Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Many Questions!


ksmama

Recommended Posts

ksmama Rookie

My 8 year old daughter started getting stomach aches, headaches and muscle aches daily 3-4 months ago, she is 41lbs and 46inches tall, the gastro has diagnosed her with failure to thrive. She had a celiac panel run(along with s bunch of other tests) and everything came back normal.....over the past few days she hasn't had tummy aches, headaches or joint pains....but if I press on her tummy right above her belly button she said that it hurts. She has a endoscopy and colonoscopy scheduled first thing Monday morning and I want some answers! No child should have to take pepto bismal daily. The dr is concerned about her weight as we are, he said that the only reason he is going through with the endo and colonoscopy is because of how small she is.......with the symptoms I posted does it sound like she could have celiacs even with a negative celiac panel???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Yes.

Read through the kids/parents section and you'll see lots of posts about negative tests/positive results on a gluten-free diet.

Too much to attempt to rewrite.

ksmama Rookie

I suppose I will find out soon, today was pretty miserable for her being on a liquid only diet, I will be glad when this whole ordeal is over.....the dr told me that even if everything comes back negative he wants me to try a gluten free diet with her so this week I will be preparing my kitchen.

Aileen Newbie

Does anyone know if breakouts on your face and arms is part of being allergic to gluten or not??

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,381
    • Most Online (within 30 mins)
      7,748

    carter1cathy
    Newest Member
    carter1cathy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ALBANICKAP
      Hi, I'm very frustrated with my problems related to the above.  I find Gluten to be easier than fructose, at times even lactose b/c I love cheese.  I do buy lactose free dairy products but still have problems.  Have recently been adding more bread to bulk up my stools.  Any suggestions for products that might help? Thx. AP  
    • Scott Adams
      Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
    • Celiacandme
      Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
    • Scott Adams
      Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If your biopsy ends up negative you still may want to go gluten-free for a few months to see if your symptoms go away. Also, be sure to eat tons of gluten daily in the 2 weeks leading up to your endoscopy, otherwise you could get false negative results.       
    • Scott Adams
      It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight.
×
×
  • Create New...