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Lots Of Questions.. Please Help New Here


sarah-martinez03

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sarah-martinez03 Newbie

Hi I'm Sarah, new to this group and Ciliac. The doctor found it by doing an upper GI. can I still drink DR. Pepper? and what are some good easy meals I can make? good web sites? any advise would be apprieciated!! :rolleyes:


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sharilee Rookie

I was just diagnosed three weeks ago myself and I am still learning but I can tell you Dr. Pepper (my all time favorite soft drink) is gluten free.

Lisa Mentor

Hi I'm Sarah, new to this group and Ciliac. The doctor found it by doing an upper GI. can I still drink DR. Pepper? and what are some good easy meals I can make? good web sites? any advise would be apprieciated!! :rolleyes:

Here is a list of frequently asked questions:

https://www.celiac.com/gluten-free/forum-44/announcement-3-frequently-asked-questions-about-celiac-disease/

This is the best place for information. Go through the forums and you will see that there is lots and lots of great stuff. Talk a walk around and welcome! :)

  • 4 weeks later...
Celiacsister1 Newbie

Hi Sarah I'm knew to this website too. I can tell you that I was diagnosed last September 2011 and I have not had a problem really with the food. Any cookbook by Betty Hagman is absolutely a fantastic. Try her chicken spoon bread if you like dressing, you won't believe! Good Luck to you

JustNana Apprentice

Celiac can be diagnosed with an upper GI? Do you happen to know how exactly? This would be much easier than being heavily drugged for a biopsy.

JustNana Apprentice

Oops I hit reply too quick.

I was so excited about a possible new diagnosis method. WELCOME SARAH!

I have been coming here just 9or 10 days and have learned soooo much. The regulars here are well informed, current and very generous with their time. This is the best celiac site on the web. I sort if fumbled on my own for a month or more and when I finally came to the forum, it was like coming home.

How long have you been gluten-free? Noticed any changes yet?

Lisa Mentor

Celiac can be diagnosed with an upper GI? Do you happen to know how exactly? This would be much easier than being heavily drugged for a biopsy.

I think you may have misunderstood. Celiac can be diagnosed through several methods:

Endoscopy Exam/Biopsy

Serologic Antibody Testing

Positive Dietary Results

Possessive Biopsy Results of DH

Gene testing is non conclusive, but may be supportive if other methods of diagnosis are confirmed.

Testing negative to many of these methods does not indicate that you are not gluten intolerant/sensitive. There is no accepted method of testing for GS at this time. But a positive dietary response is a great indicator.

And back here to add...that there is nothing to the endoscopy exam. Nothing to fear. Piece of cake. B)


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beebs Enthusiast

I find that blogs are a good way to get good recipes - there are lots of good gluten free blogs about. Good luck!

JustNana Apprentice

Lisa,

Maybe I didn't express myself very well. Sarah said she was diagnosed by an upper GI so I thought something new was being done. I am aware of the standard methods of diagnosis. I had a highly positive antigen test, followed by a diagnosis of Dermatitis Herpetiformis and Hashimoto's. The clincher of course is the response to the diet which I have experienced on a couple of areas.

I have had many endoscopies and colonoscopies over the years to track colon polyps and diverticulitis with the latter and esophagus damage from reflux with the former. Athough I dislike the colon prep, both procedures are, as you say, a piece of cake. But endoscopy with biopsies is naturally more invasive than an upper GI and, more important for many people, the upper GI is much more affordable and requires no anesthetic. I would still be curious about Sarah's diagnosis.

You seem very knowlwgable Lisa and always go out of your way to answer questions for people. That's why I love this board so much. Thanks. :-)

Lisa Mentor

Lisa,

Maybe I didn't express myself very well. Sarah said she was diagnosed by an upper GI so I thought something new was being done. I am aware of the standard methods of diagnosis. I had a highly positive antigen test, followed by a diagnosis of Dermatitis Herpetiformis and Hashimoto's. The clincher of course is the response to the diet which I have experienced on a couple of areas.

I have had many endoscopies and colonoscopies over the years to track colon polyps and diverticulitis with the latter and esophagus damage from reflux with the former. Athough I dislike the colon prep, both procedures are, as you say, a piece of cake. But endoscopy with biopsies is naturally more invasive than an upper GI and, more important for many people, the upper GI is much more affordable and requires no anesthetic. I would still be curious about Sarah's diagnosis.

You seem very knowlwgable Lisa and always go out of your way to answer questions for people. That's why I love this board so much. Thanks. :-)

My apology. I should have directed my reply to Sarah. She most likely miss phrased an upper GI test for an endoscopy, perhaps.

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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