Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Products


nmull #newly diagnosed

Recommended Posts

nmull #newly diagnosed Newbie

I am a newly diagnosed Celiac.. I have been what I thought was Gluten free for almost 3mths now. I noticed while buying groceries tonight, some products said Under 20ppm. Naturally I Googled it because thats where we go right? Ha Anyway, I am wondering should I Just be eating natural things until I heal? Doesn't 20ppm mean that there is a slight trace of gluten? I haven't had any improvement in my symptoms or felt much better as of yet. Just curious if this could be the reason- im trying to eat my normal foods but the Gluten free versions too soon??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

In order to make a guarantee, the product must be tested. There are a variety of tests available, with detection thresholds diminishing as cost increases. A test for 3 ppm is possible, but extremely costly. Twenty parts per million (20 ppm) is a common compromise between cost and sensitivity.

The actual content in the product is far less than the claimed test level, and may well be zero. To consistently pass the 20 ppm test, the manufacturer must aim far lower. Most try to achieve a complete absence of gluten, but it can not be proven.

jeanzdyn Apprentice

In order to make a guarantee, the product must be tested. There are a variety of tests available, with detection thresholds diminishing as cost increases. A test for 3 ppm is possible, but extremely costly. Twenty parts per million (20 ppm) is a common compromise between cost and sensitivity.

The actual content in the product is far less than the claimed test level, and may well be zero. To consistently pass the 20 ppm test, the manufacturer must aim far lower. Most try to achieve a complete absence of gluten, but it can not be proven.

Thank you, psawyer, for a clear, understandable explanation! That is most helpful.

Lisa Mentor

This is great way to understand gluten intake, from the folk who know best:

Open Original Shared Link

Skylark Collaborator

Trace gluten aside, you can't go wrong with whole natural foods for healing. A lot of us feel our best eating mostly meat/fish/poultry and veggies. Gluten-free breads can be really starchy and have a lot of xanthan gum that doesn't agree with everyone's stomach. Rice and potatoes can be a little easier to digest.

Remember that a lot of celiacs don't tolerate dairy very well at first. Soy is another thing to watch to see if it bothers you.

nmull #newly diagnosed Newbie

Thank you everyone! I think this 3rd month has been more stressful. I am also Hypoglycemic and I can not seem to keep my sugar regulated. It has bottomed out a few times last week. I have the book Gluten Free for Dummies so hopefully I will get the hang of this soon! Ha I am very thankful for this site :)

dilettantesteph Collaborator

I am also Hypoglycemic and I can not seem to keep my sugar regulated. It has bottomed out a few times last week.

That was a problem I had too. Once I got this diet figured out, it went away. Hopefully it will for you too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Thank you everyone! I think this 3rd month has been more stressful. I am also Hypoglycemic and I can not seem to keep my sugar regulated. It has bottomed out a few times last week. I have the book Gluten Free for Dummies so hopefully I will get the hang of this soon! Ha I am very thankful for this site :)

Rice and starchy gluten-free breads are hard on me in that respect. Even if I eat white rice without enough fat and protein I bottom out so badly I fall asleep a couple hours after the meal.

I find that a mostly meat/veggies diet where I'm getting a lot of my energy from fat rather than carbs really helps my blood sugar stay steady. I sort of eat SCD/paleo-ish. I'll have eggs and a little fruit for breakfast and skip the toast, chicken & veggie soup for lunch with some nuts to fill me up, usually a snack of a piece of fruit and a few more nuts in the afternoon, and meat, chicken, or fish and a couple different veggies or a big salad for dinner.

nmull #newly diagnosed Newbie

Thanks Skylark! I think thats my problem as well. However, the Gluten free breads are horrible so I have been able to not eat it as much. ha

How long did it take before you were able to see a difference in your energy levels?

Skylark Collaborator

LOL! I've been eating gluten-free bread so long I've forgotten what normal was like.

I think it was a few weeks until I had more energy. I usually eat a little rice with dinner once or twice a week as I find a little carbohydrate seems to be helpful. Getting off dairy helped me too because I seem to be somewhat sensitive to it. I also take some red panax ginseng, which seems to really help how I feel in the morning.

I know the carbs are an issue for me because I recently tried Failsafe diet, which is low food-chemical. It has you eat a fair amount of gluten-free grains and rice because they're low-salicylate. My asthma came back, I got tired again, and my face is breaking out.

TiaMichi2 Apprentice

I stay away from processed foods. I cook everything fresh, meat, brown rice and white rice mixed together (just cuz I do not really like brown rice) with a little olive oil, and pinch of salt, cooked in my rice cooker is very yummy, fresh veggies. No cows milk for me, almond is the way I go, it has made a big difference. The bloat is gone :).

Watch out for Gluten in lotions, lipsticks, haircare products, house hold cleaning products, soaps it is hidden where you least expect it. When I first went off gluten, I was still getting it from the above mentioned culprits. It has been 4 years for me, and their are still times, when I am taken off guard and get gluttened by CC, like when my son moved back in and started bringing unsafe products to my other wise gluten-free kitchen. :( I have a reaction to xanthan gum also, just like gluten. So I stay away from that also.

There is a Gluten-Free Grocery Shopping Guide by Matison & Matison 2011/2012 Edition, it is a great tool to have.

Hope this helps

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,661
    • Most Online (within 30 mins)
      7,748

    JR2025
    Newest Member
    JR2025
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • pplewis3d
      Thanks, Scott! I appreciate you looking that up for me. Perhaps that will be good enough for someone but not for me...super sensitive dermatitis herpetiformis here. I don't take any chances that I can avoid. ~Pam
    • trents
      Welcome to the forum, Liamclarke! We have reports from time to time of people whose celiac disease seems to go into remission. Often, however, it doesn't last. There is also the question of whether or not symptoms or lack of them tell the whole story. Many of us are "silent" celiacs who have very minor or no symptoms when consuming gluten yet slow, insidious damage is still going on in the gut. The only way to tell for sure in your case would be to be retested after going back on gluten for a period of weeks or months such that sufficient time has elapsed for antibody levels in the blood to build up to detectable levels. And I would certainly advise you to do that and not take anything for granted.
    • Liamclarke
      I was diagnosed with celiac at age 8 when I dropped down to the bottom 18% of my height and weight class this lead to tests which lead to celiac. I was devastated however with a gluten-free diet I am now taller than 60% of my grade. As I grew older I grew but my symptoms changed to violently throwing up everything inside of my body from a tiny macaron that I know had gluten in it and caused my reaction. However recently I had a full wheat containing cookie and didn’t feel a thing. Absolutely no symptoms at all. No upset stomach no diharea no anything not even a headache. So I told my doctor and he told me to experiment. What better than a fried fluffy donut that aren’t the same gluten-free I had half and had no reaction, not to mention the top ingredient was wheat and it was delicious. Yet still my mom is skeptical and I need to know. Can a kid outgrow celiac?????
    • knitty kitty
      Hi, @Richardo,  Welcome to the forum!   Good suggestions, although we are aware here that oats, corn and rice can cause problems for some because their proteins have segments that resemble segments of the gluten protein.   What I find most helpful for my dermatitis herpetiformis flares is to increase Niacin Vitamin B 3 and Thiamine Vitamin B 1.  Niacin and Thiamine are needed to turn those carbohydrates into energy to fuel metabolic reactions that keep us healthy.  An influx of carbohydrates demands more of these vitamins.  Since malabsorption of Celiac can cause us to be low in the eight essential water soluble B vitamins, consuming a high carbohydrate diet can deplete thiamine and niacin stores rapidly. There's evidence that Niacin insufficiency plays a big part in dermatitis herpetiformis.   The flushing form of Niacin is known to dilate small blood vessels in the skin which allows the antibodies to be easily cleared from the blisters and induce healing.   Niacin intake should be kept under 500 mg a day otherwise it will lower bad cholesterol and raise good cholesterol, but this should only be done under doctor supervision.   Thiamine is nontoxic and safe Eve in high doses.  Every cell in the body needs thiamine to fuel the mitochondrial functions.  A high carbohydrate diet requires 500 - 1000 mg more for every 1000 calories from carbs.  
    • trents
      @Tracey Thomas, Is that the only celiac test that was run? From the magnitude of the reference range, that looks like it was the "total IGA" test to check for IGA deficiency. It is not checking for celiac disease per se. If you are IGA deficient, it can cause false negatives in the individual IGA celiac antibody tests. Were there any other celiac antibody tests run?
×
×
  • Create New...