Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Friends Purposely Glutening Me!


Victoria6102

Recommended Posts

Googles Community Regular

You need to get your parents involved. You need to tell them about your fears about them putting gluten in your food. This is not a small issue. This is a BIG issue. The exposure to gluten causes your risk of long term consequences to increase. While the reaction to gluten isn't as fast acting as peanuts (and unless there is an allergy on top of the celiac) will not cause anaphalaxis, it doesn't mean it is any less important. Tell your parents. It is your parent's job to help protect you. I know it can be hard for teenagers to ask for help from their parents, but you need their help. This situation has gotten out of hand. Don't only talk to the youth minister, talk to your parents.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

THANK YOU!! That's exactly what I was thinking. The youth pastor should be talking to the parents of the kids who are causing you trouble. Anyone causing trouble should not have the privilege of taking outings with a Christian-centered group. It's like rewarding bad behavior, especially when it continues after the youth pastor has talked to the offending group of kids.

When you seal your food, make sure your tape doesn't overlap perfectly. Then sign and date the tape over the overlap. If they manage to get the tape off, they won't be able to align the signature back up, and you will know if they messed with it. I am suggesting this because duct tape does actually come off pretty easy if you give it the right yank. And, you can use plastic containers with duct tape if you choose.

Good idea on the signing the tape overlaps! Why did my sneaky mind not think of that! And if you wrap the tape around the container a few times & different directions .I would think it would be hard to get it back on the same without bubbles, gaps, wrinkles, etc.

Roda Rising Star

I know that despite teaching your child right from wrong it is ultimately up to them how they act when they are not with you. I hope my children would know better and would act appropriately , but there's no guarantee. If my children even thought of doing something like this to another person they would regret it big time!! As some of the other posters have stated already, what they are doing is dangerous and not to be taken lightly.

Have you ever considered attending another youth group perhaps? It doesn't sound like things have changed much since your posts last year.

I hope you can find something that works for you and also get the attention this matter deserves from the appropriate people.

  • 2 weeks later...
Victoria6102 Contributor

Ok, I am back from my trip! I made many precautions to make sure I wouldn't get glutened! I found out on this trip that the reason everyone had been talking about glutening my food lately is because my sister put flour in my pasta sauce a year ago, but I just found out now! I was so upset. My sister told me this, and then one of my friends said "I dont think you are really as sick as you think you are Victoria, and neither does anyone else." We proceeded to have a long discussion and finally I said I am not going to argue about this anymore cuz I've already told you the truth so whether or not you believe me is up to you! She later apologized but that doesn't mean she still doesn't think that. Know what I mean? Anyway, noone glutened me on the trip. I came home safe and sound and I hope everything will be ok from now on.

Skylark Collaborator

I'm glad to hear your trip went well.

Your friends, and I use the word loosely, don't understand that even if you don't have an obvious reaction to gluten there is autoimmune damage being done. Remember that true friends are the ones who respect what you say. A real friend will go to great lengths to make sure you have safe food, even if eating gluten once doesn't make you obviously sick every single time it happens.

You also need to let your parents know your sister poisoned you. You may need help making sure it won't happen again.

anabananakins Explorer

Ok, I am back from my trip! I made many precautions to make sure I wouldn't get glutened! I found out on this trip that the reason everyone had been talking about glutening my food lately is because my sister put flour in my pasta sauce a year ago, but I just found out now! I was so upset. My sister told me this, and then one of my friends said "I dont think you are really as sick as you think you are Victoria, and neither does anyone else." We proceeded to have a long discussion and finally I said I am not going to argue about this anymore cuz I've already told you the truth so whether or not you believe me is up to you! She later apologized but that doesn't mean she still doesn't think that. Know what I mean? Anyway, noone glutened me on the trip. I came home safe and sound and I hope everything will be ok from now on.

I'm late to this thread but I remembered you from last year. I'm glad you had a good trip and didn't get sick.

It sounds like your sister and your friends are irrationally jealous of any perceived extra attention you are getting, though why anyone would be jealous of something with food problems is beyond me. Oh well. It's good you and your sister talked. Hopefully she'll have a good think about what she did, and how it is hurting you. It'll serve her right if in the future she gets diagnosed too, or her children! Not that I'd wish that on your hyptothetical future nieces or nephews, lol.

  • 5 months later...
123glldd Collaborator

I haven't been able to read more than the first page of this topic so far as I have to go out but...while some people are appalled this is a religious group I am not. Nothing against the Bible or Churches..I'm not a christian anymore but ...some of the worst bullying i ever experienced was from kindergarten to grade 9 in a pentecostal school. No pun intended but ...thank GOD I went to a different high school after. Some of us know the theology of the bible better than others. These types of kids don't know the real meaning of "being saved". They are bullies and are not following the example of Jesus Christ. Just my two cents.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,821
    • Most Online (within 30 mins)
      7,748

    Maclissa
    Newest Member
    Maclissa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ABP2025
      Got it. Thanks Scott. I'll set up an appointment with a GI after the holidays and get all the celiac disease screening done. Thanks to this amazing forum and to all who have answered my question, I now know what my next steps are.
    • ABP2025
      Aah it sucks that there's no definitive way to confirm NCGS or celiac. I've found a GI clinic that is covered by my insurance and I'll contact them after the holidays to setup an appointment. I hope to get some sort of clarity with further tests. 
    • ABP2025
      Thanks @knitty kitty. I didn't know about thiamine deficiency before you had mentioned it. I'm doing more research into what it is and how I can test for that deficiency. Is Vitamin B1 test the best way to find it? I saw that there is another test: Erythrocyte transketolase activity coefficient (ETKAC) assay to test for thiamine deficiency but I'm not sure how that test is done. Is that something I can take on my own or do I need GI referral. If it does turn out that I'm thiamine deficient, does that confirm that I have celiac disease or could it just mean that I have not been consuming Vitamin B1 rich food and once I address that with a supplement or food, I would no longer be thiamine deficient? Also full disclosure, I'm a vegetarian and only last year I found out that my Vitamin D level was very low. It was 3.7 ng/ml and the ideal range is >29.9 ng/ml. After a year of taking multivitamin supplement, my Vitamin D level has gone up to 27 ng/ml. Though it's better than 3.7 ng/ml, it's still below the range. I'm not sure for how long my Vitamin D level was around 3.7 ng/ml before 2023 as I didn't have my Vitamin D test taken prior to that. My doctor also wanted to check my Vitamin B12 level as I might not be getting enough of it from vegetarian sources. When I took that test last year, Vitamin B12 was 247 pg/ml and ideal range is 200-1100 pg/ml. So it's still within the range though it's on the lower end of the ideal range. I also have recently started taking vitamin b-complex tablets daily. I've never checked other Vitamin B levels including Vitamin B1. Do you know if such a very low level of Vitamin D and moderately lower level of Vitamin B12 would cause celiac disease or may contribute to some of the symptoms I've been experiencing? Regarding the DNA test to test celiac genes, are you referring to HLA DQ2 and HLA DQ8 tests? As soon as I got the result where my IgG was above range, I had ordered the "HLA Typing for Celiac Disease" test in Quest Diagnostics which measures HLA DQ2 and HLA DQ8. The test is 2 weeks from now and I'll post my results here once I receive them.  
    • Russ H
      Small amounts of gliadin are detectable in some samples of human breast milk but these are at too low a level to cause symptoms. No gliadin has been detected in the beef of grain-fed cattle.   https://pmc.ncbi.nlm.nih.gov/articles/PMC5622696/
    • knitty kitty
      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
×
×
  • Create New...