-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Wheatwacked replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Celiac Maybe a Possibility?
It seems you have proven that you cannot eat gluten. You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease. Zinc is also a common defiency. Its an antiviral. that's why zinc gluconate lozenges work against airborne viruses. Vitamin D and the Immune System+ ... -
- Scott Adams replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Weird Symptoms
My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away. -
0
-
- Jeff Platt replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Weird Symptoms
Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.- 2
-
-
- cristiana replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Weird Symptoms
Not sure if related to coeliac disease but my ear ringing has stepped up a notch since diagnosis. Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out. Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics120.9k
-
Total Posts69.2k
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
0December 11, 2024 12:00 AM
-
-
Posts
-
By Wheatwacked · Posted
It seems you have proven that you cannot eat gluten. You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease. Zinc is also a common defiency. Its an antiviral. that's why zinc gluconate lozenges work against airborne viruses. Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps. When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer. Any excess is stored in fat or excreted through bile. The western diet is deficient in many nutrients including choline and iodine. Thats why processed foods are fortified. Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage. GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal. Try to reduce your omega 6:3 ratio. The Standard American Diet is 14:1 or greater. Healthy is 3:1. Wheat flour is 22:1. Potatoes are 3:1 while sweet potatoes are 14:1. So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels. -
By Scott Adams · Posted
My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away. -
By Jeff Platt · Posted
Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up. -
Not sure if related to coeliac disease but my ear ringing has stepped up a notch since diagnosis. Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out. Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both. But it comes and goes. My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing. I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too. So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things. I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear. I reported mine but no cause was found. Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.
-
By Scott Adams · Posted
Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though they can overlap with other conditions as well. The recurring sinus infections, being underweight as a child, chronic gastrointestinal issues, nutrient-related symptoms like cramps, and the persistent fatigue and brain fog are all things that many people with undiagnosed celiac report. Your reactions to gluten also stand out. The improvement in symptoms when you reduce or remove gluten, followed by the resurgence of pain and other problems when you reintroduce it, is a common experience for those with celiac or gluten intolerance. While your frustrations and trials with elimination diets might not have given you concrete answers yet, they’ve provided valuable clues. It’s also worth noting that celiac disease doesn’t always present in the classic way. Many people, like yourself, may not experience severe gastrointestinal distress but instead have “atypical” or extraintestinal symptoms like joint pain, menstrual irregularities, fatigue, and more. It’s a condition that can go undiagnosed for years, especially when symptoms are subtle, sporadic, or mistakenly attributed to other issues. The fact that you’ve sought alternative approaches to feel better shows just how determined you’ve been to find relief, even without a definitive diagnosis. Given your history and how your body responds to gluten, it would be worth exploring celiac disease further with a medical professional. Before removing gluten completely, it’s important to get tested while you’re still eating it, as going gluten-free beforehand can affect the accuracy of the results. A blood test for celiac antibodies (like tTG-IgA) is usually the first step, and if positive, an endoscopy may follow to confirm the diagnosis. If the testing process feels daunting, keep in mind that getting answers could give you clarity and help guide your health decisions going forward. Whatever the outcome, you’ve already made significant strides in identifying triggers and managing your symptoms. Your awareness and persistence are key, and this community is here to support you as you continue to seek answers. This article might be helpful. It breaks down each type of blood test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.
-
Recommended Posts
Archived
This topic is now archived and is closed to further replies.