
Posted

Good answer by mushroom but I want to also add that there is a type of celiac disease or gluten intolerance known as "silent" celiac, or gluten intolerance, this is where it does damage to your intestines/physical body, increases cancer risk, or other problems depending on the person, but the person does not feel a difference.

BeFree Contributor
BeFree
Posted

I don't know where your husband's friend got that information, but it just plain doesn't make sense to say that "everyone" would react in the exact same way to eating or not eating any certain food. Everyone's body is different.

kareng Grand Master
kareng
Posted

Think if it like is. You don't eat watermelon all year round. You just eat it in the summer, when it's good. You haven't eaten it for 7 months and now you do, you're fine. Unless you have a problem or an allergy to watermelon or you eat too much at once, it doesn't matter that you haven't eaten it in months.

There are lots of foods people only eat once or twice a year. Maybe lobster on your anniversary. Pumpkin pie at Thanskgiving. See? If we apply that doctor's reasoning to all food, it dorsn't make sense.

Now, if hub hasn't eaten gluten in a month and he suddenly has 6 pieces of whole wheat bread in a day, he might have too much fiber.

Sounds like hub just doesn't want to be completely gluten-free at home and he's trying to find a reason that doesn't make him look selfish.

Omma Rookie
Omma
Posted
  • Author

Thanks for all the responses. I think maybe you're right about him just not wanting to go gluten-free and now he's got a good "reason". He's a firm believer that the kind of food you eat (junk versus healthy) doesn't really make that much difference. (He doesn't eat very good and is very healthy...so far)Good health is more a state of mind. Since I'm still experiencing some health issues he's not convinced gluten has been the culprit even though I suspect I've had gluten issues since age 11 and I'm now 56. That's a lot of years of damage done and a lot of healing that needs to take place.

So, I guess we'll just continue to do what we do (separate everything)and I'll continue to get better! :)

Darn210 Enthusiast
Darn210
Posted

Just wanted to add that I have done a gluten free trial diet. I have had joint issues. My daughter was diagnosed about 5 years ago. I was screened way back then but my tests came back negative. I know some people have false negatives. I know some people are gluten intolerant so will always(unless they come up with some other test) come back negative but symptomatic. So I tried gluten free for six months to see if it helped with my joints. I had no problems going off of gluten and I had no problems going back on gluten . . . and I saw no difference in my joint issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

My hub has his bread, crackers, etc. But there's no reason to cook 2 meals. He eats my gluten-free pasta. If I make cornbread, I don't make 2, I just make the gluten-free one. I do sometimes get the rolls in a can for them to eat with soup. Many meals are just gluten-free naturally. BBQ chicken, potatoes & green beans don't have gluten. Chili doesn't need flour in it. If you need to thicken it, corn starch or corn torillas work better. Tacos don't have gluten (just watch the taco or chili seasonings sometimes have four as a filler to make the packet look fuller,)

He can eat at work whatever he wants if he is going out for lunch or pick up a muffin on the way.

love2travel Mentor
love2travel
Posted

Good answer by mushroom but I want to also add that there is a type of celiac disease or gluten intolerance known as "silent" celiac, or gluten intolerance, this is where it does damage to your intestines/physical body, increases cancer risk, or other problems depending on the person, but the person does not feel a difference.

Yep - that's me! After my bloodwork I was told to go off gluten which I did for four months. Then I had to go back on for the biopsies which I wanted (as I was in denial and did not believe the bloodwork). When I went back on gluten for four months absolutely nothing happened. I did not get sick or anything. At that point I was so certain I did not have celiac but the biopsies told me otherwise. So, the gluten-free diet was difficult for me at first because I had no real motivation to do it. However, I have been super strict for about 11 months now.

Jestgar Rising Star
Jestgar
Posted

).My husband just told me today he has no intention of going gluten free with me, even though he has to be SO careful, because he doesn't want to "mess up his system". He says a friends gastrointologist (or whatever the intestinal dr.s are called)told him EVERYONE who goes gluten-free will have problems going back on!

Has anyone heard of this? Is there a chance that just simply going off of it I'm now extremely sensitive? I find this very hard to believe, but since I don't have my own dr. to ask, I'll ask it here.

My bro and his wife did a hard core elimination diet to try to determine if some food was causing his headaches. They went down to brown rice and chicken and added foods back slowly, monitoring all reactions. Neither of them had any problems removing gluten, or adding it back.

My mom did a gluten-free trial for her heartburn - again, no difference removing it, or adding it back.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,278
    • Most Online (within 30 mins)
      7,748
    Maria75
    Newest Member
    Maria75
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      What would a diagnosis tell me?

      By knitty kitty · Posted

      Blood tests for vitamin deficiencies are not an accurate measurement of vitamin stores within cells where the vitamins are actually utilized.  The brain will order cells in tissues and organs to put their stored vitamins into the blood stream to supply the brain and heart.  Deficiency symptoms can appear before there's a change in blood levels.   The eight B vitamins are water soluble.  That means they can get flushed out of your system easily with that Russian Roulette Running.  Some vitamin deficiencies have gastrointestinal symptoms that mimic Celiac Disease.  Thiamine deficiency has gastrointestinal symptoms including diarrhea.  Vitamin C is also water soluble with gastrointestinal symptoms like diarrhea when deficient.  Symptoms of a deficiency in Niacin B3 include diarrhea, and a blistering reaction to sunlight.  Have a nice vacation and keep us posted on your progress when you get back! P.S. There's not a difference between being glutened and being cross contaminated.  You'll get your usual symptoms.  The digestive tract has a limited vocabulary.  
    • xxnonamexx
      What would a diagnosis tell me?

      By xxnonamexx · Posted

      Yes that's why I'm holding off on getting tested until after the summer so no Russian roulette bathroom escapades then I will reintroduce and get tested. The vitamins aren't a supplement they are frozen fruits and vegetables that you blend with water so it's natural fruit and veggies that I have used for 5 years daily. I don't take supplements I did full vitamin bloodwork and all great levels for what I need.
    • knitty kitty
      any advice would be helpful

      By knitty kitty · Posted

      There's a Vegetarian version of the Autoimmune Protocol Diet. There are vegetables that can provide Calcium...broccoli, kale, lentils, tofu.  Talking to a nutritionist can help identify vegetables that can provide you with the minerals and vitamins you need.  Getting dietary advice is part of proper follow up care for people with Celiac disease. tTg testing is used for diagnostic purposes.  It should not be used to signify compliance or healing.  
    • knitty kitty
      What would a diagnosis tell me?

      By knitty kitty · Posted

      Ten grams of gluten per day for two weeks or longer is needed to get antibody levels up high enough so that they can be measured in the blood stream and intestinal damage can be seen in the small intestines.   HOWEVER,  only THREE grams if gluten is needed to produce symptoms...like running to the bathroom.   Some people have much worse symptoms after reintroducing gluten, even with amounts of gluten much less than three grams.  So...getting glutened or cross contamination is a real concern.   You'll be playing Russian Roulette on your vacation.   If you got vitamin levels tested while taking a nutritional shake with vitamins, you've simply measured the vitamins from the shake.  You need to be off vitamin supplementation for eight weeks prior to vitamin testing.  Were more than Vitamin D and B12 tested???  "Normal" levels of these two vitamins don't mean that you're not deficient in the other eleven essential vitamins.  Vitamin D and B12 can be stored in the body a lot longer than the other vitamins, especially the other B vitamins like thiamine. Enjoy your vacation!    
    • trents
      Elimination diet think I may be Gluten tolerant next steps to get tested? Questions

      By trents · Posted

      Mostly because of the inconsistency/irregularity of your symptoms with regard to gluten consumption and other dietary factors. Their doesn't seem to be a real pattern. Histamines are produced by our bodies themselves but they are also found in the foods we eat and the air we breathe (pollen). Certain foods, for example, fermented and aged products, are very high in histamines. Other foods, like bananas and avocados, may be high in histamines but they also may stimulate the body's production of histamines. The body (in the gut) produces a histamine regulating chemical called DAO (Diamine Oxidase). Some people, and this is more common in the celiac community because of damage to the gut lining, don't produce enough DAO to adequately regulate histamine levels in the body. This results in histamine "storms" that produce a variety of symptoms such as headaches, acid reflux and diarrhea. So, I'm just wondering if your symptoms are tied to fluctuating histamine levels that get pushed passed the tipping point at times by various things you may be eating. Anyway, you might want to research it. I also wonder if you have IBS.
×
×
  • Create New...