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Celiac And Gastroparesis?


Kamie

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Kamie Newbie

I was recently diagnosed with both of these conditions. I'm adjusting pretty well, but it still sucks. I'm sorry if this has been posted before, but I'm curious to know if having BOTH conditions is pretty common?

It'd be nice to have someone my age to talk to who is going through it too. I hate being 19 and having all these problems!


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Darn210 Enthusiast

Hi Kamie,

I do know that there are others that have been diagnosed with both, as every so often I see a thread on Gastroparesis. (You may want to do some searching on the board). However, I don't know how active previous posters to this topic are.

I don't want to get your hopes up but I did want to share my daughter's experience. She was originally diagnosed with both Celiac and Gastroparesis. Even at the time of diagnosis, the GI said that the Gastroparesis may be caused by the Celiac and that after she has been gluten free for a while that the gastroparesis may resolve itself. In her case it did . . . and it took about 10 months to completely go away.

Gfresh404 Enthusiast

It seems like this is pretty common

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  • 3 weeks later...
Kamie Newbie

Whoa, sorry it took so long to reply. I see a specialist Monday, so hopefully we cant get it all figured out. Thanks so much for the info! =)

And Janet, I'm really glad to hear your daughters success story! =)

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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