Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Overwhelmed


varthurs

Recommended Posts

varthurs Apprentice

Started gluten free diet yesterday. I have been reading up about what are safe and unsafe foods, but I am feeling very overwhelmed by the list. Any suggestions on how to start this up a little less painfully? I am reading labels and cross checking my unsafe list, but I can't deal with doing that every time I want to eat something. Should I go to a nutritionist? Would that be helpful?

Thanks,

Vicki


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BrittLoves2Run Apprentice

Started gluten free diet yesterday. I have been reading up about what are safe and unsafe foods, but I am feeling very overwhelmed by the list. Any suggestions on how to start this up a little less painfully? I am reading labels and cross checking my unsafe list, but I can't deal with doing that every time I want to eat something. Should I go to a nutritionist? Would that be helpful?

Thanks,

Vicki

I found the easiest thing in the beginning was to just stick to things that I knew wouldn't be a problem. Meats, veggies, rice.. If I NEEDED some kind of snack, I made SURE it was labeled Gluten free. It's very overwhelming! Remember, we've all been there! It DOES get easier!

Metoo Enthusiast

Ditto the other poster, at first like you I tried to cross reference that huge list, but I wound up messing up.

Basically it was easiest and safest for me, to just eat everything labeled gluten free...and then of course veggies and meat (chicken can be packaged in chicken broth though so you have to check that).

Beware wheat free does NOT equal gluten free.

I still buy things labeled gluten free, and stray from that just occasionally.

Adalaide Mentor

It is super overwhelming at first. There is so much to know and it all seems like so much work. The suggestion to stick with meats, veggies and fruits is a great one. I am also sure to keep a stash of safe snacks in my house so I don't cheat when I just need to grab something now. Cocoa or Fruity Pebbles cereal bars are gluten free and make great grab and go snacks. I keep some gummy fruit snacks in my Jeep. Snyder's makes some good gluten free pretzels and they are way cheaper than the other brands, although the Glutino chocolate covered ones are quite tasty.

Check your local grocery store for a gluten free or health food section where you may have luck finding some tasty snacks. I do a lot of shopping at a health food store that has a whole gluten free section. Even when things say gluten free on them, I always read the ingredients. Some things claim to be gluten free based on the principle that they only have a little gluten.

dani nero Community Regular

Why are you starting the diet? Did you get diagnosed or you suspect you're intolerant?

If you're suspecting it, it might be better to go to a doctor first to get a diagnosis before going on the diet.. because doing the the diet first means you will have to eat gluten again to get positive diagnosis if you ever end up needing the doctor, which could be very troublesome for you.

First most important thing is to get your kitchen cleaned up from all gluten. It won't help to be on the diet if you keep getting yourself glutened through contamination.

As for the diet. It is always the hardest in the beginning because you're changing your eating habit. Basically the only thing that made it feel better for me was cooking really interesting meals that were filling, and contained some of my favorite ingredients. I don't need to read labels because I cook everything from scratch. It takes more time and work but it's worth it for the piece of mind and avoiding doubt.

I'm on a strict elimination diet right now so I'm basically banned from eating everything except greens, meat, and I just added citrus fruit a day ago. I ate charcoal grilled salmon with avocados for lunch, then clementines for desert. Really yummy. Yesterday I had chicken grilled with sweet pepper and a garlic/onion dressing. It was amazing with a salad. Be patient. I promise that after a week or so the new routine will start feeling more normal and less hard to live with.

Skylark Collaborator

Why are you starting the diet? Did you get diagnosed or you suspect you're intolerant?

She's celiac.

I agree with what other people have said. Stick to easy foods. Fruits, vegetables, meat you cook yourself, rice, potatoes, sweet potatoes, plain nuts (not flavored or dry-roasted), dried or canned beans. You will find whole foods easier to digest than processed foods and you don't have to get all worried about finding gluten on labels. It's not hard to determine that a head of broccoli or a whole potato is gluten-free. :)

Takala Enthusiast

Welcome to the World of Marking Everything with a Sharpie Pen !

Make a list or chart of what you tend to eat or like to eat at each meal, like this:

1. Breakfast

(example) cereal with milk, tea, fruit juice

2. Lunch

(example) sandwich, chips, beverage, or, salad, fruit, yogurt

2.b. snack

granola or cookie bar, peanut butter on something, etc

3. Dinner

(example) meat, vegetable, starch

Then you can think to yourself, what sort of staples do I need to keep on hand to make this happen, gluten free.

So your shopping list would look like this:

gluten free cereal

fresh oranges to replace boxed juice drink (altho the juice drink might be okay)

gluten free bread (can store in freezer)

gluten free corn tortillas if you can eat corn

rice cakes

sandwich protein staples, gluten free, such as safe lunchmeat, peanut butter, jelly, cheese, tuna, tofu if you do soy (a lot of us end up ditching soy flour and tofu)

condiments:

safe gluten free mayonnaise (Spectrum + Best Foods have gluten-free versions), ketchup (Heinz' is Kraft, and works, I have gotten cc'd by some supposedly safe specialty ketchups :angry: )

mustard (ditto, currently using a store brand mustard made with gluten-free ingredients that works, have reacted to so- called gluten free mustards)

pure apple cider vinegar- READ THE LABEL, use pure cider vinegar

pure olive oil

with the above condiments you can recreate almost any salad dressing or sandwich spread by mixing the ingredients, and they will be safe

~back to the list~

chips: use google to find gluten free corn + potato chip brands if you are into these.

yogurt- most yogurts are safe if you read the label, however, for the lactose sensitive amongst us, or those sensitive to additives, dry milk powders, thickeners, or antibiotic residue, yogurts are a minefield until you find "your brand" that works. I did not do yogurt for a very long time because of this.

fresh fruit and vegetables - gluten free

snack- in the beginning, you may want to stick with fruit or known labeled gluten free items like a Lara Bar. You can also mix up your own trail mix out of safe gluten-free nuts, chocolate chips, and raisins or craisins, or have peanut butter on a rice cake or hummus you've made on celery.

proteins:

Most plain raw meats are gluten free, just watch out for cross contamination issues and for what they tend to try to sneak into poultry

eggs are gluten free

Starches: rice, beans, potatoes, rice pastas

frozen gluten free pre made pizza shells can be found in health food stores & some better groceries

Fats: pure butter if you can do dairy. Coconut oil, coconut milk, avocado, nuts, even lard is used by some for baking if they can't handle the dairy, olive oil

milk substitute: you may end up using a rice or nut milk if you have to go off of dairy milk for awhile. MANY types of these boxed gluten-free milk subs are available in many flavors. Another way to avoid lactose is to just thin yogurt out with water and use that on cereal, or mix half and half with a nut milk.

_______

Breads, gluten-free homemade: can start with a pre packaged mix.

Specialty needs: if you are one of those who cannot handle starchy grains at all in the beginning, you may end up making your own bread out of your own gluten free flours. You can grind nuts easily in a blender, and you can also grind things like seeds (example, buckwheat) in a coffee grinder. If you cannot handle a lot of carb you can still make a high protein gluten free bread. Baking in the microwave in small servings ("bun-in-a-cup") is one of the fastest and easiest ways to get fresh gluten free bread without a 2 hour time and effort commitment, and many different prepared flour mixes can be used, besides your own creations if you need to customize.

________

Minimum utensil replacement: new dedicated cutting board, your own toaster, colander(s), and dedicated cast iron pan if you use that, plus get rid of plastic or rubber spatulas and get your own clean storage tupperware or start saving those Cool Whip tubs. Highly recommended to use your own clean, new teflon, not the nasty old scratched stuff, and new bakeware if you cannot scrub the old down to clean.

If your potholders are not disgusting, WASH THEM because they've been brushing up against gluten if you bake. May as well get a new set if they're looking pitiful, anyway.

If you don't want to buy a rolling pin yet, use a glass turned on its side and roll things out between sheets of waxed paper. They do make ceramic rolling pins :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sreese68 Enthusiast

You've gotten good advice. I'll add: do not go to the grocery store hungry. It makes things worse.

Don't buy a million gluten-free substitutes (bread, pasta, etc) at first. Try a little bit at a time and find out what brands, alternative grains, etc you like. It'll save you money.

Keep in mind that your tastebuds will adapt and gluten-free substitutes that taste not-so great now will taste better to you later.

Budget plenty of time to shop. It takes a long time to read labels on everything. It'll get easier as you discover what you can have.

Try to shop when you're in a decent mood. I'd bet serious money that most of us on this board have had a partial to full breakdown at the grocery store at first. It gets better. I still stare longingly at Pop Tarts, but I don't tear up over them anymore.

Find a comfort food that makes you smile. Mine is Fritos. I've even eaten them with baked potatoes or inside tacos.

red island Newbie

Since I live in a rural area, shopping gluten free meant going to several stores as everyone had just a few different products. I was very very fortunate to find a fellow celiac close to my neighborhood who very kindly invited me to his house and showed me the stuff he bought, told me where to find it and even gave me some of the snacks to try first before spending money on stuff I might not like. So if there is a local celiac group in your area that can tell you where the best places are to shop etc, that might be worth looking into.

I still hate reading labels so I generally just cruise the produce section and buy only a few of my favorite packaged foods. and if a company is kind enough to put a big old gluten free sticker on their label then I will be their friend for life.

In the meantime, keep reading here, even in my darkest moments, I found something on here that would enlighten me or perk me up and its very comforting to know that there are a whole bunch of people who know exactly what you are going through.

varthurs Apprentice

thank you all

lucky97 Explorer

You will get the hang of it, I was overwhelmed at first...particularly after the diagnosis when I walked into a grocery store like I always did but first realized "Hey, I can't eat most of this stuff anymore." It was totally weird. But not now, I'm over it.

The best thing to do I think is to make a couple lists. You won't need them forever, but will for awhile. List the foods you know are labeled gluten free (there are more and more all the time now). Then make a list of things you checked on the web that are gluten free but NOT labeled if you want to go that route...for example Ortega taco seasoning, according to their website, is gluten free. Coke on their website states it's gluten free. Stuff like that, but really check. I search on these forums AND the company website before I'll use it now, almost like a cross reference because ingredients and the like can change.

It's getting easier and easier all the time I've noticed to find gluten free things, and I've only been Celiac less than 18 months myself. Beer was the hardest thing to say goodbye to but there was no getting around that. If you drink, you'll figure out the safe things to have. It's a list, like the others.

Good luck in your gluten free adventures!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Dermatitis Herpetiformis
      5

      Skin issues

    2. - N Young posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Frustrated with Providers

    3. - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Iron loss and potential celiac.

    4. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,115
    • Most Online (within 30 mins)
      10,442

    Ginarwebb
    Newest Member
    Ginarwebb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      These articles may be helpful:    
    • Jmartes71
      I went to ER on the 30th because I didn't want to wait and saw dr at desk for intake. I went for NOTHING!. ER Dr was very nice but made it seem as if I was a nut case rater than coming in for real issues calmly explaining its staph! Staph,  by look no blood test, no skin test. No looking in my nose and throat was given a prescription for jock cream and some pills ! I made the mistake of saying Im waiting on Infectious disease. She asked how did I get referral and I said I did it online.The next day I checked the status and it was denied! I did get  a referral to the dermatology office i went to last year that over charged me and did a biopsy on me stating inconclusive! I went to another dermatologist and he stated I should see Infectious disease at place i put in referral. With that I contacted that dermatologist and waiting to see if he thinks dermatology or Infectious disease is the route.I do have appointment for dermatology next week.Until then i did purchase Zahler paraGuard advance intestinal  flora support  from Sprouts. Im also very alarmed that the fact celiac isn't addressed properly infact its downplayed. When I had my son tested for HLA-DQ2 and it came out positive because he is eating everything and he is extremely skinny but he isn't dealing with severe diagestive issues because thats all he knows NOW or yet because he is still young 21.I too didn't know any difference when i was that age because thats all we know.Life changes will get him in latter years im afraid because what im dealing with.That scares me.The specialist we went to was only about congestion he is getting.He is getting congestion because he is eating what he isn't supposed too! Zero talk about celiac and HLA-DQ2 positive. Only talk was he is congested because we live in the Valley! They wanted to do surgery! I did write again to our district leader considering when I did call, the guy stated he knew all about celiac. I really wanted to tell him NO YOU DON'T but held my tongue. For my skin sores the cream given didn't do anything because ive also had in past.Ive been putting liquid vitamin c on it and taking vitamins which is making a little difference just with the last few days of doing.
    • N Young
      I have been Gluten Free for 25 years and havent eaten gluten knowingly during that time.   Such a rocky life, I have had issues since I was 16 when physicians stated I needed to see a psychiatrist. I am now 70 years old. I also had Dermatitis herpetiformis. I had negative tests on biopsy, blood test etc but no doctor mentioned that I needed to do a gluten challenge. I went on an elimination diet and found relief on the Dermatitis within a month. I have no doubt that I am celiac and very sensitive now. Now my issue is that I changed physicians due to retirement and he performed a blood test and included a celiac test. I was very upset because I did not request the test and had not been eating gluten for 25 years. Of course the test was negative.  My question - Will this cause me any issues with health treatment if my records now have that I dont have celiac? I like this physician and I am appalled that he performed the test. (he told me his brother is also celiac).  I feel that we are still living in the dark ages. I dont want to cause problems because I rarely need health treatment since I live a fairly healthy lifestyle.  Since I am at this age and been through so much getting to this point am I being unreasonable for being upset? I am not expecting to see this physician for another 2 months.  Need to know if I can expect issues with future treatments. How can a physician not know about the gluten challenge this day and age?   
    • trents
      "Risk free genetically"? Very low risk, actually. But, we are still learning about the genetics of celiac disease. Speaking of milk, some studies show that CMP (Cow's Milk Protein) can damage the small bowel villi like celiac disease does. Also, some meds (NSAIDS, Olmesartan - a blood pressure med) and some infections can also blunt SB villi.
    • trents
      @Aretaeus Cappadocia! The post you were looking for about omeprazol acting as an anti-inflammatory/immunosuppressant was made (yesterday, I believe) by knitty kitty. Current guidelines for the gluten challenge prior to an endoscopy/biopsy of the small bowel is the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat flour bread) for at least two weeks prior to the day of the procedure. @Ginarwebb, your tTG-IGA >250 would seem to be a pretty high test result, though to be sure of that statement, I would need to see what the lab used for a "normal" range. Do you have that number also? Different labs use different scales. There isn't an industry standard yet. The tTG-IGA is the centerpiece of celiac blood antibody testing. Your ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER (aka, "EMA") is positive as well. This is an older test, and a relative expensive one, compared to the tTG-IGA which has largely replaced. But the EMA is still ordered by some docs and is highly reliable. That both of them agree in your case and this is strong evidence that you have celiac disease. Concerning the ENDOMYSIAL ANTIBODY TITER (aka, "total IGA") being high, there are two things of importance. First, it tells us you are not "IGA deficient" such that your tTG-IGA test result is reliable. Second, a high total IGA test score can suggest other health concerns, some of which are serious. It can also mean nothing. Talk to your doctor about this. I would also suggest you research the implications of a high total IGA. In addition to IGA celiac diagnostic tests there are also IGG tests which are handy when total IGA is sub normal.  Here is an article outlining the various tests that can be run for diagnosing celiac disease:  
×
×
  • Create New...