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Recent Activity
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- Lynnard replied to Lynnard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Waiting on biopsy results but wanted opinion on bloodwork
Thank you - that makes perfect sense and I understand. celiac disease is an autoimmune disease which will cause further damage while gluten sensitivity is different. Based on my symptoms and bloodwork, I am almost certain I have celiac disease. I kind of hate to hope for a positive biopsy but a negative one would be frustrating for sure. Regardless, I have... -
- trents replied to Lynnard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Waiting on biopsy results but wanted opinion on bloodwork
Let's talk about terminology for the sake eliminating (as much as possible) confusion. Unfortunately, the terms "gluten sensitive" and "gluten intolerant" have, historically, been used indiscriminately. There are two primary categories of gluten disorders whose "official" terms are 1. celiac disease and 2. Non Celiac Gluten Sensitivity or NCGS for short.... -
- Lynnard replied to Lynnard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Waiting on biopsy results but wanted opinion on bloodwork
Thank you! This is super helpful and confirms everything I have read. I was definitely eating lots of gluten before both testing and endoscopy. If the biopsies do come back negative, I'm wondering how conclusion/distinction is made between celiac and gluten intolerance is made. Or does it matter because presumably recommendation of gluten-free diet will... -
- trents replied to Philly224's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14
Weak positive blood test and marsh type 1
You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but... -
- Rogol72 replied to Morgan Tiernan's topic in Dermatitis Herpetiformis3
How to navigate living with dermatitis herpetiformis
Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back...- coeliac
- dermatitis herpetiformis
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